Disability Rights Watch

News

  • Week 19 Updates

    1. The Dept of Education’s proposed 2026 budget released. The proposed DoEd budget was released this week, confirming a shift from IDEA formula grants (calculated by state need, with specific requirements to be used for special ed.) to block grant format. States would no longer be required to use the money for special ed.

      Proposed program cuts for 2026: Preschool grants, State Personnel Development, Technical Assistance teams, SpEd. Personnel Preparation Program, Parent Information Centers, Educational Technology Media and Materials program, Client Assistant State Grants, several training and Supported Employment state grant programs, the Protection and Advocacy of Individual Rights, Adult Education State grants. These are only the special ed programs cut. Many more have also been defunded.

      Bright spots: Funding for the Special Olympics, as well as the American Printing House for the Blind, NTID, Gallaudet University, Helen Keller National Center for DeafBlind, and Independent Living Services for Older Blind Individuals has been slated at the same rate for 2026. This is good news, and a departure from stated plans in Project 2025, which proposed defunding these programs.

      The budget also proposes slight increases in funding to both the overall special education and Vocational Rehabilitation budgets. However, these increases will not be enough to offset the programs in and outside of special ed. departments that have been defunded.

      The full DoED 2026 budget proposal is available here.
    2. HHS Budget Proposal Released: The proposed HHS budget continues ahead with plans for deep cuts across the department, especially in the NIH, CDC and Administration for Children Families and Communities. HHS department cuts sought total over $32 billion.

      Specific to the disability community, the ACL’s University Centers for Excellence in Developmental Disabilities, Chronic Disease Self-Management Education, Limb Loss and Paralysis Resource Centers, Voting Access for People with Disabilities, and the White House Conference on Aging are all proposed cuts.

      Bright spots: The new proposal walks back some of the proposed Administration for Community Living (ACL) eliminations. These programs remain funded in the current proposal: Councils on Developmental Disabilities, Protection and Advocacy systems, the Long-term care ombudsman program, National Institute on Disability Independent Living and Rehabilitative Research (NIDILRR), Lifespan Respite Care Program, and State Health Insurance Program (SHIP), among others.

      Instead of splitting the ACL’s programs across three different agencies as originally be proposed, the programs will move to the Administration for Children, Families and Communities. (This is good news, but remember deep budget cuts to the ACFC are also proposed)

      The Dept of Health and Human Services proposed 2026 budget is available in full here.
    3. MAHA Commission Report Cites Sources that Don’t exist: Last week, the commission released a report declaring a childhood “chronic disease crisis” in the US, identifying poor diet, chemicals, chronic stress, lack of physical activity, and “overmedicalization” as driving causes. The report also questioned vaccine safety.

      In the days since, it’s become clear that many of the sources cited do not exist.

      In addition to making the Commission’s work untrustworthy due to lack of peer-reviewed evidence, fake sources are hallmark of AI chatbots like ChatGPT, who “hallucinate” sources by putting words and names together that sound true, but aren’t real.
    4. CDC Defies RFK, Keeping covid vaccinations on childhood schedule: Last week, The FDA announced a plan to limit access to COVID boosters, restricting them to people over 65 or with underlying health conditions only. RFK also asked specifically that covid vaccines be left off the childhood vaccine schedule. Considering RFK Jr’s profitable ties to antivax organizations, many see this as the first step in limiting overall access to vaccines.

      This week, the CDC went against RFK’s statement, releasing its vaccine schedule including recommendations for covid vaccination for all children.
    5. Deaf schools under threat as state budgets compensate for DoEd cuts: Bracing for a federal budget that eliminates nearly $300 billion in education funding, some states are taking advantage of their expected freedom under the block grant system and cutting deaf school budgets.

      The New Jersey School for the Deaf (MKSD) saw their residential program completely removed from the governor’s proposed 2026 budget.

      Indiana School for the Deaf and California School for the Deaf–Fremont are also experiencing budgetary issues. Indiana seeks to reallocate money previously for ISD toward general public education, while CSD Fremont struggles to maintain appropriate funding for cost-of-living in a gentrified Silicon Valley area.
    6. NAD Sues White House to return ASL interpreters to press briefings: In keeping with eugenic rhetoric, various GOP influencers have shown particular hostility toward ASL interpreters in recent months, ever since Charlie Kirk and Chris Rufo attacked their existence at emergency briefings for the LA Fires, with Rufo calling them “wild human gesticulators”.

      Upon taking office, the Trump administration quickly removed the WH accessibility page and all ASL content, and fired the WH ASL interpreter, as part of other “anti-DEIA” initiatives.

      The NAD is now suing for the return of an interpreter to WH press briefings. The organization filed and won a similar suit during Trump 1.0, in order to access the emergency covid-related briefings.
    7. Musk out, Project 2025 Writer up: Elon Musk made an exit from the White House this week after a tanking Tesla stock, reports of heavy illegal drug use, and economic models showing that tens of thousands of people, most of them children, have been killed by his pet project–the illegal closure of USAID. Most of the deaths have resulted from malnutrition and lack of oral-rehydration medication for patients with diarrhea, two program areas hit quickest by the loss of funds.

      Russel Vought, a self-proclaimed “Christian Nationalist” and head writer for Project 2025, is poised to take over Musk’s work. It’s likely that he’ll be less flashy, and more effective, than Elon in the position.
    8. Hickson v. St. David’s Healthcare Partnership poses new threat to ADA/504: Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.

      The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.

      Action items:
      Share this info! Disability is often lost in mainstream coverage.

      Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.

      Call your state representative and tell them to include deaf schools in their budgets. You can text NJ Governor Phil Murphy at 732-605-5455

      If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting various legal challenges.

      Contact medical providers requesting they do not share yours or your child’s autism diagnosis or records with the government registry. Letter template available here.

      Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Week 18 Updates

    Week 18 Updates

    1. House passes budget bill containing deep cuts to Medicaid, SNAP, Dept. of Ed. 215 Republican Representatives voted for Trump’s “Big Beautiful Bill,” advancing plans to cut Medicaid/care, SNAP, HUD and education funding in order to up DHS spending and extend tax breaks to the ultra-wealthy.

      Medicaid: adds work requirements, increases “eligibility checks,” and cuts funds.

      SNAP: Raises age so recipients up to 64 must meet work requirements, cuts funds.

      DoED: cuts funds and shifts them to block grant format. Exact appropriations numbers for DoEd and others are not expected to be available until July (per internal sources).

      The bill heads to the Senate, where it needs 51 votes to pass. Some GOP Senators have said they won’t vote for Medicaid cuts, while others seek even deeper cuts. A failed vote will send the bill back to the House.
    2. Budget bans gender-affirming healthcare for people on Medicaid. As part of the budget bill, the House added a provision banning gender-affirming care for those using Medicaid programs. Originally the ban had only been for minors, but has now been extended to all ages.

      The ban also extends to plans sold on the marketplace under the Affordable Care Act (ACA). This is likely to face legal challenges as many states have already prohibited plans from refusing care to trans people.

      Studies estimate that about 1 in 4 trans people rely on Medicaid coverage. Nearly half of trans people also have a disability(1 , 2).
    3. Dept. of Ed updates: On Thursday, a MA judge blocked Trump’s attempt to close DoED, including the executive order to McMahon to facilitate the department’s closure, and the mass firings conducted in March.

      The judge ordered that those employees be reinstated, and underscored that closing DoEd would require an act of Congress. The administration has already filed an appeal.

      This is good news, but the budget bill still contains massive funding cuts, shifting remaining dollars to voucher programs and block grants that have no enforcement mechanisms. States can use funds previously for specific programs like IDEA for whatever they want, leaving students with IEP/504s at the whim of districts. If IEPS are not followed, its unknown who, if anyone, families can turn to for support.
    4. MAHA commission report skews focus, targets vaccines. RFK Jr’s MAHA commission released a report on what it called the childhood “chronic disease crisis” in the US, identifying poor diet, environmental chemicals, chronic stress, lack of physical activity, and “overmedicalization” as driving causes. The report also questions vaccine safety.

      The report does not address socio-economic factors that may contribute to children’s health, like poverty, or firearm or motor vehicle related deaths. Injury-related deaths account for 60% of deaths for children under 18.

      The commission is supposed to present a strategy for addressing childhood disease in August. However critics say budget and personnel cuts at HHS undermine the commission’s ability to meaningfully implement a plan, or even track data.
    5. FDA Seeks to restrict access to covid vaccines: The FDA announced a plan to limit access to COVID boosters, reversing previous policy. If implemented, COVID vaccines would be restricted to people over 65 or with underlying health conditions only.

      The FDA said manufacturers of COVID boosters seeking broader distribution to younger people would need to fund and conduct placebo-controlled trials, a lengthy process that would render each version of the vaccine useless given the rate of mutation.

      Considering RFK Jr’s profitable ties to antivax organizations, many see this as the first step in limiting overall access to vaccines.
    6. Texas vs Kennedy updates: Thanks in large part to disabled organizers, Count 3 of the original filing, (formerly Texas v. Becerra) “Section 504 is Unconstitutional” has been withdrawn. This is great news!

      BUT, the lawsuit continues to attack Final Rule, important updates to 504 guidance re: 21st century technology (telehealth, websites), pandemic-era healthcare (ventilator rationing), and protecting disabled people’s rights to live in community instead of being forced into institutions.

      Kennedy issued a “clarification” weeks ago noting mention of gender dysphoria in the preamble is not an enforceable part of the law, so the transphobic framing against Final Rule is now moot.
    7. Hicks vs St David’s Healthcare Partnership poses threat to ADA/504. Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.

      The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.

      Action:
      Share this info! Disability is often lost in mainstream coverage.

      Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.

      Leave a public comment with DoED saying no to funding cuts and block grants. They are required to read and log them!

      If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting various legal battles.

      Contact medical providers requesting they do not share yours or your child’s autism diagnosis or records with the government registry. Letter template available here.

      Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Template for requesting doctors do not share medical information

    Hello! We aren’t lawyers, just regular people sharing regular-person advice. This template was originally posted on the Legally Autistic FB page, and shared with us via E. Thunderwood on Instagram. Thanks to them for their hard work on this matter.

    It’s unclear, given the breadth of the current administrations’ defiance of laws, as well as Medicare/aid’s access to patients’ medical information to a degree already, how effective this request will be. It’s our feeling that it’s worth a shot; your mileage may vary.

    Link to NIH press release about moving forward with the Autism Database.

    Link to NPR Article about kinds of information that will be integrated into database.

    Template:
    Part 1 CONFIDENTIAL MEMORANDUM
    To: [Doctor’s Full Name]
    From: [Your Full Legal Name]
    Date: [Insert Date]
    Subject: Restriction on Disclosure of Protected Health Information (PHI)

    Dear Dr. [Doctor’s Last Name],

    I, [Your Full Legal Name], date of birth [MM/DD/YYYY], am writing to
    formally exercise my rights under the Health Insurance Portability and Accountability Act (HIPAA), 45 CFR 164.522(a), to restrict the disclosure of my protected health information (PHI).

    Specifically, I am hereby directing that you and your practice not disclose any part of my medical records, including but not limited to my autism diagnosis and any related treatment notes, to the U.S. Department of Health and Human Services (HHS) or any of its agencies, except where disclosure is required by law (such as in response to a valid court order or for public health reporting where no waiver is permitted).

    Part 2

    This restriction applies to:

    Verbal, written, or electronic disclosures;

    Disclosures for research, audits, or program evaluations not otherwise required by law;

    Any sharing of medical records through Health Information Exchanges (HIEs) without my express written authorization.

    I understand that under 45 CFR 164.522(a)(1)(ii), you are not required to agree to requested restrictions unless the disclosure
    is for payment or healthcare operations and I have paid out-of-pocket in full. However, I am asserting this request as a formal limitation on your voluntary disclosures unless legally compelled.

    Please retain a copy of this memorandum in my file and confirm in writing that you will honor this restriction, unless and until I provide express written authorization or legal process mandates otherwise.

    Thank you for your attention to this matter.

    Sincerely,
    [Your Full Legal Name]
    [Your Address]
    [City, State ZIP Code]
    [Phone Number]

  • Week 17 Updates

    Week 17 Updates

    1. Budget Reconciliation attempts back-door closure of DoED. The GOP proposes to dismantle key programs and change the way IDEA and other special education programming is funded, using “no strings attached” block grants to states, which will be suggested, but not required, for special education use. This is dangerous, as we are already seeing districts pull money from special institutions in light of budget cuts elsewhere.

      The budget also leverages “parental rights” rhetoric to funnel money to charter and private schools, which are not required to accept or accommodate disabled students.

      Because these changes are incorporated into the budget reconciliation process rather than a separate law, they will only need 51 votes to pass.
    2. House Roils Over Deep Cuts to Medicaid. The proposed budget seeks to slash $715 billion over 10 years, establish work requirements and more red tape for enrollment, and leave 7.5-12 million people without care. This number could increase as states are forced to bear more program costs with fewer overall federal supports.

      The Center for American Progress estimates the move will be directly responsible for the deaths of more than 21K Americans annually.

      Disabled ADAPT protesters shut down the hearings earlier this week, and the bill failed to pass a vote on Friday, due to 5 Republican NO votes. However, the majority of them want even deeper cuts. Debates/votes continue next week.
      Call them, and get in the way when possible.
    3. Budget also takes aim at SNAP, Rent subsidies. The proposed budget will cut $300 billion from SNAP programming, funds that allows families to purchase food at their local grocery stores. The plans also expand work requirements, even for parents and the elderly. 74% (and by some estimates, as high as 89%) of nondisabled, working-age SNAP recipient households already have a job. Approximately 26% of SNAP recipients are disabled.

      The budget also proposes a $700 million dollar cut to rent subsidies and homelessness programs that disproportionately serve disabled people and Veterans.
    4. Dr. Oz: “It is Your Patriotic Duty to Be Healthy” Dr. Oz, Administrator for the Centers for Medicare and Medicaid Services, said on Fox News last Thursday: “70% of the money we spend is on chronic illness, and we’re not getting our money’s worth. So for folks listening right now, it’s your patriotic duty to be as healthy as you can.”

      The assertion that chronically ill and disabled people are a burden on society and their lives “not worth it” is eugenicist rhetoric. Tethering health and patriotism was a frequent move in 1930s Germany, both as propaganda to grow support for the eventual murder of 300,000 disabled people, and as a cover-up for declining standards of living. Strict anti-smoking campaigns and “Healthy Woman Healthy Nation” initiatives were a way to hide the worsening health of Germans under N–i rule by placing the blame back on individuals.
    5. Texas v Kennedy Updates. Thanks in large part to disabled organizers, Count 3 of the original filing, (formerly Texas v. Becerra) “Section 504 is Unconstitutional” has been withdrawn. This is great news! BUT, the lawsuit continues to attack Final Rule, important updates to 504 guidance re: 21st century technology (telehealth, websites), pandemic-era healthcare (ventilator rationing), and protecting disabled people’s rights to live in community.

      Kennedy issued a “clarification” weeks ago noting mention of gender dysphoria in the preamble is not an enforceable part of the law, so the transphobic framing against Final Rule is now moot.
    6. Hickson v St David’s Healthcare Partnership poses new threat to 504/ADA. Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.

      The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504
    7. Government Poised to Cut TRIO programs for College Access. Starting in the 1960s, the cluster of programs known as TRIO has supported low-income, first-generation college students, veterans, rural students, and disabled students in accessing higher education. The Administration is now calling it a “relic of the past” and says it should be colleges’ responsibility to recruit and support these populations.

      Some of the programs under TRIO are the McNair Scholars Program, Talent Search, Educational Opportunity Centers, Student Support Services and Upward Bound programming.
    8. Deaf Education under fire at local and federal levels. Faculty at Gallaudet released an open letter this week expressing concern for the university due to recent budget cuts, and the handling of the current situation by administration. The open letter will be linked to read in full on the Dis Rights Watch Site. The faculty are urging the community to take action by contacting the Office of the President at GU.

      Indiana School for the Deaf and NJ School for the Deaf (MKSD) are threatened with local cuts as their state budgets seek to recall funds to use across public education more broadly. MKSD may lose their remaining residential facility with the cuts. (Per internal sources. This is a developing story.)
    9. Cuts at SSA Eliminate Funds for ASL Interpreters. Previously, pay cards at the Social Security Administration, used by employees for things like paper, printer ink, and work-related travel, had been frozen at a $1 limit to prevent any purchases.

      However, those cards were also used to pay ASL interpreters within field offices, who operate on local rather than national contracts. SSA employees have reported having to cancel appointments and turn D/HH clients away after already long wait times. This is a violation of Section 504 and the ADA.

      Take Action:
      Share this info! Disability is often lost in mainstream coverage.

      Call your Representative and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, SNAP, IDEA, etc.–and mention them by name.

      Contact the Gallaudet Office of the President and demand action to prevent the dismantling of the University. Support your local deaf school.

      If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting in the courts.

      Contact medical providers requesting they do not share yours or your child’s autism diagnosis or records with the government registry. Letter template in “Take Action” story highlight on Instagram.

      Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Week 16 Update

    Week 16 Update

    1. IDEA funding and enforcement threatened by block grants. In keeping with Project 2025, the White House’s budget requests called for a shift of how funding for special education is disbursed. Currently, DoEd provided formula grants calculated by a variety of data points and given to states with the requirement that they be used for special education.

      The White House has requested a shift to a “no strings” block grant, meaning that the money will be given to the states with the suggestion that it be used for special education, but no requirements. In already cash-strapped districts, this will likely not be the case, and with limited DoEd or DOJ oversight, families will have limited recourse.
    2. RFK Jr.’s autism registry is back. The NIH announced that they will move forward with plans to create a registry of autistic people, though they did not refer to it as such. It is instead being called a “real world data platform” which NIH and CMS will create together.

      According to an NIH press release, the platform will access Medicaid and Medicare “claims data, electronic medical records, and consumer wearables.” Several autistic-led advocacy groups have invited RFK and other HHS leaders to a round table to discuss community concerns, but received no response.
    3. Trump targets public broadcasting, DoEd grant cut ends funding for PBS Kids. While the White House’s budget proposal attacks PBS and NPR, the Dept. of Ed also ended the $23 million “Ready to Learn” grant, calling PBS Kids shows like Sesame Street and Work it Out Wombats “woke propaganda”.

      With only 50% of US children in preschool, PBS kids shows, developed by educators and psychologists, are a crucial source of early learning for many. The PBS Kids app for tablets is also a rare free, and commercial-free, safe space for kids on the internet.

      PBS Kids is also the only streaming service to offer several full series with ASL interpretation, providing access to deaf and hard-of-hearing kids before they have learned to read closed captions.
    4. National Endowment for the Arts grants cancelled. Hundreds of arts organizations across the US have had their grants cancelled after being informed via email that their work “does not align with [the administration’] priorities”….of “projects that reflect the nation’s rich and artistic heritage and creativity as prioritized by the President”.

      Small presses, arts and film festivals, theaters, arts education programs, journalistic outlets, and many others have lost funding. Some organizations, like Detroit’s nonprofit arts space PASC, were informed that their grants were pulled specifically because they were supporting the careers of artists with disabilities, which “did not align with NEA priorities.”

      The loss of NEA funding will harm arts, journalism, and education across the country, especially marginalized students, artists, and communities.
    5. Texas v. Kennedy, formerly Texas v. Becerra, updates. Thanks in large part to disabled organizers, Count 3 of the original filing, “Section 504 is Unconstitutional” has been withdrawn. This is great news!

      BUT, the lawsuit continues to attack Final Rule, important updates to 504 guidance re: 21st century technology (telehealth, websites), pandemic-era healthcare (ventilator rationing), and protecting disabled people’s rights to live in community. Kennedy issued a “clarification” weeks ago noting mention of gender dysphoria in the preamble is not an enforceable part of the law, so the transphobic framing against Final Rule is now moot.

      Note that going forward this case will be known as Texas vs. Kennedy.
    6. Hickson v. St. David’s Healthcare Partnership poses new risk to ADA, 504 enforcement. Michael Hickson, a 46-year- old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.

      The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.
    7. Customs and Border Patrol end policies that protect pregnant, elderly, ill and disabled people. Under the Biden Administration, CBP had established policy about how to best support those in custody with extenuating medical circumstances. Policies included providing diapers to babies, and expediting the release and medical care of those with serious medical conditions, or who are about to give birth.

      The polices were originally put into place after the deaths of several detainees, including 8-year-old Anadith Reyes who had sickle cell anemia and a heart condition. CBP ignored her complaints of pain and her parents’ pleas to go to the hospital.
    8. More HHS cuts kill research as White House threatens to implement Schedule F. This week’s HHS attacks saw additional layoffs at the NIH, though the organization had previously been told there wouldn’t be further cuts, including employees at the National Cancer Institute. The CDC’s Healthcare Infection Control Practices Advisory Committee, who created policy for hospitals on things like handwashing and masks, was also shut down.

      Meanwhile, in keeping with Project 2025 the administration continues its attempt to implement Schedule F, a rule that would replace civil servants with political loyalist appointees, threatening the neutrality of science and research.
    9. Take Action.
      Share this info. Disability is often lost in mainstream coverage.

      Call your Representative and tell them not to accept the White House’s requested budget cuts. Choose 1 or 2 programs important to you personally and mention them by name when you call.

      Call your Senator and tell them to take meaningful action against illegal deportations and ideological-based arrests.

      Add a public comment to the federal registry to urge keeping scientific research independent and prevent Schedule F.

      If your state is involved, contact your Attorney General and ask them to withdraw from Texas v. Beccera. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting these and other attacks in the courts.

      Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Week 15 Update

    Week 15 Update

    1. White House releases harrowing budget requests. On Friday, the White House released their budget request to Congress. The 46 pg document seeks massive cuts for almost all social and educational programs domestically and internationally, cuts totaling $163 billion.

    Departments of Defense and Homeland Security are two of the handful of that see increased spending in order to better fund police militarization and the deportation of immigrants and kidnapping of US citizens by ICE.

    This week’s post will examine some key budget asks affecting the disability community. This is not a complete list, but a link to the full document is available here. Items 1-4 on this post are pulled directly from that spreadsheet. It’s important to note that these are *nonbinding requests* from the President. It will be up to Congress to write and pass specific legislation. Call them.

    2. WH Budget Requests: Dept. of Education
    $60 million increase in funding for charter schools

    $4.5 billion in cuts for K-12 education / Title I programming for underfunded schools

    $49 million in cuts for DoED’s Office of Civil Rights

    A vague category of “Special Education” is listed to “remain at 2025 levels. it mentions IDEA by name, but it’s unclear to what extent programs and sub-departments will be included. The explanation also appears to employ Project 2025’s block grant distribution, meaning it’s suggested the money be used for special ed, but with limited oversight.

    Many other DoED programs receive explicit cuts. There is no mention of special institutions, like Gallaudet, NTID, Printing House for the Blind, etc. in the document.

    3. WH Budget Request, HHS
    $500 million increase to “MAHA” a slush fund for RFK Jr’s antivax and “overreliance on medication” initiatives

    $4 billion in cuts to LIHEAP the program that provides heat and AC assistance for low-income families.

    $1.9 billion in cuts for services for refugee and unaccompanied minors

    $315 million cuts to Preschool Development Grants

    $1.7 billion cuts to HRSA, $3. 5 billion cuts to the CDC
    $17.9 billion cuts to the National Institutes of Health (NIH)

    $1 billion cuts to Substance Abuse and Mental Health Services Administration (SAMHSA)

    $180 million in cuts to STI and teen pregnancy prevention programs

    $674 billion in cuts to Medicaid and Medicare Service

    4. WH Budget Request, HUD:
    $26 billion cut from rental assistance state block grants, money sent to states to support rental housing for the elderly, disabled, and those aging out of foster care.

    $479 million in cuts from Native American and Hawaiian housing block grants

    $532 million cut from Homeless Assistance Program

    $296 million cut from Surplus Lead Hazard Reduction and Healthy Homes Funding

    Additional cuts to other self-sufficiency, fair housing, and community grant programs

    5. WH Budget Requests, our liberation is intertwined: Deep cuts to the Environmental Protection Agency, the National Parks System, the Department of the Interior (including significant reductions in funding for Native American reservation-based social services and education), aid-based programming within the DHS, FEMA and other disaster-relief funding, Department of Labor job skills programs, funding for libraries, HBCUs, PBS and NPR, programs to combat misinformation, and more have all been explicitly named and targeted for cuts at the President’s request.
    These cuts will hurt everyone, and particularly those living at the intersection of multiple marginalized identities.

    7. Gallaudet suspends enrollment of several majors as budget cuts loom. A list from Provost Rashid said admissions to the following programs will be suspended:
    Secondary Education programs, including the BA and MA in Secondary Education in Biology, Chemistry, English, General Sciences, Mathematics, and Social Studies, Undergraduate Teacher Preparation, Programs in Early Childhood and Elementary Education

    The announcement comes as deaf studies and education programs shutter at universities across the country.

    GU leadership continues to be nontransparent about the future of the university without its DoED Liaison, who previously disbursed funding and advocated on behalf of deaf education. The University has gone so far as to say that the liaison has been reinstated, which is untrue.

    The only liberal arts university for the deaf in the world faces an uncertain future without mention in Trump’s budget request (yes, that would be illegal).

    8. Texas v Beccera lawsuit continues
    Despite recent “clarifications” from HHS about the how mention of gender dysphoria in Final Rule’s preamble is not legally binding, involved parties have not revoked their original filing, which explicitly asks for 504 to be declared unconstitutional (p 37-42).

    504 protects disabled people’s rights in all spaces that receive federal funding, and would have major implications in conjunction with rescinding of ADA guidance, the uncertain future of DoEd, and a separate suit going before SCOTUS next week.

    A stay has been issued, and parties are now required to update every other month, with the next due June 21st.

    9. RFK makes wild vaccine claims on air as HHS floats dangerous clinical trials.
    Speaking live on News Nation Wednesday, RFK Jr. repeatedly claimed the MMR vaccine contains “aborted fetus debris.”

    IT SUPER DOESN’T! The MMR vaccine, like most vaccines, was cultured within (sterile) fetal cells, one of two lines from the 1960s. It does not contain fetal cells or human DNA because the virus kills the cell. The vaccine virus is also purified before it is made into a replicable vaccine.

    HHS also said they want to conduct placebo trials on existing vaccines, raising ethical concerns with public health experts. Not giving available effective and thoroughly-tested vaccines to trial participants and infecting them with, and allowing them to die from preventable disease is cruel, and in violation of the Hippocratic Oath.

    10. HHS releases harmful anti-trans report, highlights willingness to distribute misinformation. On Thursday, HHS released a “report” seeking to disparage gender-affirming care for trans youth, care that is already known to be safe and effective as backed by decades of peer-reviewed research.

    The report’s authors are anonymous, and it is not peer-reviewed. No trans people are consulted in the report, though anti-trans extremists are cited.

    Every human deserves access to healthcare. The disability community stands with trans youth.

    Multiple studies also estimate that 27-50% of trans people are disabled, too. (1, 2, 3)

    The report also demonstrates a willingness to publish blatant disinformation to support the administration’s various eugenic vendettas. This won’t be the last.

    Take Action:

    What to do: Share this info. Disability is often lost in mainstream coverage.

    Call your Representative and tell them not to accept the White House’s requested budget cuts. Choose 1 or 2 programs important to you personally and mention them by name when you call.

    Call your Senator and tell them to take meaningful action against illegal deportations and ideological-based arrests.

    Contact the Gallaudet Board of Trustees and urge transparency in communication with the community, and action to protect the university.

    If your state is involved, contact your Attorney General and ask them to withdraw from Texas v. Beccera. Tell them you stand in solidarity with disabled people, and trans folks.

    Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.

  • Week 14 Update

    Week 14 Update

    1. HHS announces plan to build a registry of autistic people. This week, the HHS announced plans to use private health data, from medical records down to wearable smart tech, to create a government registry of autistic people. The announcement sparked privacy concerns and comparisons to the 1939 registry for disabled children as part of T4, a program for the mass murder of 300K+ disabled people across occupied Europe.

      Several state-level autism databases already exist for research and resource purposes, as do other condition-specific registries; however, participation in those is voluntary.
      Limited reporting Friday stated that due to public outcry, the NIH is walking back registry plans and investing in other unspecified research, but nothing official from RFK yet (as of late Friday, 4/25).

      Update: as of 4/26, reports of an emailed statement from an unnamed HHS official are here. The email states that there will be no “registry” and instead researchers will draw from limited data sets.
    2. Actual autism-related research defunded. In last week’s diatribe against autistic people, RFK Jr. had vowed to find the cause of autism by September. NIH later moved back the timeline. However, other grants for longstanding autism research have been cut, including:

      National Science Foundation grants featuring the words “accessibility” and “inclusion,” like one for the Frist Center for Autism and Innovation, which included work by autistic scholars.

      The federal government’s Autism Research Program (ARP) omitted from 2025 appropriations.

      Other NIH grants and programs continue to be delayed and cut as remaining employees parse through unfinished projects after many workers have been laid off.
    3. RFK Jr. expands eugenic hit list, says disabilities are, “bankrupting our nation.” RFK’s quote: “Neurological disorders–ADD, ADHD, speech delay, language delay, tics, Tourette’s syndrome, narcolepsy, ASD ….All these are injuries I never heard of when I was a kid… There was $0 spent in this country treating chronic disease when my uncle was President. Today it’s $1.8 T annually. It’s bankrupting our nation….juvenile diabetes, rheumatoid arthritis, lupus, Crohn’s disease, were just unknown when I was a kid.”

      RFK also said the diagnosis uptick endangers the nation because fewer qualify for military service.

      Most conditions listed were discovered at the turn of the 20th century or before. However, disabled people were often institutionalized or lobotomized, decreasing their visibility, (especially in rich people circles like RFK’s).

      Disabled people “draining society” is a eugenic talking point, and The word “injury” to describe disability and autism is also an antivax dog whistle.

      His press conference was supposed to be about banning synthetic food dyes, which he did not do.
    4. DOGE already has access to sensitive HHS data. While autistic people and allies rightfully sounded the alarm on the invasion of privacy that a national autism registry could bring, DOGE already has access to at least 19 of HHS’s systems, some of which contain sensitive information, and typically require specific specialized training before use.

      Some of the systems are: Centers for Medicaid and Medicare Services (CMS, CALM), CMS’s Integrated Data Repository Cloud (contains patient info), several grant processing and personnel management systems, the Unaccompanied Alien Children portal, and accounting and payment systems across HHS, NIH, and CDC.
    5. Supreme Court to hear case that could gut ADA/504 protections. Next week, SCOTUS will hear arguments related to the case A.J.T. vs. Osseo Area Schools. The case examines whether a disabled person must prove a party acted, “in bad faith or gross misjudgment” to claim their rights were violated.

      The case, about accommodations for a disabled student, was originally narrow in scope and focused in K-12 ed, but the most recent brief makes clear the intent will be to apply the interpretation to the ADA and Rehabilitation Act more broadly.

      Having to prove malicious intent in order to access basic accommodations will further gut the ADA/504 in an already hostile DOJ oversight. Does this building not have a ramp? Well, as long as they aren’t doing it to be mean! *shrug*…..
    6. Executive Order, “Reinstating Common Sense Discipline in Schools” From the order: “The Federal Government will no longer tolerate known risks to children’s safety and well-being in the classroom that result from the application of school discipline based on discriminatory and unlawful ‘equity’ ideology.”

      The White House seeks to roll back trauma-informed and anti-racist educational practices currently in place to address disparities in the biased application of disciplinary policy (e.g. children of color getting punished more frequently and harshly for the same behavior as white children.)

      The removal of equitable discipline practices will be dangerous for children of color, disabled children, and especially those at the intersection of those identities.
    7. Deaf and Disability Studies programs shutter while Gallaudet begins layoffs.
      Across the country, deaf education TOD programs, and deaf/ disability cultural programs are being shut down. The deaf ed programs have likely lost funding due to cuts at the Dept of Ed’s Office of Special Education, while cultural “area” studies have been targeted by a variety of Trump’s anti-DEIA orders.

      Deaf Education programs cut: University of Minnesota–Duluth, Utah State University. Deaf ed at Columbia University Teacher’s College has also been defunded through the Trump takeover there.

      Deaf Studies: University of Maryland–College Park, University of Montevallo, University of Nebraska, Ithaca College.

      Disability Studies: University of Toledo

      ASL Interpreting Programs: Columbia College–Chicago, University of Texas–Houston

      Gallaudet also announced layoffs on the executive team and comms office, while others took pay cuts. Gallaudet Pres. Cordano continues to downplay growing concerns about the future of the university without its DoED liaison.
    8. Texas v. Becerra lawsuit continues. Despite recent “clarifications” from HHS about the how mention of gender dysphoria in Final Rule’s preamble is not legally binding, involved parties have not revoked their original filing, which explicitly asks for 504 to be declared unconstitutional (p 37-42).
    9. 504 protects disabled people’s rights in all spaces that receive federal funding, and would have major implications in conjunction with rescinding of ADA guidance, the uncertain future of DoEd, and a separate suit going before SCOTUS next week.
    10. A stay has been issued, and parties are now required to update every other month, with the next due June 21st.
    11. The FBI arrests a sitting judge, Attorney General Bondi threatens more. The FBI arrested WI judge Hannah Dugan on charges of obstruction. They say Dugan allowed an immigrant to use a side door typically only for the jury, in order to avoid detainment by ICE.

      US Attorney General Pam Bondi promised that Dugan’s arrest is just the beginning. “We are sending a very strong message today: If you are harboring a fugitive, we don’t care who you are, if you are helping hide one, if you are giving a TdA member guns, anyone who is illegally in this country, we will come after you and we will prosecute you. We will find you.”

      The judge was not giving anyone a gun. The immigrant in question had been at the courthouse due to a misdemeanor.

      The arrest is a marked turn in the disintegration of Constitutional rule, ushering in an era of ideological-based arrests.
    12. Do not comply in advance (good news). Judges issued a series of blows to Trump’s anti-DEIA agenda within the K-12 sector, with two judges blocking, and one postponing the implementation of various anti-equity policies within public school settings, calling them too vague, and unconstitutional.

      The number of school districts and states standing up to the administration on this issue continues to grow, and under forceful pushback, the administration typically folds (see: Harvard). The federal government has never had control over individual states’ or districts’ curriculum choices.
    13. Action: Share this info. Disability is often lost in mainstream coverage.

      Call your Representative and continue to make noise about the HHS’s eugenic rhetoric and practices.

      Call your Senator and tell them to take meaningful action against illegal deportations and ideological-based arrests.

      Contact your school board and state’s education officials, and tell them not to comply with baseless anti-DEI directives. Tell your universities you value deaf and disability studies programs!

      If your state is involved, contact your Attorney General and ask them to withdraw from Texas v. Beccera. Tell them you stand in solidarity with disabled people, and trans folks.

      Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able, donate or volunteer with your local food pantry or library.

  • Week 13 Updates

    Week 13 Updates

    1. White House asks Congress to Eliminate Head Start Funding. The current budget draft eliminates funding for Head Start, which provides early education, meals, and health screenings for pre-k kids. The elimination of Head Start was a stated goal of Project 2025.

      Head Start outcomes are extremely successful, showing benefits for children in early literacy, social-emotional skills, health and dental improvements, early intervention for disabilities, and a >90% decrease in the need for family separation and foster care.

      Many preschools–which include both public and private programs–who receive the funding were already struggling due to earlier federal freezes and staffing cuts.
    2. US Citizen arrested on ICE hold, while White House flouts SCOTUS rulings and wants expansion of camps for “homegrowns.” Trump met with the President of El Salvador, and the two congratulated themselves on the imprisonment of asylum seekers and legal US residents. Trump remarked that US citizen “homegrown” prisoners would be next.

      Despite various judicial rulings, including a unanimous SCOTUS ruling that the administration should facilitate the return of Kilmar Abrego-Garcia, the White House has continued to organize more deportations and posted on X that Garcia will “never return.”

      A US-born man was also imprisoned yesterday in Florida due to an ICE hold, even though he presented an authentic US birth certificate. He has since been released.

      If the Executive branch does not accept the rulings of the judicial branch, rule of law ceases to exist in the US, paving the way for any and all “undesirables” to be sent to illegal detainment camps.
    3. RFK spouts misinformation and hatred about autistic people. Autistic and disabled organizers, alongside parents and teachers of autistic children were alarmed at RFK Jr’s hateful comments on autism and his department’s plan to find the “environmental causes” of autism by September. His quote: “Autism destroys families, and more importantly, it destroys our greatest resource, which is our children. These are children who should not be suffering like this, These are kids who will never pay taxes, they’ll never hold a job, they’ll never play baseball, they’ll never write a poem, they’ll never go out on a date. Many of them will never use a toilet unassisted…. We have to recognize we are doing this to our children, and we need to put an end to it.”
    4. (RFK Cont’d) Current studies show that nearly 80% of autism can be attributed to genetic factors. Recent increases in diagnosis and visibility are due to the reclassification of autism as a spectrum disorder, better screening, diagnostic, and support tools, and in-community living over institutionalization.

      RFK’s remarks rang false for many autistic people and their families who live full and meaningful lives (including autistic adults who pay taxes).

      Even in the case of high support needs individuals, no human’s value should be calculated by their monetary input into society. This is a direct regurgitation of eugenic rhetoric used throughout history to forcibly sterilize and murder disabled people, notably the Germans’ labeling of “useless eaters” as “drain” on society in the lead-up to murdering 300,000+ disabled people.
    5. HHS fallout reveals loss of Advisory Committee on Heritable Diseases in Newborns and Children (ACHDNC). The latest HHS cuts include ACHDNC, which helped identify which genetic screenings should be available for newborns and children, and standardize the process across all states.

      Without federal guidance and funding, states may or may not provide screenings, meaning that there will be delays and missed opportunities for early intervention in children with those conditions. Many of the conditions are rare, so families might not even know what to look for or ask their doctors about.

      The move is at odds with RFK’s professed desire to ameliorate “children’s suffering” in his remarks on autism.
    6. More HHS fallout. In addition to departments and programs noted in previous weeks, others continue to be endangered by the vast staffing cuts enacted across the department.

      The FDA announced yesterday their plan to remove their food safety inspection programs due staffing constraints. The risk of foodborne illness hurts everyone, but can be deadly for children, the elderly, the chronically ill, immunocompromised, and pregnant people. Certain foodborne illness, like listeria, also cause stillbirth.

      Due to the $11 billion in CDC funding cuts, many long-COVID education and research projects at the state-level have been forced to make drastic cuts or close completely. Researchers believe approximately 6 in 100 people develop a post-covid medical condition.
    7. HHS issues “clarification” regarding gender dysphoria in Section 504’s Final Rule. RFK Jr. issued a clarification this week, noting that the mention of gender dysphoria in the preamble of Final Rule is not actually an enforceable part of Section 504, as opponents of the suit have pointed out since the initial filing of Texas v. Becerra.

      However, precedent has been established for gender dysphoria being a protected condition under the ADA via other recent court decisions like Williams v. Kincaid.

      It’s unclear what this statement regarding Final Rule will mean for Texas v. Becerra, which remains ongoing.
    8. Texas v. Becerra lawsuit continues. Attorneys General continue to use transphobic rhetoric to attack Final Rule and Section 504, despite recent statements from HHS.

      Participants continue to say they do not want to dismantle disabled people’s rights, but have not revoked the original filing, which explicitly asks for 504 to be declared unconstitutional (p 37-42).

      504 protects disabled people’s rights in all spaces that receive federal funding, but could have major implications in conjunction with rescinding of ADA guidance, and the uncertain future of DoEd. The next update is due in the coming days.
    9. Local: Utah’s SB199 violates the ADA, due process. Late last month the Governor of Utah signed SB199, setting up a separate guardianship process for adults with “severe” disabilities.

      Guardianship protocol already exists in UT, but the new set-up allows people to circumvent due process if a doctor declares a person’s disability “severe.”

      Some disabled people benefit from guardianship arrangements, but all people have a right to due process, and the categorization of “severe” is vague.

      The ACLU is currently attempting to block the bill as a violation of one’s right to due process and the ADA.
    10. Do not comply in advance (good news). Due to pending legal action over McMahon’s DoEd issued directive to withhold funding from schools pending receipt of their anti-DEI loyalty pledge, a judge ordered that schools do not need to sign any certifications until at least April 24, after the legality of the pledge is assessed. Previously, the directive required school leadership to sign within 10 days.

      So far VT, MA, CT, NY DE, PA, MI, WI, IL, MN, CO, UT, OR, WA, CA, officials have declined to sign, while other states have declared their intent to sign or are still in review. See the full map here.

  • Week 12 Update

    Week 12 Update

    1. House passes budget framework, paving the way for deep social cuts. The House passed the budget framework that paves the way for Trump’s desired budget, including trillions in tax cuts for rich people, increased defense spending, increased spending autonomy for the President, weakening social security, and an estimated $880 billion in cuts to Medicaid.
      The House and Senate must now work to turn their resolutions into actual legislative text, which will reveal the minute breakdown of their spending plan and cuts. This is typically a months-long process.
    2. Markets roil as Trump plays with global tariffs, threatens more. Trump issued tariffs on multiple countries in a questionably legal process this week, promptly tanking the global market. He paused some of the tariffs for 90 days due to instability, but kept a tax at over 100% on goods from China, who also levied their own tariffs. (Update: as of noon on 4/12, Trump also paused tariffs on electronics like smartphones and computers.)

      Tariff costs are passed down to the buyer, meaning further hikes in a market where food and basics prices are already soaring. This will be a hardship for all Americans, but especially those already struggling with food insecurity, and/or those on a fixed income.

      Trump also announced tariffs on pharmaceutical imports to be implemented “shortly,” with no details yet on which medications will be affected. Medical device and equipment prices are already expected to rise due to current tariffs.
    3. HHS fallout reveals more disability-centric programs lost. Massive cuts at the CDC’s National Center on Birth Defects and Developmental Disabilities last week left advocates reeling. Now the cuts are coming clear:

      EHDI programming for universal newborn hearing screenings has been eliminated. States have received some funding in 2025, but may not receive the rest.

      The CDC partnership with the Special Olympics has also been eliminated. Trump and DeVos first tried to defund the program in 2017. (4/12, clarifying note: The Special Olympics funding and oversight primarily came from OSERS in the Dept of Ed, but those employees were also laid off in earlier an earlier RIF).

      A department dedicated to sickle cell research is gone.

      The team for national data collection on adults with cognitive disabilities is gone, just before a key report about the rise in cognitive disability in young people was to be released. Some say it’s being blocked so RFK can bury evidence contradicting his own team’s theories about “autism’s origins,” which he’s promised to “reveal” by September.
    4. White House Press Secretary says the administration is seeking a “legal” pathway for deporting US citizens. White House press secretary Leavitt mentioned this week that the administration was looking into whether there is a legal pathway to deport US citizens. (There’s not!)

      Leavitt said the move would only be exercised on “criminals” who commit “heinous” crimes. However, that the DOJ has already been stripping students of their visas for protests and other thought crimes, and 75% of the immigrants who were illegally deported to El Salvador have no criminal record suggest they will continue to use their power for show against anyone they want.

      Legal scholars and historians fear the move will be used to strip the citizenship and/or detain anyone “undesirable,” a frightening a echo from 1930s Germany’s stripping of citizenship from Jewish people and others, the 1940s US internment of Japanese people, and other war crimes.
    5. House passes “Safeguard American Voter Eligibility Act” (SAVE Act). The proposed law, which will require people to present proof of citizenship in-person in order to register to vote, passed the House this week, including votes from for Democratic representatives.

      One major concern is that women who changed their name due to marriage won’t be able to use their birth certificates for proof of citizenship, since their surnames no longer match. An amendment was suggested to remedy this, but it was denied.

      People with any name different than what’s issued on their birth certificate will need a passport to register, and everyone will need to present this proof in-person. 50% of Americans have no passport.

      SAVE would place undue hardship and expense, and restrict the right to vote of the elderly, disabled, women and trans folks, those living rurally and more.

      The bill is likely to be voted down in the Senate, but it is still worth calling about.
    6. DOGE accesses Social Security database, falsely begins declaring some recipients “dead” to stop payments. DOGE has shown their inability to understand basic information stored within the SSA’s database over the past months, in part because it is written in an archaic coding language. Previously DOGE said they would rewrite the code, but that is a long-term project.

      In the interim, DOGE has declared some people dead as a way of removing them from the payment system. This has largely attacked immigrants, but some US citizens were also placed into the “death master file.”

      Beyond stopping social security payments, falsely declaring someone dead will have massive implications on their ability to move through the world, may cut access to their credit cards and more. SSA employees who tried to stop DOGE were ejected from the building.
    7. Texas v. Becerra lawsuit continues. Attorneys General continue to use transphobic rhetoric to attack Final Rule and Section 504.

      Participants continue to say they do not want to dismantle disabled people’s rights, but have not revoked the original filing, which explicitly asks for 504 to be declared unconstitutional (p 37-42).

      504 protects disabled people’s rights in all spaces that receive federal funding, but could have major implications in conjunction with rescinding of ADA guidance, and the uncertain future of DoEd. The next update is due in the coming days.
    8. Do not comply in advance (good news). Due to pending legal action over McMahon’s DoEd issued directive to withhold funding from schools pending receipt of their anti-DEI loyalty pledge, a judge ordered that schools do not need to sign any certifications until at least April 24, after the legality of the pledge is assessed.

      Previously, the directive required school leadership to sign within 10 days.

      So far NY, MA, PA, MI, WI, IL, MN, CO, OR, and WA officials have declined to sign, while other states have declared their intent to sign or are still in review. (full map of states’ declared intent)

      Action:
      Share this info. Disability is often lost in mainstream coverage.

      Call your Representative and tell them to intervene on behalf of the Dept of Education, SSA and HHS regarding illegal layoffs.

      Call your Senator and tell them to vote NO on SAVE and any budget cuts to Medicaid.

      Contact your school board and state’s education officials, and tell them not to comply with McMahon’s baseless anti-DEI directive.

      If your state is involved, contact your Attorney General and ask them to withdraw from Texas v. Beccera. Tell them you stand in solidarity with disabled people, and trans folks.

      Consider how to move toward creative acts of mutual aid, local protest and growing awareness, including offline materials. Make flyers! Warn your neighbors in the presence of ICE. If able, donate or volunteer with your local food pantry or library.

  • Week 11 Update

    Week 11 Update

    1. More HHS layoffs gut public health and research. HHS fired an additional 10,000 workers this week, shuttering entire departments, ending grants and cutting spending by an additional third across the board.

      The closures will impact every American’s safety from infectious disease, foodborne illness, worker safety, HIV, STI and TB programs, maternal health, and vast amounts of research.

      Disabled-specific closures include the Administration for Community Living, the CDC’s Office of Health Equity, cuts to HRSA, and several subdivisions of the National Center on Birth Defects and Developmental Disabilities.
      For the full list of HHS departments cut, see this running list.
    2. Economy in freefall as Trump and DOGE slash safety nets. On Wednesday, all Low Income Heat and Energy Assistance Program (LIHEAP) staff were fired. The program helps struggling families with utility bills. Many food banks also reported not receiving expected deliveries of food due to more cuts from the USDA, in addition to the $1 billion in cuts previously announced, though the funding had already been allocated.

      This comes as the stock market freefalls in the wake of Trump’s latest tariff plan, prices continue to rise, the GOP targets Medicaid, dismantles public education and libraries, and as DOGE attacks social security as a “ponzi scheme” and threatens to crash the system by recoding the database.
    3. Deaf students and researchers lose programs, funding, especially in STEM. Cuts at the NIH this week obliterated programming for deaf people in STEM at the undergrad, graduate, and post doc levels. The RISE and BRIDGE programs out of NTID were impacted, as well as individuals’ postdoc funding.

      Gallaudet’s Center for Black Deaf Studies is imperiled by the termination of it’s founder Dr. Joseph Hill’s NEH grant.

      The University of Minnesota also shut down their deaf studies program this week, midsemester with no warning– the reason is unclear.

      Removing deaf (or culturally-competent) professionals will have a variety of educational and employment impacts, and will allow ableism to run unchecked through deaf-related research.
    4. Kidnapped Rümeysa Öztürk suffers asthma attacks in ICE detention, ICE withholds medication. Öztürk, a Turkish PhD student and former Fulbright Scholar, was taken off the street by plainclothes officers in March, likely for having co-written an op-ed in her school newspaper that criticized the school’s response to Gaza-related protests.

      Öztürk was being illegally detained in Louisiana, where she suffered several asthma attacks and was denied her medication, one of many dangerous conditions for the chronically ill, disabled, and everyone, inside these prisons. In a hearing Thursday, a judge blocked the DOJ’s attempt to deport Öztürk, and moved her petition to be heard in VT (instead of LA).Öztürk has not been charged with a crime.
    5. DoEd threatens to revoke funding from schools who don’t sign an Anti-DEI loyalty pledge. DoEd issued a letter to state education leaders across the country, threatening to withhold funding unless schools eliminate anything that could be construed as “DEI” programming. The letter asked administrators to sign a document promising their adherence to anti-DEI guidance within 10 days.

      The directive throws confusion on the administration’s attempts and promises to dismantle DoEd. It’s unclear who will enforce the directive or distribute the funding, which DoEd’s acting assistant Civil Rights secretary called a “privilege,” but is actually taxpayers’ money.

      Disabled and multiply marginalized students, particularly those in rural and low income districts, will suffer most from a loss of Title 1 and other funding.
    6. Texas v Becerra lawsuit continues. Attorneys General continue to use transphobic rhetoric to attack Final Rule and Section 504. Participants continue to say they do not want to dismantle disabled people’s rights, but have not revoked the original filing, which explicitly asks for 504 to be declared unconstitutional (p 37-42).

      504 protects disabled people’s rights in all spaces that receive federal funding, but could have major implications in conjunction with rescinding of ADA guidance, and the uncertain future of DoEd. The next update is due in the coming days.
    7. Early Hearing detection and intervention programs impacted by CDC cuts. Federal EHDI programming gave funding and resources to states to conduct universal newborn hearing screenings, and support deaf and hard-of-hearing babies and their families. Full impacts are still unclear, but these workers were housed at the CDC’s NCBDDD, which saw massive cuts this week. Maternal and Infant Health divisions elsewhere in HHS also saw cuts that may impact EHDI funding.

      Without universal hearing screenings for early detection, d/hh children will be at higher risk for language deprivation syndrome–when incomplete access to a first language before approx. age 5, causes pervasive social, emotional, educational and cognitive damage.
    8. Local: Several school districts are announcing the removal of special ed programs and students. Without an OSEP director and with the DoEd civil rights division slashed, it’s unclear if there is any recourse for families.

      Two districts who made headlines are the South Range Local District, OH, who told 7th and 8th graders with IEPs not to return next year due to “staffing issues,” and Dysart Unified Schools, who notified families they were shuttering their high school students’ special ed program, making plans to send them to a different school without family consultation.

      This trend is likely to continue without DoEd to enforce IDEA, the law that guarantees disabled children’s rights to K-12 education.
    9. Do not comply in advance (good news). Immediately after McMahon’s DoEd issued the directive to withhold funding from schools pending receipt of their anti-DEI loyalty pledge, the New York state Dept. of Education replied forcefully declaring that they would not comply, citing a lack of legal standing for the move.

      The Mayor of Chicago also threatened that the city would sue the if funding is withheld. Other cities and towns are likely to follow.

    Take Action:

    Share this info. Disability is often lost in mainstream coverage.

    Call your Representative and tell them to intervene on behalf of the Dept of Education and HHS regarding illegal layoffs.

    Contact your school board and state’s education officials, and tell them not to comply with McMahon’s baseless anti-DEI directive.

    If your state is involved, contact your Attorney General and ask them to withdraw from Texas v. Beccera. Tell them you stand in solidarity with disabled people, and trans folks.

    Attend one of the nationwide protests today, Saturday, 5 April if able. Wear a mask!

    Consider how to move toward creative acts of mutual aid, local protest and growing awareness, including offline materials. Make flyers! Warn your neighbors in the presence of ICE. If able, donate or volunteer with your local food pantry or library.