Disability Rights Watch

Author: Disability Rights Watch

  • Week 23 Updates

    SCOTUS Decision Day:
    ❌ Limited power of federal judges to issue nationwide injunctions, consolidating power under executive branch (limits ability to stop Trump EOs, etc.) Only SCOTUS or class-action suits remain as judicial checks.

    ❌ Opened door to unconstitutional revoking of birthright citizenship. Removal of birthright citizenship in Germany is widely recognized by historians as the country’s transition from democracy to dictatorship in the 1930s.

    ❌ States can restrict Medicaid funding to Planned Parenthood.

    ❌Parents can opt their students out of “exposure” to LGBTQ+ books in public school due to “religious burden” opening door for sweeping book and curriculum bans.

    ❌No DoEd decision. Employees continue to be paid but are not allowed to work.

    ✅ Protected the provision of Obamacare/ACA that keeps preventative care covered by insurance companies at no cost to patients. This includes things like wellness checkups, HIV testing and PrEP, blood pressure medication and other maintenance medications and tests.

    ✅ Upheld the FCC’s Universal Service Fund. The money supports the expansion of telephone and broadband service, especially in rural areas. It also subsidizes internet access at schools, libraries and low-income households.

    2. Senate moves closer to vote on budget bill; McConnell Says of People Losing Medicaid “They’ll Get Over it”. The Senate continues to rework the “big beautiful” budget bill that will gut Medicaid, SNAP and other services to provide tax breaks to the ultra-wealthy. They are expected to vote soon.

    A provision preventing Medicaid from paying for trans folks’ healthcare was removed, (good news, though it can still be added back in on the floor).

    Wheelchair-using protesters were again arrested at the capitol protesting Medicaid cuts.

    McConnell urged his colleagues to go through with the vote, acknowledging that constituents were calling in worried about Medicaid, but that “they’ll get over it.”

    3. Beyond Medicaid Patients: Everyone’s Care at Risk Under New Budget. The Center for American Progress estimates the proposed budget bill will increase cost of health insurance for everyone, including those who buy plans on the marketplace or through work. Depending on family size and age, costs could increase from about $1000 to $15,000 annually.

    Since 49% of American children are on Medicaid, Medicaid funds large swaths of pediatric hospitals. Medicaid cuts mean less money and resources for children’s hospitals, and fewer beds for all (including those with private insurance).

    Medicaid also pays for some related services at public schools like Physical, Occupational, and Speech Therapy. These cuts in addition to DoEd cuts will decimate already underfunded special education programming.

    4. RFK’s new Antivaxx Committee Meets; AAP says they’ll Ignore any changes: The CDC’s vaccine advisory committee, recently repopulated by antivaxxers and COVID-deniers, has begun meeting to plan new recommendations for vaccine schedules and availability. This is important because it will affect whether offices and pharmacies receive, and insurance companies will cover, vaccines even if people ask for them.

    The American Association of Pediatrics released a statement that they will continue to recommend the evidence-based childhood vaccine schedule independent of any of RFK’s new recommendations. Advocates hope the AAP’s stance will pressure insurance companies into continuing vaccine coverage.

    5. Deaf Man in ICE Prison for Over 80 Days without due process, interpreter: Family of a Deaf Mongolian man say he has been held in an ICE detention center for over 80 days without access to due process, or anyone who knows Mongolian Sign Language.

    The man, who committed no crime, had entered the country and immediately turned himself in to Border Patrol so he could ask for asylum. He brought with him a written letter detailing the reasons why he feared for his life and return to Mongolia, but agents refused to look at it.

    He was denied the “credible fear screening” used to determine whether one has a case for asylum, and all other due process procedures.

    6. 911 Calls from ICE Detention flood in, but many are ignored.
    A report from WIRED analyzed the content of hundreds of calls from inside ICE centers from both workers and prisoners detailing a variety of horrors, including sexual assault, medical neglect, pregnancy complications, mental health crises, and deaths by suicide.

    People previously detained in ICE centers have spoken of being denied access to medication for chronic health conditions, a situation worsened by overcrowding, understaffing, inadequate staff training and accountability, and a general culture of cruelty surrounding the detentions.

    7. Several states turn over medical data to DHS; RFK proposes more surveillance via wearables. Several states who provide healthcare coverage to noncitizens recently turned over their Medicaid data to the Department of Homeland Security, including California, Washington, Illinois and DC.

    The data surrender is an invasion of privacy and concerning in the hands of RFK’s HHS, who have vowed to create a “registry” of autistic people.

    Advocates are also concerned this will prevent immigrants from seeking healthcare or early intervention services.

    RFK praised health surveillance on Americans, saying he wanted everyone in the country to be using a wearable within four years.

    Action items:
    at to Do: Share this info! Disability is often lost in mainstream coverage.

    Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.

    Calling is also important if you buy your own health insurance or get it through work. This bill affects your premiums and access to hospitals, too.

    Join Project Mail Storm by writing and sending paper letters to representatives and the White House. Each is required to be opened and logged.

    Make sure you’re up to date on your vaccines. Ditch the wearable tech.

    Protect your neighbors.

    Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers and stickers. Warn (and record) in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Week 22 Updates

    1. SCOTUS Upholds Ban on Gender-Affirming Care for Trans Minors. SCOTUS ruled 6-3 that states can ban trans minors from receiving gender-affirming care. Gender-affirming care can include psychological support, reversible puberty blockers, and hormone replacement therapy. In all but rare cases, surgery is not available to patients under 18. Less than 900 total surgeries on minors were performed in the US over a 3-year-period.

    In addition to being in opposition to scientific consensus and harming the mental and physical well-being of trans kids, the ruling also takes away doctor-parent autonomy in choosing what is in the best medical interest of the minor, opening the door for government control over what kinds of medicine and care everyone can access.

    2. Described and Captioned Media Program Funding Cut. The Described and Captioned Media Program (DCMP), previously funded through DoED, was “the only free, national source of accessible educational videos for both deaf and blind, and deafblind students.” Videos with captions, ASL interpretation, and descriptive audio made a variety of educational material available for free for families and teachers.

    Due to DoEd’s funding cuts and the transition to block grant funding, states receiving money with no strings attached can to use it for accessible media…or not.

    The DCMP grant, issued through OSERS, was also a main source of income for the National Association for the Deaf (NAD).

    3. Department of Education Employees in Limbo Awaiting SCOTUS. Thousands of DoED employees await a ruling from SCOTUS’s emergency “shadow docket” process about whether their illegal firings will be overturned.

    Possible outcomes:
    SCOTUS could decide not to take the case; employees return to work.
    SCOTUS takes the case but goes on vacation 1 July, leaving things undecided until at least September.
    SCOTUS issues an official decision in either direction.
    SCOTUS consolidates the DoED case with cases of other federal agencies (unlikely, as DoED case also addresses the legality of Trump’s Executive Order about the department).

    Meanwhile, the administration seeks to continue its backdoor dismantling of federal agencies through OMB without Congressional “interference.”

    4. Department of Energy Opens New Attack on Section 504. Over the past several weeks, the Department of Energy has been working to weaken Section 504, a statute that protects disabled people’s right to enter and be accommodated in any spaces that receive federal funding, including government buildings, public schools, hospitals that accept Medicaid, and more.

    The change seeks to allow various entities to decide whether or not they want to include accessibility and accommodations for disabled people in their updates based on whether they are “efficient.”

    Public comment on this change recently closed, but you can still contact your representatives to voice your concerns about DoE and other attempts to attack 504 and ADA protections.

    5.  Trump’s EPA Considers Bringing Back Asbestos: The Biden Administration had previously banned the final type of asbestos used in the US. The current EPA has now taken that policy “under review.”

    Asbestos is a carcinogen that killed millions of Americans due to a rare and aggressive cancer called mesothelioma, though it has been linked to other cancers of the abdomen, ovaries, and larynx.

    The EPA under Trump has also sought to roll back other protections, like limits on coal emissions and toxic “forever chemicals” in drinking water, even as other parts of the administration tout a goal to make the nation “healthy again.

    6. Hickson vs St. David’s Healthcare Partnership Threatens ADA/504 in Healthcare Settings. Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.

    The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.

    7. Good News: Federal Judge Rules Some NIH Grant Terminations “Void and Illegal.” On Monday, a Federal Judge ruled in a pair of cases that the administration’s termination of NIH grants was both discriminatory and had “no force or effect.”

    Most of the grants covered in the suits were terminated due to mention of LGBTQ+ populations, either directly or indirectly.

    While the ruling only reinstates grants specifically named in the suits, it opens the door for more organizations to seek reinstatement of funding through the courts.

    Keep pressure on your electeds to let them know you are watching, that the administration complies with the court’s rulings.

    Action Items
    Share this info! Disability is often lost in mainstream coverage.

    Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.

    Join Operation Mail Storm by writing and sending paper letters to representatives and the White House. Each is required to be opened and logged.

    If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, who are fighting various legal challenges, and ADAPT who routinely put their bodies on the line in activist work.

    Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors (and record) in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Week 21 Update

    1. Department of Energy leads new attack on Section 504 Over the past several weeks, the Department of Energy has been working to weaken Section 504, a statute that protects disabled people’s right to enter and be accommodated in any spaces that receive federal funding, including government buildings, public schools, hospitals that accept Medicaid, and more.

    The change seeks to allow various entities to decide whether or not they want to include accessibility and accommodations for disabled people based on whether they are “efficient.”
    The language is vague about the breadth of spaces that would be affected or what precedent it would set for 504/ADA enforcement.
    Public comment is open until June 16. Templates are available at the link above.

    2. Hospitals Warn Medicaid Cuts Will Devastate Rural Facilities Republicans continue to work on a budget bill that seeks to cut $785 billion from Medicaid programs across the next decade.
    Rural doctors and hospitals, especially in GOP-leaning populations in the middle of the country, will be disproportionally affected, as those populations tend to rely more heavily on Medicaid programs.

    This, alongside recent private equity takeovers of hospitals to flip them for profit, is creating healthcare deserts, where people may face extremely long wait times and/or travel for hours to reach emergency care.

    3. RFK Jr. Dismisses Entire Sitting Panel of CDC Vaccine Panel
    RFK Jr. dismissed the entirety of the CDC’s vaccine advisory panel, which previously had 17 members.

    Later in the week he announced 8 people to serve as their replacements. At least two have been very vocal against COVID mitigation measures, like masking, as well as vaccines.
    It is another of RFK’s many attacks on vaccine science since taking power at HHS, coinciding with the large sums of money he receives from antivax lobbyists.

    Healthcare providers and advocates are concerned that changes to vaccine recommendations will affect access, especially since health insurance companies use the panels to make decisions on what they will pay for.

    4. Antivax and Ableist Approaches to Autism Allow Conspiracy Cures to Gain Traction, Poison Children. The platforming of vaccine and autism-focused misinformation, and the removal of some misinformation safeguards by Google/YouTube, has led to an uptick in dangerous health conspiracies and grifts.

    One such group is the “bleach community” who attempts to “cure” autistic children by forcing them to ingest bleach.

    Poisoning children with bleach doesn’t make them less autistic. However, it can cause seizures, internal chemical burns, vomiting blood, and death. Platforming and both sides-ing nonscience has consequences.

    5. ASHA Moves to End DEI and Cultural Competency Certification Standards ASHA announced this week that they seek to strike language like “cultural humility; diversity, equity and inclusion; culturally and linguistically diverse; cultural responsiveness; equity in care”

    They claim funding concerns due to federal mandates, but they are privately funded by member dues

    ASHA is already a contentious organization. For SLPs and Audiologists, forgoing a supposedly “voluntary” membership can affect licensure in some states. Patients have been harmed by a long history of ableism, including shutting out D/HH and signing professionals, and indecision on dXs like CAPD leaving patients without care (due to no billable insurance codes)

    6. Good News: SCOTUS Ruling Makes ADA Complaints Easier in School Settings The unanimous ruling in AJT vs. Osseo Area Schools reifies the ADA is enforceable in public schools, and that students and families do not have to prove “bad faith” or “gross negligence” in order to file a complaint.

    Instead, schools will be held to the same legal standard as in other ADA-related cases: “deliberate indifference.” This is a big win for disability rights advocacy, especially in a time when legal oversight for IDEA, the law governing special education, is nearly eradicated by DoEd layoffs.

    DOJ oversight will be critical for enforcement of this new ruling, concerning as that department has already sought to weaken ADA guidance in recent weeks.

    7. Good News: Florida will Teach Disability History in K-12 Schools A new law in Florida mandates that the first two weeks in October will include curriculum on disability awareness and history.

    How the law will be implemented and the curriculum developed are still in their early stages.

    Some FL advocates have expressed concerns about the vague language of the law, as well as the way it siloes studies of specific disabilities into different grade levels; however, most generally agree it is a good first step in a state that is often hostile toward diversifying curricula.

    8. Hickson vs. St David’s Healthcare Partnership threatens ADA/504 in healthcare settings     Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.

    The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.

    Action Items:
    Share this info! Disability is often lost in mainstream coverage.

    Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.

    Leave a comment with the Dept. Of Energy speaking against their proposed changes to 504 enforcement. Templates available here.

    If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting various legal challenges, and ADAPT who routinely put their bodies on the line in activist work.

    Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Week 20 Updates

    1. WH loses appeal on Dept of Ed layoffs: A federal district court had previously barred the Department of Education from going through with the layoffs of about half its staff.

    Secretary of the department former WWE exec Linda McMahon testified before Congress that they had done no studies or analysis about how the layoffs would affect students, teachers, or educational infrastructure overall before acting.

    The administration appealed to the 1st US Circuit Court of Appeals in Boston to lift the injunction, but the appeal was rejected. They can now choose to comply or take the matter before the Supreme Court. The latter would be a lengthy process likely hobbling many programs in the meantime, especially in special education.

    2. UPenn-Yale research estimates 51,000 deaths annually from proposed Medicaid/ACA cuts: The research estimated the passage of Trump’s “big beautiful bill” would result in the following deaths:

    • Ending Medicare Savings Program for subsidized prescriptions– 18,200 annual deaths
    • Removal of Medicaid/care Services nursing home staffing rules–13,000 annual deaths
    • 7.7 million people losing coverage via Medicaid and ACA–11,300 deaths
    • Failure to extend Affordable Care Act enhanced tax credits–8,811 deaths

    3. Group of disabled activists, clergy arrested at capitol protesting Medicaid cuts: A group of activists made up of clergy and disabled organizers were arrested in at the Capitol on Tuesday after protesting Medicaid cuts. A group of 26 disabled protesters was previously arrested in May for disrupting hearings.

    An estimated 14 million people would lose coverage under the proposed cuts. For disabled people, Medicaid provides access to healthcare and the ability to live independently or in-community, rather than institutions and nursing homes.

    4. Senator Joni Ernst triples down on eugenic “jokes” about Medicaid: In response to a comment at a town hall from a constituent who was concerned that people will die from proposed Medicaid and SNAP cuts, Senator Ernst of Iowa smirked and said, “well, we’re all going to die.”

    She later made a joke apology video in a cemetery, gaslighting concerned voters by reminding them that technically all humans are mortal, then somewhat inexplicably compared valuing human life to belief in the tooth fairy, followed by a suggestion that people to convert to Christianity.

    Ernst was later seen on Twitter saying that instead of “whining” about Medicaid, folks should “get a multivitamin and a job.”

    5. US Government begins building database on all US residents: Trump signed an order making the combining of data across agencies possible in March,; the NYT reported this week that the tech company Palantir’s AI mechanisms are working on the task.

    Palantir is owned by billionaire Peter Thiel, who in 2009 called women’s right to vote “a blow to democracy,” and in 2023 said, “I no longer believe democracy and freedom are compatible.” He was a also major donor to JD Vance.

    A database compiling detailed files on civilians has disturbing implications for all people, especially activists, immigrants, and disabled people already targeted by RFK’s tracking attempts.

    6. Schools for the deaf and disabled under threat as states brace for proposed DoEd cuts. Bracing for a federal budget that eliminates nearly $300 billion in education funding, some states are taking advantage of their expected freedom under the block grant system and cutting special education budgets.

    Internal sources at deaf schools in NJ, Delaware, Indiana and California have warned of staff and budget cuts for the coming year.

    Missouri’s state budget also proposed the closure of 12 schools for disabled children with high support needs.

    Lack of DoED oversight and block grant distribution allows states to take money from special ed with no consequences.

    7. Hickson vs. St David’s Healthcare Partnership poses threat to ADA/504: Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.

    The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.

    Action Items:

    Share this info! Disability is often lost in mainstream coverage.

    Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.

    Call your state rep. and tell them to include schools for deaf and disabled children in their budgets, especially if you live in CA, DE, NJ, MO, or IN.
    Call your House rep. and tell them to take a stand on government information overreach with Palantir’s project and other “registry” proposals.

    If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting various legal challenges, and ADAPT who routinely put their bodies on the line in activist work.

    Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

    Bonus Action:

    The Department of Energy is currently rolling back ADA/504 protections by allowing entities to choose whether or not to provide accommodations based on “efficiency”. As written, it’s unclear what kinds of buildings will be affected, but the vague nature of the rollback is also part of the danger. Check out DREDF’s explainer and templates here.

  • Week 19 Updates

    1. The Dept of Education’s proposed 2026 budget released. The proposed DoEd budget was released this week, confirming a shift from IDEA formula grants (calculated by state need, with specific requirements to be used for special ed.) to block grant format. States would no longer be required to use the money for special ed.

      Proposed program cuts for 2026: Preschool grants, State Personnel Development, Technical Assistance teams, SpEd. Personnel Preparation Program, Parent Information Centers, Educational Technology Media and Materials program, Client Assistant State Grants, several training and Supported Employment state grant programs, the Protection and Advocacy of Individual Rights, Adult Education State grants. These are only the special ed programs cut. Many more have also been defunded.

      Bright spots: Funding for the Special Olympics, as well as the American Printing House for the Blind, NTID, Gallaudet University, Helen Keller National Center for DeafBlind, and Independent Living Services for Older Blind Individuals has been slated at the same rate for 2026. This is good news, and a departure from stated plans in Project 2025, which proposed defunding these programs.

      The budget also proposes slight increases in funding to both the overall special education and Vocational Rehabilitation budgets. However, these increases will not be enough to offset the programs in and outside of special ed. departments that have been defunded.

      The full DoED 2026 budget proposal is available here.
    2. HHS Budget Proposal Released: The proposed HHS budget continues ahead with plans for deep cuts across the department, especially in the NIH, CDC and Administration for Children Families and Communities. HHS department cuts sought total over $32 billion.

      Specific to the disability community, the ACL’s University Centers for Excellence in Developmental Disabilities, Chronic Disease Self-Management Education, Limb Loss and Paralysis Resource Centers, Voting Access for People with Disabilities, and the White House Conference on Aging are all proposed cuts.

      Bright spots: The new proposal walks back some of the proposed Administration for Community Living (ACL) eliminations. These programs remain funded in the current proposal: Councils on Developmental Disabilities, Protection and Advocacy systems, the Long-term care ombudsman program, National Institute on Disability Independent Living and Rehabilitative Research (NIDILRR), Lifespan Respite Care Program, and State Health Insurance Program (SHIP), among others.

      Instead of splitting the ACL’s programs across three different agencies as originally be proposed, the programs will move to the Administration for Children, Families and Communities. (This is good news, but remember deep budget cuts to the ACFC are also proposed)

      The Dept of Health and Human Services proposed 2026 budget is available in full here.
    3. MAHA Commission Report Cites Sources that Don’t exist: Last week, the commission released a report declaring a childhood “chronic disease crisis” in the US, identifying poor diet, chemicals, chronic stress, lack of physical activity, and “overmedicalization” as driving causes. The report also questioned vaccine safety.

      In the days since, it’s become clear that many of the sources cited do not exist.

      In addition to making the Commission’s work untrustworthy due to lack of peer-reviewed evidence, fake sources are hallmark of AI chatbots like ChatGPT, who “hallucinate” sources by putting words and names together that sound true, but aren’t real.
    4. CDC Defies RFK, Keeping covid vaccinations on childhood schedule: Last week, The FDA announced a plan to limit access to COVID boosters, restricting them to people over 65 or with underlying health conditions only. RFK also asked specifically that covid vaccines be left off the childhood vaccine schedule. Considering RFK Jr’s profitable ties to antivax organizations, many see this as the first step in limiting overall access to vaccines.

      This week, the CDC went against RFK’s statement, releasing its vaccine schedule including recommendations for covid vaccination for all children.
    5. Deaf schools under threat as state budgets compensate for DoEd cuts: Bracing for a federal budget that eliminates nearly $300 billion in education funding, some states are taking advantage of their expected freedom under the block grant system and cutting deaf school budgets.

      The New Jersey School for the Deaf (MKSD) saw their residential program completely removed from the governor’s proposed 2026 budget.

      Indiana School for the Deaf and California School for the Deaf–Fremont are also experiencing budgetary issues. Indiana seeks to reallocate money previously for ISD toward general public education, while CSD Fremont struggles to maintain appropriate funding for cost-of-living in a gentrified Silicon Valley area.
    6. NAD Sues White House to return ASL interpreters to press briefings: In keeping with eugenic rhetoric, various GOP influencers have shown particular hostility toward ASL interpreters in recent months, ever since Charlie Kirk and Chris Rufo attacked their existence at emergency briefings for the LA Fires, with Rufo calling them “wild human gesticulators”.

      Upon taking office, the Trump administration quickly removed the WH accessibility page and all ASL content, and fired the WH ASL interpreter, as part of other “anti-DEIA” initiatives.

      The NAD is now suing for the return of an interpreter to WH press briefings. The organization filed and won a similar suit during Trump 1.0, in order to access the emergency covid-related briefings.
    7. Musk out, Project 2025 Writer up: Elon Musk made an exit from the White House this week after a tanking Tesla stock, reports of heavy illegal drug use, and economic models showing that tens of thousands of people, most of them children, have been killed by his pet project–the illegal closure of USAID. Most of the deaths have resulted from malnutrition and lack of oral-rehydration medication for patients with diarrhea, two program areas hit quickest by the loss of funds.

      Russel Vought, a self-proclaimed “Christian Nationalist” and head writer for Project 2025, is poised to take over Musk’s work. It’s likely that he’ll be less flashy, and more effective, than Elon in the position.
    8. Hickson v. St. David’s Healthcare Partnership poses new threat to ADA/504: Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.

      The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.

      Action items:
      Share this info! Disability is often lost in mainstream coverage.

      Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.

      Call your state representative and tell them to include deaf schools in their budgets. You can text NJ Governor Phil Murphy at 732-605-5455

      If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting various legal challenges.

      Contact medical providers requesting they do not share yours or your child’s autism diagnosis or records with the government registry. Letter template available here.

      Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Week 18 Updates

    Week 18 Updates

    1. House passes budget bill containing deep cuts to Medicaid, SNAP, Dept. of Ed. 215 Republican Representatives voted for Trump’s “Big Beautiful Bill,” advancing plans to cut Medicaid/care, SNAP, HUD and education funding in order to up DHS spending and extend tax breaks to the ultra-wealthy.

      Medicaid: adds work requirements, increases “eligibility checks,” and cuts funds.

      SNAP: Raises age so recipients up to 64 must meet work requirements, cuts funds.

      DoED: cuts funds and shifts them to block grant format. Exact appropriations numbers for DoEd and others are not expected to be available until July (per internal sources).

      The bill heads to the Senate, where it needs 51 votes to pass. Some GOP Senators have said they won’t vote for Medicaid cuts, while others seek even deeper cuts. A failed vote will send the bill back to the House.
    2. Budget bans gender-affirming healthcare for people on Medicaid. As part of the budget bill, the House added a provision banning gender-affirming care for those using Medicaid programs. Originally the ban had only been for minors, but has now been extended to all ages.

      The ban also extends to plans sold on the marketplace under the Affordable Care Act (ACA). This is likely to face legal challenges as many states have already prohibited plans from refusing care to trans people.

      Studies estimate that about 1 in 4 trans people rely on Medicaid coverage. Nearly half of trans people also have a disability(1 , 2).
    3. Dept. of Ed updates: On Thursday, a MA judge blocked Trump’s attempt to close DoED, including the executive order to McMahon to facilitate the department’s closure, and the mass firings conducted in March.

      The judge ordered that those employees be reinstated, and underscored that closing DoEd would require an act of Congress. The administration has already filed an appeal.

      This is good news, but the budget bill still contains massive funding cuts, shifting remaining dollars to voucher programs and block grants that have no enforcement mechanisms. States can use funds previously for specific programs like IDEA for whatever they want, leaving students with IEP/504s at the whim of districts. If IEPS are not followed, its unknown who, if anyone, families can turn to for support.
    4. MAHA commission report skews focus, targets vaccines. RFK Jr’s MAHA commission released a report on what it called the childhood “chronic disease crisis” in the US, identifying poor diet, environmental chemicals, chronic stress, lack of physical activity, and “overmedicalization” as driving causes. The report also questions vaccine safety.

      The report does not address socio-economic factors that may contribute to children’s health, like poverty, or firearm or motor vehicle related deaths. Injury-related deaths account for 60% of deaths for children under 18.

      The commission is supposed to present a strategy for addressing childhood disease in August. However critics say budget and personnel cuts at HHS undermine the commission’s ability to meaningfully implement a plan, or even track data.
    5. FDA Seeks to restrict access to covid vaccines: The FDA announced a plan to limit access to COVID boosters, reversing previous policy. If implemented, COVID vaccines would be restricted to people over 65 or with underlying health conditions only.

      The FDA said manufacturers of COVID boosters seeking broader distribution to younger people would need to fund and conduct placebo-controlled trials, a lengthy process that would render each version of the vaccine useless given the rate of mutation.

      Considering RFK Jr’s profitable ties to antivax organizations, many see this as the first step in limiting overall access to vaccines.
    6. Texas vs Kennedy updates: Thanks in large part to disabled organizers, Count 3 of the original filing, (formerly Texas v. Becerra) “Section 504 is Unconstitutional” has been withdrawn. This is great news!

      BUT, the lawsuit continues to attack Final Rule, important updates to 504 guidance re: 21st century technology (telehealth, websites), pandemic-era healthcare (ventilator rationing), and protecting disabled people’s rights to live in community instead of being forced into institutions.

      Kennedy issued a “clarification” weeks ago noting mention of gender dysphoria in the preamble is not an enforceable part of the law, so the transphobic framing against Final Rule is now moot.
    7. Hicks vs St David’s Healthcare Partnership poses threat to ADA/504. Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.

      The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.

      Action:
      Share this info! Disability is often lost in mainstream coverage.

      Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.

      Leave a public comment with DoED saying no to funding cuts and block grants. They are required to read and log them!

      If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting various legal battles.

      Contact medical providers requesting they do not share yours or your child’s autism diagnosis or records with the government registry. Letter template available here.

      Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Template for requesting doctors do not share medical information

    Hello! We aren’t lawyers, just regular people sharing regular-person advice. This template was originally posted on the Legally Autistic FB page, and shared with us via E. Thunderwood on Instagram. Thanks to them for their hard work on this matter.

    It’s unclear, given the breadth of the current administrations’ defiance of laws, as well as Medicare/aid’s access to patients’ medical information to a degree already, how effective this request will be. It’s our feeling that it’s worth a shot; your mileage may vary.

    Link to NIH press release about moving forward with the Autism Database.

    Link to NPR Article about kinds of information that will be integrated into database.

    Template:
    Part 1 CONFIDENTIAL MEMORANDUM
    To: [Doctor’s Full Name]
    From: [Your Full Legal Name]
    Date: [Insert Date]
    Subject: Restriction on Disclosure of Protected Health Information (PHI)

    Dear Dr. [Doctor’s Last Name],

    I, [Your Full Legal Name], date of birth [MM/DD/YYYY], am writing to
    formally exercise my rights under the Health Insurance Portability and Accountability Act (HIPAA), 45 CFR 164.522(a), to restrict the disclosure of my protected health information (PHI).

    Specifically, I am hereby directing that you and your practice not disclose any part of my medical records, including but not limited to my autism diagnosis and any related treatment notes, to the U.S. Department of Health and Human Services (HHS) or any of its agencies, except where disclosure is required by law (such as in response to a valid court order or for public health reporting where no waiver is permitted).

    Part 2

    This restriction applies to:

    Verbal, written, or electronic disclosures;

    Disclosures for research, audits, or program evaluations not otherwise required by law;

    Any sharing of medical records through Health Information Exchanges (HIEs) without my express written authorization.

    I understand that under 45 CFR 164.522(a)(1)(ii), you are not required to agree to requested restrictions unless the disclosure
    is for payment or healthcare operations and I have paid out-of-pocket in full. However, I am asserting this request as a formal limitation on your voluntary disclosures unless legally compelled.

    Please retain a copy of this memorandum in my file and confirm in writing that you will honor this restriction, unless and until I provide express written authorization or legal process mandates otherwise.

    Thank you for your attention to this matter.

    Sincerely,
    [Your Full Legal Name]
    [Your Address]
    [City, State ZIP Code]
    [Phone Number]

  • Week 17 Updates

    Week 17 Updates

    1. Budget Reconciliation attempts back-door closure of DoED. The GOP proposes to dismantle key programs and change the way IDEA and other special education programming is funded, using “no strings attached” block grants to states, which will be suggested, but not required, for special education use. This is dangerous, as we are already seeing districts pull money from special institutions in light of budget cuts elsewhere.

      The budget also leverages “parental rights” rhetoric to funnel money to charter and private schools, which are not required to accept or accommodate disabled students.

      Because these changes are incorporated into the budget reconciliation process rather than a separate law, they will only need 51 votes to pass.
    2. House Roils Over Deep Cuts to Medicaid. The proposed budget seeks to slash $715 billion over 10 years, establish work requirements and more red tape for enrollment, and leave 7.5-12 million people without care. This number could increase as states are forced to bear more program costs with fewer overall federal supports.

      The Center for American Progress estimates the move will be directly responsible for the deaths of more than 21K Americans annually.

      Disabled ADAPT protesters shut down the hearings earlier this week, and the bill failed to pass a vote on Friday, due to 5 Republican NO votes. However, the majority of them want even deeper cuts. Debates/votes continue next week.
      Call them, and get in the way when possible.
    3. Budget also takes aim at SNAP, Rent subsidies. The proposed budget will cut $300 billion from SNAP programming, funds that allows families to purchase food at their local grocery stores. The plans also expand work requirements, even for parents and the elderly. 74% (and by some estimates, as high as 89%) of nondisabled, working-age SNAP recipient households already have a job. Approximately 26% of SNAP recipients are disabled.

      The budget also proposes a $700 million dollar cut to rent subsidies and homelessness programs that disproportionately serve disabled people and Veterans.
    4. Dr. Oz: “It is Your Patriotic Duty to Be Healthy” Dr. Oz, Administrator for the Centers for Medicare and Medicaid Services, said on Fox News last Thursday: “70% of the money we spend is on chronic illness, and we’re not getting our money’s worth. So for folks listening right now, it’s your patriotic duty to be as healthy as you can.”

      The assertion that chronically ill and disabled people are a burden on society and their lives “not worth it” is eugenicist rhetoric. Tethering health and patriotism was a frequent move in 1930s Germany, both as propaganda to grow support for the eventual murder of 300,000 disabled people, and as a cover-up for declining standards of living. Strict anti-smoking campaigns and “Healthy Woman Healthy Nation” initiatives were a way to hide the worsening health of Germans under N–i rule by placing the blame back on individuals.
    5. Texas v Kennedy Updates. Thanks in large part to disabled organizers, Count 3 of the original filing, (formerly Texas v. Becerra) “Section 504 is Unconstitutional” has been withdrawn. This is great news! BUT, the lawsuit continues to attack Final Rule, important updates to 504 guidance re: 21st century technology (telehealth, websites), pandemic-era healthcare (ventilator rationing), and protecting disabled people’s rights to live in community.

      Kennedy issued a “clarification” weeks ago noting mention of gender dysphoria in the preamble is not an enforceable part of the law, so the transphobic framing against Final Rule is now moot.
    6. Hickson v St David’s Healthcare Partnership poses new threat to 504/ADA. Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.

      The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504
    7. Government Poised to Cut TRIO programs for College Access. Starting in the 1960s, the cluster of programs known as TRIO has supported low-income, first-generation college students, veterans, rural students, and disabled students in accessing higher education. The Administration is now calling it a “relic of the past” and says it should be colleges’ responsibility to recruit and support these populations.

      Some of the programs under TRIO are the McNair Scholars Program, Talent Search, Educational Opportunity Centers, Student Support Services and Upward Bound programming.
    8. Deaf Education under fire at local and federal levels. Faculty at Gallaudet released an open letter this week expressing concern for the university due to recent budget cuts, and the handling of the current situation by administration. The open letter will be linked to read in full on the Dis Rights Watch Site. The faculty are urging the community to take action by contacting the Office of the President at GU.

      Indiana School for the Deaf and NJ School for the Deaf (MKSD) are threatened with local cuts as their state budgets seek to recall funds to use across public education more broadly. MKSD may lose their remaining residential facility with the cuts. (Per internal sources. This is a developing story.)
    9. Cuts at SSA Eliminate Funds for ASL Interpreters. Previously, pay cards at the Social Security Administration, used by employees for things like paper, printer ink, and work-related travel, had been frozen at a $1 limit to prevent any purchases.

      However, those cards were also used to pay ASL interpreters within field offices, who operate on local rather than national contracts. SSA employees have reported having to cancel appointments and turn D/HH clients away after already long wait times. This is a violation of Section 504 and the ADA.

      Take Action:
      Share this info! Disability is often lost in mainstream coverage.

      Call your Representative and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, SNAP, IDEA, etc.–and mention them by name.

      Contact the Gallaudet Office of the President and demand action to prevent the dismantling of the University. Support your local deaf school.

      If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting in the courts.

      Contact medical providers requesting they do not share yours or your child’s autism diagnosis or records with the government registry. Letter template in “Take Action” story highlight on Instagram.

      Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Week 16 Update

    Week 16 Update

    1. IDEA funding and enforcement threatened by block grants. In keeping with Project 2025, the White House’s budget requests called for a shift of how funding for special education is disbursed. Currently, DoEd provided formula grants calculated by a variety of data points and given to states with the requirement that they be used for special education.

      The White House has requested a shift to a “no strings” block grant, meaning that the money will be given to the states with the suggestion that it be used for special education, but no requirements. In already cash-strapped districts, this will likely not be the case, and with limited DoEd or DOJ oversight, families will have limited recourse.
    2. RFK Jr.’s autism registry is back. The NIH announced that they will move forward with plans to create a registry of autistic people, though they did not refer to it as such. It is instead being called a “real world data platform” which NIH and CMS will create together.

      According to an NIH press release, the platform will access Medicaid and Medicare “claims data, electronic medical records, and consumer wearables.” Several autistic-led advocacy groups have invited RFK and other HHS leaders to a round table to discuss community concerns, but received no response.
    3. Trump targets public broadcasting, DoEd grant cut ends funding for PBS Kids. While the White House’s budget proposal attacks PBS and NPR, the Dept. of Ed also ended the $23 million “Ready to Learn” grant, calling PBS Kids shows like Sesame Street and Work it Out Wombats “woke propaganda”.

      With only 50% of US children in preschool, PBS kids shows, developed by educators and psychologists, are a crucial source of early learning for many. The PBS Kids app for tablets is also a rare free, and commercial-free, safe space for kids on the internet.

      PBS Kids is also the only streaming service to offer several full series with ASL interpretation, providing access to deaf and hard-of-hearing kids before they have learned to read closed captions.
    4. National Endowment for the Arts grants cancelled. Hundreds of arts organizations across the US have had their grants cancelled after being informed via email that their work “does not align with [the administration’] priorities”….of “projects that reflect the nation’s rich and artistic heritage and creativity as prioritized by the President”.

      Small presses, arts and film festivals, theaters, arts education programs, journalistic outlets, and many others have lost funding. Some organizations, like Detroit’s nonprofit arts space PASC, were informed that their grants were pulled specifically because they were supporting the careers of artists with disabilities, which “did not align with NEA priorities.”

      The loss of NEA funding will harm arts, journalism, and education across the country, especially marginalized students, artists, and communities.
    5. Texas v. Kennedy, formerly Texas v. Becerra, updates. Thanks in large part to disabled organizers, Count 3 of the original filing, “Section 504 is Unconstitutional” has been withdrawn. This is great news!

      BUT, the lawsuit continues to attack Final Rule, important updates to 504 guidance re: 21st century technology (telehealth, websites), pandemic-era healthcare (ventilator rationing), and protecting disabled people’s rights to live in community. Kennedy issued a “clarification” weeks ago noting mention of gender dysphoria in the preamble is not an enforceable part of the law, so the transphobic framing against Final Rule is now moot.

      Note that going forward this case will be known as Texas vs. Kennedy.
    6. Hickson v. St. David’s Healthcare Partnership poses new risk to ADA, 504 enforcement. Michael Hickson, a 46-year- old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.

      The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.
    7. Customs and Border Patrol end policies that protect pregnant, elderly, ill and disabled people. Under the Biden Administration, CBP had established policy about how to best support those in custody with extenuating medical circumstances. Policies included providing diapers to babies, and expediting the release and medical care of those with serious medical conditions, or who are about to give birth.

      The polices were originally put into place after the deaths of several detainees, including 8-year-old Anadith Reyes who had sickle cell anemia and a heart condition. CBP ignored her complaints of pain and her parents’ pleas to go to the hospital.
    8. More HHS cuts kill research as White House threatens to implement Schedule F. This week’s HHS attacks saw additional layoffs at the NIH, though the organization had previously been told there wouldn’t be further cuts, including employees at the National Cancer Institute. The CDC’s Healthcare Infection Control Practices Advisory Committee, who created policy for hospitals on things like handwashing and masks, was also shut down.

      Meanwhile, in keeping with Project 2025 the administration continues its attempt to implement Schedule F, a rule that would replace civil servants with political loyalist appointees, threatening the neutrality of science and research.
    9. Take Action.
      Share this info. Disability is often lost in mainstream coverage.

      Call your Representative and tell them not to accept the White House’s requested budget cuts. Choose 1 or 2 programs important to you personally and mention them by name when you call.

      Call your Senator and tell them to take meaningful action against illegal deportations and ideological-based arrests.

      Add a public comment to the federal registry to urge keeping scientific research independent and prevent Schedule F.

      If your state is involved, contact your Attorney General and ask them to withdraw from Texas v. Beccera. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting these and other attacks in the courts.

      Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Week 15 Update

    Week 15 Update

    1. White House releases harrowing budget requests. On Friday, the White House released their budget request to Congress. The 46 pg document seeks massive cuts for almost all social and educational programs domestically and internationally, cuts totaling $163 billion.

    Departments of Defense and Homeland Security are two of the handful of that see increased spending in order to better fund police militarization and the deportation of immigrants and kidnapping of US citizens by ICE.

    This week’s post will examine some key budget asks affecting the disability community. This is not a complete list, but a link to the full document is available here. Items 1-4 on this post are pulled directly from that spreadsheet. It’s important to note that these are *nonbinding requests* from the President. It will be up to Congress to write and pass specific legislation. Call them.

    2. WH Budget Requests: Dept. of Education
    $60 million increase in funding for charter schools

    $4.5 billion in cuts for K-12 education / Title I programming for underfunded schools

    $49 million in cuts for DoED’s Office of Civil Rights

    A vague category of “Special Education” is listed to “remain at 2025 levels. it mentions IDEA by name, but it’s unclear to what extent programs and sub-departments will be included. The explanation also appears to employ Project 2025’s block grant distribution, meaning it’s suggested the money be used for special ed, but with limited oversight.

    Many other DoED programs receive explicit cuts. There is no mention of special institutions, like Gallaudet, NTID, Printing House for the Blind, etc. in the document.

    3. WH Budget Request, HHS
    $500 million increase to “MAHA” a slush fund for RFK Jr’s antivax and “overreliance on medication” initiatives

    $4 billion in cuts to LIHEAP the program that provides heat and AC assistance for low-income families.

    $1.9 billion in cuts for services for refugee and unaccompanied minors

    $315 million cuts to Preschool Development Grants

    $1.7 billion cuts to HRSA, $3. 5 billion cuts to the CDC
    $17.9 billion cuts to the National Institutes of Health (NIH)

    $1 billion cuts to Substance Abuse and Mental Health Services Administration (SAMHSA)

    $180 million in cuts to STI and teen pregnancy prevention programs

    $674 billion in cuts to Medicaid and Medicare Service

    4. WH Budget Request, HUD:
    $26 billion cut from rental assistance state block grants, money sent to states to support rental housing for the elderly, disabled, and those aging out of foster care.

    $479 million in cuts from Native American and Hawaiian housing block grants

    $532 million cut from Homeless Assistance Program

    $296 million cut from Surplus Lead Hazard Reduction and Healthy Homes Funding

    Additional cuts to other self-sufficiency, fair housing, and community grant programs

    5. WH Budget Requests, our liberation is intertwined: Deep cuts to the Environmental Protection Agency, the National Parks System, the Department of the Interior (including significant reductions in funding for Native American reservation-based social services and education), aid-based programming within the DHS, FEMA and other disaster-relief funding, Department of Labor job skills programs, funding for libraries, HBCUs, PBS and NPR, programs to combat misinformation, and more have all been explicitly named and targeted for cuts at the President’s request.
    These cuts will hurt everyone, and particularly those living at the intersection of multiple marginalized identities.

    7. Gallaudet suspends enrollment of several majors as budget cuts loom. A list from Provost Rashid said admissions to the following programs will be suspended:
    Secondary Education programs, including the BA and MA in Secondary Education in Biology, Chemistry, English, General Sciences, Mathematics, and Social Studies, Undergraduate Teacher Preparation, Programs in Early Childhood and Elementary Education

    The announcement comes as deaf studies and education programs shutter at universities across the country.

    GU leadership continues to be nontransparent about the future of the university without its DoED Liaison, who previously disbursed funding and advocated on behalf of deaf education. The University has gone so far as to say that the liaison has been reinstated, which is untrue.

    The only liberal arts university for the deaf in the world faces an uncertain future without mention in Trump’s budget request (yes, that would be illegal).

    8. Texas v Beccera lawsuit continues
    Despite recent “clarifications” from HHS about the how mention of gender dysphoria in Final Rule’s preamble is not legally binding, involved parties have not revoked their original filing, which explicitly asks for 504 to be declared unconstitutional (p 37-42).

    504 protects disabled people’s rights in all spaces that receive federal funding, and would have major implications in conjunction with rescinding of ADA guidance, the uncertain future of DoEd, and a separate suit going before SCOTUS next week.

    A stay has been issued, and parties are now required to update every other month, with the next due June 21st.

    9. RFK makes wild vaccine claims on air as HHS floats dangerous clinical trials.
    Speaking live on News Nation Wednesday, RFK Jr. repeatedly claimed the MMR vaccine contains “aborted fetus debris.”

    IT SUPER DOESN’T! The MMR vaccine, like most vaccines, was cultured within (sterile) fetal cells, one of two lines from the 1960s. It does not contain fetal cells or human DNA because the virus kills the cell. The vaccine virus is also purified before it is made into a replicable vaccine.

    HHS also said they want to conduct placebo trials on existing vaccines, raising ethical concerns with public health experts. Not giving available effective and thoroughly-tested vaccines to trial participants and infecting them with, and allowing them to die from preventable disease is cruel, and in violation of the Hippocratic Oath.

    10. HHS releases harmful anti-trans report, highlights willingness to distribute misinformation. On Thursday, HHS released a “report” seeking to disparage gender-affirming care for trans youth, care that is already known to be safe and effective as backed by decades of peer-reviewed research.

    The report’s authors are anonymous, and it is not peer-reviewed. No trans people are consulted in the report, though anti-trans extremists are cited.

    Every human deserves access to healthcare. The disability community stands with trans youth.

    Multiple studies also estimate that 27-50% of trans people are disabled, too. (1, 2, 3)

    The report also demonstrates a willingness to publish blatant disinformation to support the administration’s various eugenic vendettas. This won’t be the last.

    Take Action:

    What to do: Share this info. Disability is often lost in mainstream coverage.

    Call your Representative and tell them not to accept the White House’s requested budget cuts. Choose 1 or 2 programs important to you personally and mention them by name when you call.

    Call your Senator and tell them to take meaningful action against illegal deportations and ideological-based arrests.

    Contact the Gallaudet Board of Trustees and urge transparency in communication with the community, and action to protect the university.

    If your state is involved, contact your Attorney General and ask them to withdraw from Texas v. Beccera. Tell them you stand in solidarity with disabled people, and trans folks.

    Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.