Disability Rights Watch

Author: Disability Rights Watch

  • Week 30 Update

    1. Trump Administration begins military takeover of DC, targeting unhoused. In conjunction with his executive order targeting unhoused people, and false claims of high crime rates, Trump deployed the National Guard in Washington DC and also attempted to order the Attorney General to take over the local police force. Initially the Guardspeople weren’t supposed to be armed, but that was a lie.

    The forces have already begun massive sweeps and arrests against unhoused (or perceived unhoused) people, and Ohio and South Carolina have pledged more forces.

    The hostile takeover by the federal government and other capitulating states’ militias–a key part of Project 2025 and paralleled by many historical authoritarians–is meeting little pushback from establishment Dems. Several motions in court aim to block the actions. Unclear whether rule of law remains.
    Approximately half of unhoused people have a disability and 8% are military veterans.

    2.RFK Jr Plans to Remove Preventative Care Taskforce/Guidelines. RFK Jr. announced plans to remove the Preventative Medicine Taskforce, which he called “too woke,” sparking “deep concerns” from the American Medical Association and others.

    The Taskforce, which is nonpartisan and has been vetted for any conflicts of interest, offers evidence-based guidance on preventative medicine for a range of conditions, like when patients should have cancer or diabetes screenings, HIV preventatives and cholesterol medication.

    Without taskforce guidance, patients will have more inconsistent care, and insurance companies may not pay for preventative screenings or appointments.

    3. They’re messing with the elections, continued. The Texas legislature continues its pursuit of illegal redistricting after Trump asked the state to find him five more red seats. Texas Dems are returning to the state, and the proceedings will likely continue.

    Meanwhile, Callais v. Landry, a Louisiana-based redistricting case that is poised to destroy Section 2 of the Voting Rights Act remains on the SCOTUS shadow docket, with a date set for October. In California, Governor Newsom has threatened to make similar redistricting moves in his state in order to secure more blue districts to offset the Texas ones.

    While Newsom’s stylized tweets have gone viral for annoying Trump, ultimately gerrymandering continues to contribute to voter suppression and is unlikely to end in TX, CA, or LA.

    6. Trump tries new defunding tactics for DoEd, pushes conservative curriculum. The Trump Administration continues to attempt back door defunding of DoED. The latest: Congress is currently negotiating the bipartisan version of their budget bill. However, the Administration has already said DoED funding will be removed later via rescissions package. This move only requires 50 votes.

    Rescissions is also how funding already allocated to PBS was revoked by the administration earlier this summer. At least ten states are planning to use ultraconservative children’s materials out of PragerU (an unaccredited think tank pretending to be a university) to fill the gap.

    Prager’s materials include animated videos in which cartoon historical figures present imagined “anti-woke” talking points, like one in which Christopher Columbus tells children slavery is, “better than being killed” and Frederick Douglass calls it, “a compromise.”

    7. Local: PA GOP refuses to fund mass transit, devastating cities, statewide economy. GOP-led PA failed to pass comprehensive funding for the South Eastern Pennsylvania Transit Authority and other mass transit across the state.
    Specifically, SEPTA, serving Philadelphia and its suburbs, will see 20% service cuts and 21.5% fare raises staring this month. The removal of bus lines, fewer regional rail times and 9PM curfews, and the elimination of special events trains will devastate both worker and tourist mobility.

    Despite chronic underfunding and restrictions that prohibit Philadelphia itself from delegating more funding, SEPTA uses their funds most efficiently per capita compared to other authorities, and provides a 70% return on investment, as Philly functions as a main economic engine for a largely rural state.

    Philadelphia’s population is 40% Black and has the highest percentage of disabled residents of a major US city–marginalized and working class people will bear the burden of these cuts.

    8. Local: Arkansas School Discipline ACT 565 and 804
    ACT 565 stipulates that students removed from a classroom for behavioral reasons cannot be reinstated into the classroom if the behavior affected a teacher or student negatively.

    ACT 804 “Law Concerning the Use of Positive Behavioral Supports in Public School Districts” removes language that implements other behavioral protocol before seclusion or restraint.

    Any educational law that dictates blanket policy on behavioral protocol or classroom placement is violation of FAPE and the IEP process.

    Disabled and BIPOC children are disproportionately impacted by punitive disciplinary policies in public schools.

    9. Silicon Valley proposes eugenics as solution to fears of hostile AI takeover. Recently, leaders in the Silicon Valley sphere have presented a solution to fears of an eventual hostile AI takeover, and reports that conversing with AI has caused mental health issues: eugenics.

    Prenatal eugenic “enhancement” has long been a darling project of the techbro set, but now they are explicitly advocating for modifications made to embryos that might ensure a “higher IQ” for the resulting child, in order to combat future issues with AI.

    Advocates argue that this is not the same as the “bad kind of eugenics.” However, given the racist and ableist foundations of IQ, its obvious that they are of a piece.

    Historically, eugenics has always been framed in a positive light as a way to “advance” the human race, and has always resulted in the forced sterilization and/or murder of those deemed “undesirable” by those in power.

    Action Items: Share this info! Disability is often lost in mainstream coverage.

    Hit the streets if you are able. March, attend a town hall, school board meeting, or other local action.

    Protect your neighbors. Warn and record in the presence of ICE. Push your local officials not to collaborate.

    Donate to your local food pantry, library, clinics, cash bail funds, or other mutual aid if you can. Or volunteer your time.

    Call your Senators: YES to the Appropriations Committee’s push back on budget cuts and support for DC.

    Make sure you’re up to date on your vaccines. Ditch the wearable tech and AI when possible.

    Think about ways to spread information offline. Make flyers and stickers. Make art.

  • Week 29 Update

    1. Executive Order: Improving Oversight of Federal Grantmaking. Trump signed an executive order this week that gives the executive branch approval control over research grants disbursed by the NHS, NIH, and other agencies.
      This will add an unnecessary extra layer of bureaucracy and censorship, in which scientists will have to defend their projects to people have no scientific knowledge, rather than a peer-review process by fellow experts.

      The order also puts grants that work in fields that focus on or support marginalized populations at risk due to the administration’s anti-DEIA rhetoric–research that mentions disability, examines race or ethnicity-based prevalence of specific diseases or conditions, highlights race, gender, or class disparities or other biases, will be eliminated on the basis of ideological warfare rather than scientific value.
    2.  RFK Jr. cancels 22 programs, $500 million in vaccine funding. RFK Jr. announced the revoking of $500 million dollars in funding, specifically for mRNA projects. RFK has spoken about his distrust for mRNA technology re: the covid vaccine, but the methodology is actually the latest frontier in a wide variety of vaccine and medical tech, including in customizable cancer treatments.

      In the same week, the FDA also floated plans not to renew approval for the Pfizer pediatric 0-5 covid vaccine, the only one for this age group.

      Misinformation kills in more than one way: Shortly after RFK’s anti-mRNA speech, Patrick White opened fired on CDC headquarters in Atlanta, believing himself to be injured by a covid vaccine. White and a police officer were killed.
    3. Good news: Deaf Mongolian Man Released from ICE Detention. Avirmed, a Deaf immigrant who turned himself in at the California-Mexican border to seek asylum, had been detained by ICE for months, after DHS failed to process his written request for asylum, perform the credible fear screening, or provide him a Mongolian Sign Language interpreter. At one point they attempted to communicate via Google Translate, getting basic case facts wrong. He also had no accessible way to contact his sister, who is a resident of Virginia.

      On July 9, a judge ordered that he be provided with an interpreter. Once communication was established, he was able to present his case and has since been released. He is currently living with his sister. Avirmed is just another of many disabled people held illegally by ICE in squalid conditions without accommodations or information.
    4. Big Pharma joins race to profit off measles as cases surge to 33-year high. With cases at a 33-year high, pharmaceutical companies are hoping for “investor interest” on a potential measles cure. Previously broad uptake of the vaccine had eradicated the disease in the US.

      Several pharmaceutical companies are working on synthetic monoclonal antibodies that could be used to treat the infected, who are mostly unvaccinated. (In contrast, a vaccine teaches the body to make its own antibodies upon contact with the disease so the person can avoid serious illness).

      In the Wellness arena, grifters continue to make money on the outbreak, though with no guardrails–one popular recommendation of large doses of vitamin A left several poisoned and hospitalized with overdoses.

      The original anti-MMR rhetoric was also a grift–Wakefield wrote a fraudulent paper linking MMR and autism so he could sell his own version of the vaccine. Subsequent studies with sample sizes totaling more than half a million children worldwide have disproven any link between vaccines and autism, a developmental difference present from birth and believed to be largely genetic.
    5. They’re messing with the elections, continued. The Texas legislature continues its pursuit of illegal redistricting after Trump asked the state to find him five more red seats. Texas Dems fled the state to break quorum and are now threatened with arrest and bomb threats. (If you have a Democratic rep. or Senator, tell them to support their Texas colleagues!)

      Meanwhile, the Supreme Court has taken up Callais v. Landry, a Louisiana-based redistricting case that is poised to destroy Section 2 of the Voting Rights Act.

      Trump also asked for a new mid-season census in order to remove noncitizens from the data. Legal precedent has already decided that noncitizens should be counted during census-taking, which is about overall resource distribution per capita, not citizenship status. Voting rights advocates worry this is an attempt to take up large scale redistricting efforts.
    6. Administration tightens grip on public information via censorship. The Library of Congress was caught deleting portions of the online copy of the U.S. Constitution, specifically protections against detention without due process. When called out, they blamed a “coding error,” though computer scientists broadly agree this is unlikely.

      Meanwhile, a Paramount/Skydance merger has resulted in new levels of capitulation, including the placement of a government-sanctioned “truth arbiter” to oversee journalism at CBS. The FCC commissioner (a Dem), slammed the deal, saying it allows for. “never-before-seen forms of government control over newsroom decisions and editorial judgment-actions that violate both the First Amendment and the law.”

      Removing access to news and civic info, especially via low-cost access points like local news or government websites, is a key tenet of authoritarianism.

      Action Items:
      Share this info! Disability is often lost in mainstream coverage.

      Hit the streets if you are able, for ex: look out for ICE detention center protests, a We are America march, town halls, or other local actions. If you can’t attend in person, you can donate to carpool or bus ticket funds for larger marches.

      Protect your neighbors. Warn and record in the presence of ICE. Push your local officials not to collaborate.

      Donate to your local food pantry, library, clinics, cash bail funds, or other mutual aid if you can. Or volunteer your time.

      Call your Senators: YES to the Appropriations Committee’s push back on budget cuts. NO to illegal redistricting and RFK’s vaccine cuts.

      Make sure you’re up to date on your vaccines. Ditch the wearable tech if possible.

      Think about ways to spread information offline. Make flyers and stickers. Make art.

  • Week 28 Update

    1. Department of Health and Human Services reclassifies Head Start. This week, HHS reclassified Head Start as a welfare program instead of an educational program. This reverses the legal precedent of Plyler v. Doe that all children in the US have a right to education.

      The reclassification allows HHS to restrict children’s access to Head Start programming on the basis of immigration, income, other other statuses, (if the program continues–the administration’s current budget bill also cuts funding).

      Head Start provides early education, family support, health and nutritional services, with a focus on children 0-5 and pregnant women.
    2. Appeals Court erodes Voting Rights Act protections for disabled and ELL voters. The 8th Circuit Court of Appeals held that neither voters nor private organizations can sue under Section 208 of the Voting Rights Act. This statute is supposed to protect the rights of disabled voters, English language learners, and those with other language barriers who need assistance at the polls.

      The ruling says only the Department of Justice can enforce the law, and also upheld an Arkansas law that allows for criminal charges against anyone who helps more than six voters at the polls.
    3. Jobs report and economic indicators paint a grim picture. A dismal July jobs report shows that only 106,000 jobs were added over the past three months, a quarter million fewer than previously reported. These are some of the worst Labor statistics to come out since early pandemic.

      Unhappy with the poor numbers, President Trump then fired the Labor Statistics Chief via a post on Truth Social, prompting concerns about whether any government data can be trusted going forward.

      A new Executive Order announced another round of tariffs on dozens of countries, prompting stock market drops and companies announcing price hikes, including Proctor and Gamble’s 25% raise on diapers, soap, detergent, toothpaste, and more.
    4. Administration launches new health tracking program using private data. Officials are asking Americans to share their private medical and personal health data to be incorporated into a new government tracking system that officials say will “broaden access to health records” and “monitor wellness.”

      More than 60 Big Tech and Healthcare companies, including Google, Apple, Amazon, CVS, United and others have agreed to share data. Medicaid and Medicare data will also be included, on an “opt-in” basis for now.

      This is concerning to all data privacy advocates, especially in the hands of an administration that has openly embraced eugenic policy.
    5. Good news? Senate Appropriations Committee pushes back for 2026. This week, the bipartisan Senate Committee on Appropriations released their Fiscal Year 2026 bill, pushing back on Trump’s Budget, including:

      Provides $116.6 billion increase in discretionary funding for HHS

      $48.7 billion increase for NIH and rejection of the 15% indirect cost cap

      $85 million increase for Childcare Development Block Grant and Head Start. Rejects cuts to SAMHSA programs for substance abuse and mental health programs

      It remains to be seen if the Senate at large will accept the committee’s proposal.

      Action items:
      Share this info! Disability is often lost in mainstream coverage.
      Hit the streets if you are able. It’s past due.

      Protect your neighbors. Warn and record in the presence of ICE. Push your local officials not to collaborate.

      Donate to your local food pantry, library, clinics, cash bail funds, or other mutual aid if you can. Or volunteer your time.

      Encourage your Senator to support the Appropriations Committee’s proposals to push back on budget cuts.

      Make sure you’re up to date on your vaccines. Ditch the wearable tech when possible.

      Consider running for local office or getting involved to support a local candidate through organizing or phone banking–especially progressive primary challengers.

      Think about ways to spread information offline. Make flyers and stickers. Make art.

  • Week 27 Update

    1. Executive Order: Ending Crime and Disorder on America’s Streets. Trump signed an executive order this week telling cities to remove unhoused people from the streets as a way to “reduce crime”. While an EO is not a law, it makes it easier for city officials to remove unhoused people and to involuntarily commit them, because it instructs Attorney General Bondi to reverse other federal and state regulations that previously limited this authority.

      The EO is reminiscent of the Ugly Laws, a series of local laws that prohibited unhoused and disabled people from being in public places that were in place across the US from the turn of the 20th century. The last of those laws wasn’t repealed until the 1970s. A SCOTUS decision okaying the forcible sterilization of disabled people in state custody has never been overturned.
    2. Department of Education releases withheld funds. DoEd had previously been illegally withholding over five billion dollars from K-12 schools. Districts had been expecting the funds on July 1st , and were already depending on them to provide staff and resources for the Fall.

      The funds were largely earmarked for teacher training and before and after school care programs as well as summer programs already in swing. Several states had filed suit to pressure DoEd to release the money.
    3. Deaf Californian kidnapped by ICE. 32-year-old Javier Diaz Santana, a Deaf resident of LA, was detained when an ICE raid came to the car wash where he worked. Though he is a legal resident with a Real ID, agents confiscated his wallet and arrested him anyway.

      Santana is a DACA recipient who came to the US with his family when he was five years old. While in detention, Santana was denied an interpreter and given materials to read and sign in Spanish, a language he doesn’t know. DHS denies these claims and says they provided him with a “communication board.”

      Santana is just another of many disabled people kidnapped by ICE and held in squalid conditions without accommodations or information.
    4. Department of Education watchdog fired. Earlier in the year the Trump administration fired 17 Inspectors General. This month, the administration removed the Inspector in charge of serving as watchdog for the Department of Education.

      The watchdog was demoted and replaced for investigating the illegal withholding of education funds that began on July 1st. Removing oversight that asks questions or critiques (illegal) activity to replace them with party loyalists is a concerning move common to authoritarian governments.
    5. Local: Tennessee school district will no longer accept doctors’ notes for absences. One Tennessee school district has changed their policy for the new school year and will no longer allow excused absences, even with a doctor’s note.

      The district instructs families to send their children to school sick. If the nurse deems them ill enough to go home, they will be marked as “tardy.” Students who miss more than eight days of school per year will be sent to juvenile court.

      This eugenic policy is obviously discriminatory toward disabled and chronically ill children, both those who may be absent from school more than 8 days, and those while will suffer catching increased sickness from ill peers. Disabled and immunocompromised teachers are also at risk. The district has said exceptions may be made for “verified chronic conditions” but did not elaborate.

      Action items: Share this info! Disability is often lost in mainstream coverage.

      Hit the streets if you are able. It’s past due.

      Protect your neighbors. Warn and record in the presence of ICE. Push your local officials not to collaborate.

      Boycott businesses supporting these policies. Donate to your local food pantry, library, clinics, cash bail funds, or other mutual aid if you can. Or volunteer your time.

      Contact your local officials and congresspeople and ask them to protect election integrity.

      Make sure you’re up to date on your vaccines. Ditch the wearable tech.

      Consider running for local office or getting involved to support a local candidate through organizing or phone banking–especially progressive primary challengers.

      Think about ways to spread information offline. Make flyers and stickers. Make art.

  • Week 26 Update

    1. SCOTUS rules on Dept of Ed. case, approving mass layoffs and paving the way for the dismantling of the department. SCOTUS ruled that DoEd’s mass layoffs (or RIFs)–attempted in March but temporarily stopped by a lower court–are allowed to move forward.

      This includes many positions that are required to be filled by law, ex: IDEA, The Education of the Deaf Act. However, SCOTUS has allowed the administration to ignore the law, and opened the door for further layoffs. Only Congress can legally dismantle a department, but the administration is already ignoring the law, and if no one works there, DoEd will not function.

      This is in conjunction with the illegal withholding of previously approved funds from July 1, and the trashing of several thousand civil rights complaints. DoEd employees are now scheduled to leave Aug 1.
    2. George Retes found and released; deaf Mongolian man remains in ICE detention. Retes, a 25 year old disabled US Army veteran was working as a security guard on a farm in Camarillo, CA. Though he is a US citizen, he was kidnapped from his car by ICE, and held for several days.

      A deaf Mongolian man who was attempting to seek asylum following legal protocol continues to be detained for over four months, without due process or a sign language interpreter. ICE agents reportedly attempted to use Google Translate with him, resulting in severe miscommunications on basic facts.

      These disabled men are just two of many kidnapped by ICE and held in squalid conditions without accommodations or information.
    3. Department of Labor to allow subminimum wage to continue. A Department of Labor statute giving businesses “sheltered workshop certifications” has long been a loophole for employers of severely disabled people to pay them less than minimum wage. Half the people employed under this statute are paid less than $3.50 an hour.

      Biden’s Department of Labor had started to repeal the rule, but the Trump administration has rolled back that request.

      The fight for wage equality must include disabled people, who face massive inequities with respect to sheltered workshops, general employment discrimination, disproportionate benefits compared to cost of living and inflation, and loss of benefits when getting married.
    4. Department of Labor to end hiring goal for disabled federal contractors. In 2013, the Obama DoL implemented a rule with a goal of at least employing disabled federal contractors at a rate of at least 7%.

      This was to comply with Section 503 of the Rehabilitation Act, and help combat high rates of unemployment discrimination for disabled people. The program long been considered a successful step in improving wage and employment gaps for disabled workers. About 25% of people in the US have some type of disability, so even 7% is far below population representation.

      The Trump DoL will now repeal the rule, and stop tracking any data on disability within federal contracting.
    5. Insurance costs spike under new GOP budget. The GOP budget passed on July 4th, teeing up Medicaid and Medicare cuts that will harm the quality of life for many disabled people, and are expected to kill over 51,000 people annually from otherwise preventable deaths.

      Those who buy private insurance on the ACA marketplace will also be affected. Biden had previously provided subsidies to help with high payments, but they are now expiring. More than a quarter of providers are planning a rate hike of 20% or more.

      The new law also makes it harder to enroll in health insurance on the marketplace by shortening enrollment window and denying enrollment for those with outstanding balances.
    6. Dept. of Justice makes concerning move toward English-only services and materials. The memo says the department will “lead a coordinated effort to minimize non-essential multilingual services, redirect resources toward English-language education and assimilation, and ensure compliance with legal obligations through targeted measures where necessary.”

      This is a concern for all English language learners. Disabled people and/or signed languages are neither explicitly mentioned or excluded, (except citing case law that said offering disability/ss applications in English only is not a legal violation). It is unclear but concerning how this will impact deaf and hard-of-hearing people and others who use signed languages to communicate.
    7. They’re messing with the elections. The Department of Justice is making an unprecedented demand for sensitive election data. The request include access to voter rolls and in some cases “all records.” This is an abnormal request and it is unclear what the DOJ wants that data for. The requests went mainly to swing states, but others were included, too.

      Meanwhile, Texas is seeking to illegally redistrict to add five congressional seats in projected “red” areas. This is illegal, as new maps are not due to be drawn until 2031.

      Contact your local officials and demand they protect election integrity in your state. Folks both in and outside of Texas can also contact congress to stop the illegal redistricting. Templates are available for residents of any state to use.
    8. Action items: Share this info! Disability is often lost in mainstream coverage.

      Hit the streets if you are able. It’s past due.

      Protect your neighbors. Warn and record in the presence of ICE. Push your local officials not to collaborate.

      Boycott businesses supporting these policies. Donate to your local food pantry, library, clinics, cash bail funds, or other mutual aid if you can. Or volunteer your time.

      Contact your local officials and congresspeople and ask them to protect election integrity. (See above templates).

      Make sure you’re up to date on your vaccines. Ditch the wearable tech.

      Consider running for local office or getting involved to support a local candidate through organizing or phone banking–especially progressive primary challengers.

      Think about ways to spread information offline. Make flyers and stickers. Make art.

  • Week 25 Updates

    1. FEMA ends door to door assistance, leaving elderly and disabled stranded. The Federal Emergency Management Agency (FEMA) has been a target of the Trump administration, with DOGE cutting 20% of its employees and attempting to freeze funds, and Trump repeatedly pushing for disaster response to be a state-level problem.

    Experts say a diminished FEMA and National Weather Service made warning and rescue response times slower, leading to more deaths in disasters like the recent Texas floods, which killed over 120.

    Due to cuts, FEMA has now stopped door-to-door work in disaster zones, focusing instead on shelters only. However, this potentially leaves the elderly, disabled, and those without transportation stranded.

    2. Disabled veteran and US Citizen George Reddis detained by ICE, now missing. The 25 year old disabled US Army veteran was working as a security guard on a farm in Camarillo, CA. (video contains auto-captions)Though he is a US citizen, he was taken by ICE.

    His family saw news footage of the raid in which agents broke his truck window, pepper sprayed him, pulled him from the vehicle and threw him to the ground before arresting him.

    Family haven’t heard from him since the kidnapping, and can’t find where he is being detained. In addition to contacting law enforcement, they are seeking any tips from the public who may have seen where he was taken.

    He’s not the first US citizen kidnapped by ICE, and he won’t be the last.

    3. Concern for disabled immigrant detainees in the face of NQRP, oversight cuts. Funding for the National Qualified Representation program (NQRP), which provides legal aid for immigrants with cognitive disabilities or mental illness was cut in April. Now, as ICE ups indiscriminate arrests, more disabled people are caught in raids with no recourse.

    This comes as Homeland Security has gutted other oversight mechanisms, including the Office of Civil Rights and Civil liberties and the ombudsman within the department.

    Deaths and reports of injury, assault and neglect within ICE facilities have surged in recent weeks.

    More than half of ICE detainees have committed no crimes. Less than 10% have ever been convicted of a violent offense.

    4. SCOTUS ruling paves the way for more governmental restructuring and layoffs. SCOTUS released a ruling related to the layoffs (RIFs) of multiple agencies, paving the way for more authoritarian governance.

    While SCOTUS didn’t comment on the legality of the layoffs specifically, they allowed for restructuring and consolidation of certain powers by the executive branch, which previously required Congressional approval.

    The ruling suggests RIF legality can be decided by lower courts, though it’s unclear how this will mesh with the previous ruling that lower courts can’t issue national injunctions, (except in class-actions).

    This ruling doesn’t affect the Dept. of Ed. which is a separate case currently waiting on the emergency docket.

    5. State Dept lays off 1300+ people. The move comes days after SCOTUS’s previously stated ruling, about the consolidation of power within the executive branch.

    Experts warn that removing diplomatic expertise at a tense time in international relations can have dangerous national security consequences.

    In general, the shrinking of the Department of State’s civil and diplomatic service consolidates power under fewer people, and party loyalists.

    The entire DOS accommodations team was among the layoffs.

    6. HHS blocks access to key services for undocumented immigrants. The Department of Health and Human Services recently reclassified a series of public programs in keeping with Trump’s February Executive Order, an effort to make sure that undocumented immigrants or their families cannot access social services.

    These programs include Community Behavioral Health Clinics and Mental Health Services grants, Mental Health and Substance Abuse Disorder Treatment, the Educational and Training Voucher Program, Family Planning programs, Kinship Guardianship Programming, Transition from Homelessness program, and more.
    It also includes Head Start –which provides early education, health screenings, and food–to young children.

    7. Most people affected by Medicaid cuts don’t know it’s coming. Trump previously said his budget bill wouldn’t cut Medicaid, but deep cuts were passed last week. They don’t go into effect until 2026, and due to local naming conventions, many people don’t even know they will be at risk.
    Here is what Medicaid is called in each state, listed alphabetically by state.

    8. Action items: Share this info! Disability is often lost in mainstream coverage.

    Hit the streets if you are able. It’s past due.

    Protect your neighbors. Warn and record in the presence of ICE. Push your local officials not to collaborate.

    Boycott businesses supporting these policies. Donate to your local food pantry, library, clinics, cash bail funds, or other mutual aid if you can. Or volunteer your time.

    Join Project Mail Storm by writing and sending paper letters to government. More info on our site.

    Make sure you’re up to date on your vaccines. Ditch the wearable tech.

    Consider running for local office or getting involved to support a local candidate through organizing or phone banking–especially progressive primary challengers.

    Think about ways to spread information offline. Make flyers and stickers. Make art.

  • Week 24 Updates

    1. Congress passes harrowing budget ushering in police state. 17 Million Americans to lose healthcare. Approx 7.4 million to lose SNAP (food stamps).

      At least 51,000 additional Americans to die otherwise preventable deaths annually.

      Rural and pediatric hospitals, which rely heavily on Medicaid (and the latter also NIH funding) are in danger of closing.

      ACA and private insurance patients will also pay more.

      Related services in schools, like speech and physical therapy, often bill through Medicaid, and are now in danger, especially in conjunction with DoEd cuts.

      The cuts do not kick in until 2026, to protect GOP from midterm election losses. All but two Reps. voted for the bill.

      The cuts do not lower the national debt. They only give a tax cut to the ultra wealthy, and give more money to ICE.
    2. New budget supercharges ICE capacity for kidnappings, concentration camps. The budget takes money from food, healthcare, and education to give to ICE–the masked “agents” who have been detaining immigrants without warrants or due process.

      The $170 billion makes them the biggest law enforcement agency in the country, with a budget larger than many of the world’s militaries.

      The funds come days after the opening of a new Florida detention camp, as Trump and other GOP lawmakers suggest denaturalizing and detaining citizens. Far-right activist Laura Loomer explicitly called for murder (by alligator mauling) of the entire US Latino population.

      More than half of ICE detainees have committed no crimes. Less than 10% have ever been convicted of a violent offense.
    3. Trump admin. illegally withholding $7 billion in education funds. The money, due to K-12 public schools across the country, was already approved by Congress. It was supposed to be distributed on July 1.

      Schools starting in a few weeks have already factored that money into their budgets, so students and families will be seeing immediate effects.

      Before and after school care, programs for English-language learners, and teacher training will be the hardest hit, though schools will likely be forced to cut from other areas to subsidize the missing money.

      The attempt to withhold or cancel the funds is a violation of the Impoundment Control Act of 1974. It is Congress’s authority to approve and cancel funds.
    4. Action Items. Share this info! Disability is often lost in mainstream coverage.

      Hit the streets if you are able. It’s past due.

      Boycott businesses supporting these policies. Donate to your local food pantry, library, clinics, cash bail funds, or other mutual aid if you can. Or volunteer your time.

      Join Project Mail Storm by writing and sending paper letters to government.

      Make sure you’re up to date on your vaccines. Ditch the wearable tech.

      Protect your neighbors. Warn and record in the presence of ICE. Push your local officials not to collaborate.

      Consider running for local office or getting involved to support a local candidate through organizing or phone banking–especially progressive primary challengers.

      Think about ways to spread information offline. Make flyers and stickers. Make art.

  • Week 23 Updates

    SCOTUS Decision Day:
    ❌ Limited power of federal judges to issue nationwide injunctions, consolidating power under executive branch (limits ability to stop Trump EOs, etc.) Only SCOTUS or class-action suits remain as judicial checks.

    ❌ Opened door to unconstitutional revoking of birthright citizenship. Removal of birthright citizenship in Germany is widely recognized by historians as the country’s transition from democracy to dictatorship in the 1930s.

    ❌ States can restrict Medicaid funding to Planned Parenthood.

    ❌Parents can opt their students out of “exposure” to LGBTQ+ books in public school due to “religious burden” opening door for sweeping book and curriculum bans.

    ❌No DoEd decision. Employees continue to be paid but are not allowed to work.

    ✅ Protected the provision of Obamacare/ACA that keeps preventative care covered by insurance companies at no cost to patients. This includes things like wellness checkups, HIV testing and PrEP, blood pressure medication and other maintenance medications and tests.

    ✅ Upheld the FCC’s Universal Service Fund. The money supports the expansion of telephone and broadband service, especially in rural areas. It also subsidizes internet access at schools, libraries and low-income households.

    2. Senate moves closer to vote on budget bill; McConnell Says of People Losing Medicaid “They’ll Get Over it”. The Senate continues to rework the “big beautiful” budget bill that will gut Medicaid, SNAP and other services to provide tax breaks to the ultra-wealthy. They are expected to vote soon.

    A provision preventing Medicaid from paying for trans folks’ healthcare was removed, (good news, though it can still be added back in on the floor).

    Wheelchair-using protesters were again arrested at the capitol protesting Medicaid cuts.

    McConnell urged his colleagues to go through with the vote, acknowledging that constituents were calling in worried about Medicaid, but that “they’ll get over it.”

    3. Beyond Medicaid Patients: Everyone’s Care at Risk Under New Budget. The Center for American Progress estimates the proposed budget bill will increase cost of health insurance for everyone, including those who buy plans on the marketplace or through work. Depending on family size and age, costs could increase from about $1000 to $15,000 annually.

    Since 49% of American children are on Medicaid, Medicaid funds large swaths of pediatric hospitals. Medicaid cuts mean less money and resources for children’s hospitals, and fewer beds for all (including those with private insurance).

    Medicaid also pays for some related services at public schools like Physical, Occupational, and Speech Therapy. These cuts in addition to DoEd cuts will decimate already underfunded special education programming.

    4. RFK’s new Antivaxx Committee Meets; AAP says they’ll Ignore any changes: The CDC’s vaccine advisory committee, recently repopulated by antivaxxers and COVID-deniers, has begun meeting to plan new recommendations for vaccine schedules and availability. This is important because it will affect whether offices and pharmacies receive, and insurance companies will cover, vaccines even if people ask for them.

    The American Association of Pediatrics released a statement that they will continue to recommend the evidence-based childhood vaccine schedule independent of any of RFK’s new recommendations. Advocates hope the AAP’s stance will pressure insurance companies into continuing vaccine coverage.

    5. Deaf Man in ICE Prison for Over 80 Days without due process, interpreter: Family of a Deaf Mongolian man say he has been held in an ICE detention center for over 80 days without access to due process, or anyone who knows Mongolian Sign Language.

    The man, who committed no crime, had entered the country and immediately turned himself in to Border Patrol so he could ask for asylum. He brought with him a written letter detailing the reasons why he feared for his life and return to Mongolia, but agents refused to look at it.

    He was denied the “credible fear screening” used to determine whether one has a case for asylum, and all other due process procedures.

    6. 911 Calls from ICE Detention flood in, but many are ignored.
    A report from WIRED analyzed the content of hundreds of calls from inside ICE centers from both workers and prisoners detailing a variety of horrors, including sexual assault, medical neglect, pregnancy complications, mental health crises, and deaths by suicide.

    People previously detained in ICE centers have spoken of being denied access to medication for chronic health conditions, a situation worsened by overcrowding, understaffing, inadequate staff training and accountability, and a general culture of cruelty surrounding the detentions.

    7. Several states turn over medical data to DHS; RFK proposes more surveillance via wearables. Several states who provide healthcare coverage to noncitizens recently turned over their Medicaid data to the Department of Homeland Security, including California, Washington, Illinois and DC.

    The data surrender is an invasion of privacy and concerning in the hands of RFK’s HHS, who have vowed to create a “registry” of autistic people.

    Advocates are also concerned this will prevent immigrants from seeking healthcare or early intervention services.

    RFK praised health surveillance on Americans, saying he wanted everyone in the country to be using a wearable within four years.

    Action items:
    at to Do: Share this info! Disability is often lost in mainstream coverage.

    Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.

    Calling is also important if you buy your own health insurance or get it through work. This bill affects your premiums and access to hospitals, too.

    Join Project Mail Storm by writing and sending paper letters to representatives and the White House. Each is required to be opened and logged.

    Make sure you’re up to date on your vaccines. Ditch the wearable tech.

    Protect your neighbors.

    Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers and stickers. Warn (and record) in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Week 22 Updates

    1. SCOTUS Upholds Ban on Gender-Affirming Care for Trans Minors. SCOTUS ruled 6-3 that states can ban trans minors from receiving gender-affirming care. Gender-affirming care can include psychological support, reversible puberty blockers, and hormone replacement therapy. In all but rare cases, surgery is not available to patients under 18. Less than 900 total surgeries on minors were performed in the US over a 3-year-period.

    In addition to being in opposition to scientific consensus and harming the mental and physical well-being of trans kids, the ruling also takes away doctor-parent autonomy in choosing what is in the best medical interest of the minor, opening the door for government control over what kinds of medicine and care everyone can access.

    2. Described and Captioned Media Program Funding Cut. The Described and Captioned Media Program (DCMP), previously funded through DoED, was “the only free, national source of accessible educational videos for both deaf and blind, and deafblind students.” Videos with captions, ASL interpretation, and descriptive audio made a variety of educational material available for free for families and teachers.

    Due to DoEd’s funding cuts and the transition to block grant funding, states receiving money with no strings attached can to use it for accessible media…or not.

    The DCMP grant, issued through OSERS, was also a main source of income for the National Association for the Deaf (NAD).

    3. Department of Education Employees in Limbo Awaiting SCOTUS. Thousands of DoED employees await a ruling from SCOTUS’s emergency “shadow docket” process about whether their illegal firings will be overturned.

    Possible outcomes:
    SCOTUS could decide not to take the case; employees return to work.
    SCOTUS takes the case but goes on vacation 1 July, leaving things undecided until at least September.
    SCOTUS issues an official decision in either direction.
    SCOTUS consolidates the DoED case with cases of other federal agencies (unlikely, as DoED case also addresses the legality of Trump’s Executive Order about the department).

    Meanwhile, the administration seeks to continue its backdoor dismantling of federal agencies through OMB without Congressional “interference.”

    4. Department of Energy Opens New Attack on Section 504. Over the past several weeks, the Department of Energy has been working to weaken Section 504, a statute that protects disabled people’s right to enter and be accommodated in any spaces that receive federal funding, including government buildings, public schools, hospitals that accept Medicaid, and more.

    The change seeks to allow various entities to decide whether or not they want to include accessibility and accommodations for disabled people in their updates based on whether they are “efficient.”

    Public comment on this change recently closed, but you can still contact your representatives to voice your concerns about DoE and other attempts to attack 504 and ADA protections.

    5.  Trump’s EPA Considers Bringing Back Asbestos: The Biden Administration had previously banned the final type of asbestos used in the US. The current EPA has now taken that policy “under review.”

    Asbestos is a carcinogen that killed millions of Americans due to a rare and aggressive cancer called mesothelioma, though it has been linked to other cancers of the abdomen, ovaries, and larynx.

    The EPA under Trump has also sought to roll back other protections, like limits on coal emissions and toxic “forever chemicals” in drinking water, even as other parts of the administration tout a goal to make the nation “healthy again.

    6. Hickson vs St. David’s Healthcare Partnership Threatens ADA/504 in Healthcare Settings. Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.

    The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.

    7. Good News: Federal Judge Rules Some NIH Grant Terminations “Void and Illegal.” On Monday, a Federal Judge ruled in a pair of cases that the administration’s termination of NIH grants was both discriminatory and had “no force or effect.”

    Most of the grants covered in the suits were terminated due to mention of LGBTQ+ populations, either directly or indirectly.

    While the ruling only reinstates grants specifically named in the suits, it opens the door for more organizations to seek reinstatement of funding through the courts.

    Keep pressure on your electeds to let them know you are watching, that the administration complies with the court’s rulings.

    Action Items
    Share this info! Disability is often lost in mainstream coverage.

    Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.

    Join Operation Mail Storm by writing and sending paper letters to representatives and the White House. Each is required to be opened and logged.

    If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, who are fighting various legal challenges, and ADAPT who routinely put their bodies on the line in activist work.

    Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors (and record) in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Week 21 Update

    1. Department of Energy leads new attack on Section 504 Over the past several weeks, the Department of Energy has been working to weaken Section 504, a statute that protects disabled people’s right to enter and be accommodated in any spaces that receive federal funding, including government buildings, public schools, hospitals that accept Medicaid, and more.

    The change seeks to allow various entities to decide whether or not they want to include accessibility and accommodations for disabled people based on whether they are “efficient.”
    The language is vague about the breadth of spaces that would be affected or what precedent it would set for 504/ADA enforcement.
    Public comment is open until June 16. Templates are available at the link above.

    2. Hospitals Warn Medicaid Cuts Will Devastate Rural Facilities Republicans continue to work on a budget bill that seeks to cut $785 billion from Medicaid programs across the next decade.
    Rural doctors and hospitals, especially in GOP-leaning populations in the middle of the country, will be disproportionally affected, as those populations tend to rely more heavily on Medicaid programs.

    This, alongside recent private equity takeovers of hospitals to flip them for profit, is creating healthcare deserts, where people may face extremely long wait times and/or travel for hours to reach emergency care.

    3. RFK Jr. Dismisses Entire Sitting Panel of CDC Vaccine Panel
    RFK Jr. dismissed the entirety of the CDC’s vaccine advisory panel, which previously had 17 members.

    Later in the week he announced 8 people to serve as their replacements. At least two have been very vocal against COVID mitigation measures, like masking, as well as vaccines.
    It is another of RFK’s many attacks on vaccine science since taking power at HHS, coinciding with the large sums of money he receives from antivax lobbyists.

    Healthcare providers and advocates are concerned that changes to vaccine recommendations will affect access, especially since health insurance companies use the panels to make decisions on what they will pay for.

    4. Antivax and Ableist Approaches to Autism Allow Conspiracy Cures to Gain Traction, Poison Children. The platforming of vaccine and autism-focused misinformation, and the removal of some misinformation safeguards by Google/YouTube, has led to an uptick in dangerous health conspiracies and grifts.

    One such group is the “bleach community” who attempts to “cure” autistic children by forcing them to ingest bleach.

    Poisoning children with bleach doesn’t make them less autistic. However, it can cause seizures, internal chemical burns, vomiting blood, and death. Platforming and both sides-ing nonscience has consequences.

    5. ASHA Moves to End DEI and Cultural Competency Certification Standards ASHA announced this week that they seek to strike language like “cultural humility; diversity, equity and inclusion; culturally and linguistically diverse; cultural responsiveness; equity in care”

    They claim funding concerns due to federal mandates, but they are privately funded by member dues

    ASHA is already a contentious organization. For SLPs and Audiologists, forgoing a supposedly “voluntary” membership can affect licensure in some states. Patients have been harmed by a long history of ableism, including shutting out D/HH and signing professionals, and indecision on dXs like CAPD leaving patients without care (due to no billable insurance codes)

    6. Good News: SCOTUS Ruling Makes ADA Complaints Easier in School Settings The unanimous ruling in AJT vs. Osseo Area Schools reifies the ADA is enforceable in public schools, and that students and families do not have to prove “bad faith” or “gross negligence” in order to file a complaint.

    Instead, schools will be held to the same legal standard as in other ADA-related cases: “deliberate indifference.” This is a big win for disability rights advocacy, especially in a time when legal oversight for IDEA, the law governing special education, is nearly eradicated by DoEd layoffs.

    DOJ oversight will be critical for enforcement of this new ruling, concerning as that department has already sought to weaken ADA guidance in recent weeks.

    7. Good News: Florida will Teach Disability History in K-12 Schools A new law in Florida mandates that the first two weeks in October will include curriculum on disability awareness and history.

    How the law will be implemented and the curriculum developed are still in their early stages.

    Some FL advocates have expressed concerns about the vague language of the law, as well as the way it siloes studies of specific disabilities into different grade levels; however, most generally agree it is a good first step in a state that is often hostile toward diversifying curricula.

    8. Hickson vs. St David’s Healthcare Partnership threatens ADA/504 in healthcare settings     Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.

    The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.

    Action Items:
    Share this info! Disability is often lost in mainstream coverage.

    Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.

    Leave a comment with the Dept. Of Energy speaking against their proposed changes to 504 enforcement. Templates available here.

    If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting various legal challenges, and ADAPT who routinely put their bodies on the line in activist work.

    Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.