- The Dept of Education’s proposed 2026 budget released. The proposed DoEd budget was released this week, confirming a shift from IDEA formula grants (calculated by state need, with specific requirements to be used for special ed.) to block grant format. States would no longer be required to use the money for special ed.
Proposed program cuts for 2026: Preschool grants, State Personnel Development, Technical Assistance teams, SpEd. Personnel Preparation Program, Parent Information Centers, Educational Technology Media and Materials program, Client Assistant State Grants, several training and Supported Employment state grant programs, the Protection and Advocacy of Individual Rights, Adult Education State grants. These are only the special ed programs cut. Many more have also been defunded.
Bright spots: Funding for the Special Olympics, as well as the American Printing House for the Blind, NTID, Gallaudet University, Helen Keller National Center for DeafBlind, and Independent Living Services for Older Blind Individuals has been slated at the same rate for 2026. This is good news, and a departure from stated plans in Project 2025, which proposed defunding these programs.
The budget also proposes slight increases in funding to both the overall special education and Vocational Rehabilitation budgets. However, these increases will not be enough to offset the programs in and outside of special ed. departments that have been defunded.
The full DoED 2026 budget proposal is available here. - HHS Budget Proposal Released: The proposed HHS budget continues ahead with plans for deep cuts across the department, especially in the NIH, CDC and Administration for Children Families and Communities. HHS department cuts sought total over $32 billion.
Specific to the disability community, the ACL’s University Centers for Excellence in Developmental Disabilities, Chronic Disease Self-Management Education, Limb Loss and Paralysis Resource Centers, Voting Access for People with Disabilities, and the White House Conference on Aging are all proposed cuts.
Bright spots: The new proposal walks back some of the proposed Administration for Community Living (ACL) eliminations. These programs remain funded in the current proposal: Councils on Developmental Disabilities, Protection and Advocacy systems, the Long-term care ombudsman program, National Institute on Disability Independent Living and Rehabilitative Research (NIDILRR), Lifespan Respite Care Program, and State Health Insurance Program (SHIP), among others.
Instead of splitting the ACL’s programs across three different agencies as originally be proposed, the programs will move to the Administration for Children, Families and Communities. (This is good news, but remember deep budget cuts to the ACFC are also proposed)
The Dept of Health and Human Services proposed 2026 budget is available in full here. - MAHA Commission Report Cites Sources that Don’t exist: Last week, the commission released a report declaring a childhood “chronic disease crisis” in the US, identifying poor diet, chemicals, chronic stress, lack of physical activity, and “overmedicalization” as driving causes. The report also questioned vaccine safety.
In the days since, it’s become clear that many of the sources cited do not exist.
In addition to making the Commission’s work untrustworthy due to lack of peer-reviewed evidence, fake sources are hallmark of AI chatbots like ChatGPT, who “hallucinate” sources by putting words and names together that sound true, but aren’t real. - CDC Defies RFK, Keeping covid vaccinations on childhood schedule: Last week, The FDA announced a plan to limit access to COVID boosters, restricting them to people over 65 or with underlying health conditions only. RFK also asked specifically that covid vaccines be left off the childhood vaccine schedule. Considering RFK Jr’s profitable ties to antivax organizations, many see this as the first step in limiting overall access to vaccines.
This week, the CDC went against RFK’s statement, releasing its vaccine schedule including recommendations for covid vaccination for all children. - Deaf schools under threat as state budgets compensate for DoEd cuts: Bracing for a federal budget that eliminates nearly $300 billion in education funding, some states are taking advantage of their expected freedom under the block grant system and cutting deaf school budgets.
The New Jersey School for the Deaf (MKSD) saw their residential program completely removed from the governor’s proposed 2026 budget.
Indiana School for the Deaf and California School for the Deaf–Fremont are also experiencing budgetary issues. Indiana seeks to reallocate money previously for ISD toward general public education, while CSD Fremont struggles to maintain appropriate funding for cost-of-living in a gentrified Silicon Valley area. - NAD Sues White House to return ASL interpreters to press briefings: In keeping with eugenic rhetoric, various GOP influencers have shown particular hostility toward ASL interpreters in recent months, ever since Charlie Kirk and Chris Rufo attacked their existence at emergency briefings for the LA Fires, with Rufo calling them “wild human gesticulators”.
Upon taking office, the Trump administration quickly removed the WH accessibility page and all ASL content, and fired the WH ASL interpreter, as part of other “anti-DEIA” initiatives.
The NAD is now suing for the return of an interpreter to WH press briefings. The organization filed and won a similar suit during Trump 1.0, in order to access the emergency covid-related briefings. - Musk out, Project 2025 Writer up: Elon Musk made an exit from the White House this week after a tanking Tesla stock, reports of heavy illegal drug use, and economic models showing that tens of thousands of people, most of them children, have been killed by his pet project–the illegal closure of USAID. Most of the deaths have resulted from malnutrition and lack of oral-rehydration medication for patients with diarrhea, two program areas hit quickest by the loss of funds.
Russel Vought, a self-proclaimed “Christian Nationalist” and head writer for Project 2025, is poised to take over Musk’s work. It’s likely that he’ll be less flashy, and more effective, than Elon in the position. - Hickson v. St. David’s Healthcare Partnership poses new threat to ADA/504: Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.
The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.
Action items:
Share this info! Disability is often lost in mainstream coverage.
Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.
Call your state representative and tell them to include deaf schools in their budgets. You can text NJ Governor Phil Murphy at 732-605-5455
If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting various legal challenges.
Contact medical providers requesting they do not share yours or your child’s autism diagnosis or records with the government registry. Letter template available here.
Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.
Category: Weekly Update
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Week 19 Updates
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Week 18 Updates
- House passes budget bill containing deep cuts to Medicaid, SNAP, Dept. of Ed. 215 Republican Representatives voted for Trump’s “Big Beautiful Bill,” advancing plans to cut Medicaid/care, SNAP, HUD and education funding in order to up DHS spending and extend tax breaks to the ultra-wealthy.
Medicaid: adds work requirements, increases “eligibility checks,” and cuts funds.
SNAP: Raises age so recipients up to 64 must meet work requirements, cuts funds.
DoED: cuts funds and shifts them to block grant format. Exact appropriations numbers for DoEd and others are not expected to be available until July (per internal sources).
The bill heads to the Senate, where it needs 51 votes to pass. Some GOP Senators have said they won’t vote for Medicaid cuts, while others seek even deeper cuts. A failed vote will send the bill back to the House. - Budget bans gender-affirming healthcare for people on Medicaid. As part of the budget bill, the House added a provision banning gender-affirming care for those using Medicaid programs. Originally the ban had only been for minors, but has now been extended to all ages.
The ban also extends to plans sold on the marketplace under the Affordable Care Act (ACA). This is likely to face legal challenges as many states have already prohibited plans from refusing care to trans people.
Studies estimate that about 1 in 4 trans people rely on Medicaid coverage. Nearly half of trans people also have a disability(1 , 2). - Dept. of Ed updates: On Thursday, a MA judge blocked Trump’s attempt to close DoED, including the executive order to McMahon to facilitate the department’s closure, and the mass firings conducted in March.
The judge ordered that those employees be reinstated, and underscored that closing DoEd would require an act of Congress. The administration has already filed an appeal.
This is good news, but the budget bill still contains massive funding cuts, shifting remaining dollars to voucher programs and block grants that have no enforcement mechanisms. States can use funds previously for specific programs like IDEA for whatever they want, leaving students with IEP/504s at the whim of districts. If IEPS are not followed, its unknown who, if anyone, families can turn to for support. - MAHA commission report skews focus, targets vaccines. RFK Jr’s MAHA commission released a report on what it called the childhood “chronic disease crisis” in the US, identifying poor diet, environmental chemicals, chronic stress, lack of physical activity, and “overmedicalization” as driving causes. The report also questions vaccine safety.
The report does not address socio-economic factors that may contribute to children’s health, like poverty, or firearm or motor vehicle related deaths. Injury-related deaths account for 60% of deaths for children under 18.
The commission is supposed to present a strategy for addressing childhood disease in August. However critics say budget and personnel cuts at HHS undermine the commission’s ability to meaningfully implement a plan, or even track data. - FDA Seeks to restrict access to covid vaccines: The FDA announced a plan to limit access to COVID boosters, reversing previous policy. If implemented, COVID vaccines would be restricted to people over 65 or with underlying health conditions only.
The FDA said manufacturers of COVID boosters seeking broader distribution to younger people would need to fund and conduct placebo-controlled trials, a lengthy process that would render each version of the vaccine useless given the rate of mutation.
Considering RFK Jr’s profitable ties to antivax organizations, many see this as the first step in limiting overall access to vaccines. - Texas vs Kennedy updates: Thanks in large part to disabled organizers, Count 3 of the original filing, (formerly Texas v. Becerra) “Section 504 is Unconstitutional” has been withdrawn. This is great news!
BUT, the lawsuit continues to attack Final Rule, important updates to 504 guidance re: 21st century technology (telehealth, websites), pandemic-era healthcare (ventilator rationing), and protecting disabled people’s rights to live in community instead of being forced into institutions.
Kennedy issued a “clarification” weeks ago noting mention of gender dysphoria in the preamble is not an enforceable part of the law, so the transphobic framing against Final Rule is now moot. - Hicks vs St David’s Healthcare Partnership poses threat to ADA/504. Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.
The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.
Action:
Share this info! Disability is often lost in mainstream coverage.
Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.
Leave a public comment with DoED saying no to funding cuts and block grants. They are required to read and log them!
If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting various legal battles.
Contact medical providers requesting they do not share yours or your child’s autism diagnosis or records with the government registry. Letter template available here.
Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.
- House passes budget bill containing deep cuts to Medicaid, SNAP, Dept. of Ed. 215 Republican Representatives voted for Trump’s “Big Beautiful Bill,” advancing plans to cut Medicaid/care, SNAP, HUD and education funding in order to up DHS spending and extend tax breaks to the ultra-wealthy.
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Week 14 Update
- HHS announces plan to build a registry of autistic people. This week, the HHS announced plans to use private health data, from medical records down to wearable smart tech, to create a government registry of autistic people. The announcement sparked privacy concerns and comparisons to the 1939 registry for disabled children as part of T4, a program for the mass murder of 300K+ disabled people across occupied Europe.
Several state-level autism databases already exist for research and resource purposes, as do other condition-specific registries; however, participation in those is voluntary.
Limited reporting Friday stated that due to public outcry, the NIH is walking back registry plans and investing in other unspecified research, but nothing official from RFK yet (as of late Friday, 4/25).
Update: as of 4/26, reports of an emailed statement from an unnamed HHS official are here. The email states that there will be no “registry” and instead researchers will draw from limited data sets. - Actual autism-related research defunded. In last week’s diatribe against autistic people, RFK Jr. had vowed to find the cause of autism by September. NIH later moved back the timeline. However, other grants for longstanding autism research have been cut, including:
National Science Foundation grants featuring the words “accessibility” and “inclusion,” like one for the Frist Center for Autism and Innovation, which included work by autistic scholars.
The federal government’s Autism Research Program (ARP) omitted from 2025 appropriations.
Other NIH grants and programs continue to be delayed and cut as remaining employees parse through unfinished projects after many workers have been laid off. - RFK Jr. expands eugenic hit list, says disabilities are, “bankrupting our nation.” RFK’s quote: “Neurological disorders–ADD, ADHD, speech delay, language delay, tics, Tourette’s syndrome, narcolepsy, ASD ….All these are injuries I never heard of when I was a kid… There was $0 spent in this country treating chronic disease when my uncle was President. Today it’s $1.8 T annually. It’s bankrupting our nation….juvenile diabetes, rheumatoid arthritis, lupus, Crohn’s disease, were just unknown when I was a kid.”
RFK also said the diagnosis uptick endangers the nation because fewer qualify for military service.
Most conditions listed were discovered at the turn of the 20th century or before. However, disabled people were often institutionalized or lobotomized, decreasing their visibility, (especially in rich people circles like RFK’s).
Disabled people “draining society” is a eugenic talking point, and The word “injury” to describe disability and autism is also an antivax dog whistle.
His press conference was supposed to be about banning synthetic food dyes, which he did not do. - DOGE already has access to sensitive HHS data. While autistic people and allies rightfully sounded the alarm on the invasion of privacy that a national autism registry could bring, DOGE already has access to at least 19 of HHS’s systems, some of which contain sensitive information, and typically require specific specialized training before use.
Some of the systems are: Centers for Medicaid and Medicare Services (CMS, CALM), CMS’s Integrated Data Repository Cloud (contains patient info), several grant processing and personnel management systems, the Unaccompanied Alien Children portal, and accounting and payment systems across HHS, NIH, and CDC. - Supreme Court to hear case that could gut ADA/504 protections. Next week, SCOTUS will hear arguments related to the case A.J.T. vs. Osseo Area Schools. The case examines whether a disabled person must prove a party acted, “in bad faith or gross misjudgment” to claim their rights were violated.
The case, about accommodations for a disabled student, was originally narrow in scope and focused in K-12 ed, but the most recent brief makes clear the intent will be to apply the interpretation to the ADA and Rehabilitation Act more broadly.
Having to prove malicious intent in order to access basic accommodations will further gut the ADA/504 in an already hostile DOJ oversight. Does this building not have a ramp? Well, as long as they aren’t doing it to be mean! *shrug*….. - Executive Order, “Reinstating Common Sense Discipline in Schools” From the order: “The Federal Government will no longer tolerate known risks to children’s safety and well-being in the classroom that result from the application of school discipline based on discriminatory and unlawful ‘equity’ ideology.”
The White House seeks to roll back trauma-informed and anti-racist educational practices currently in place to address disparities in the biased application of disciplinary policy (e.g. children of color getting punished more frequently and harshly for the same behavior as white children.)
The removal of equitable discipline practices will be dangerous for children of color, disabled children, and especially those at the intersection of those identities. - Deaf and Disability Studies programs shutter while Gallaudet begins layoffs.
Across the country, deaf education TOD programs, and deaf/ disability cultural programs are being shut down. The deaf ed programs have likely lost funding due to cuts at the Dept of Ed’s Office of Special Education, while cultural “area” studies have been targeted by a variety of Trump’s anti-DEIA orders.
Deaf Education programs cut: University of Minnesota–Duluth, Utah State University. Deaf ed at Columbia University Teacher’s College has also been defunded through the Trump takeover there.
Deaf Studies: University of Maryland–College Park, University of Montevallo, University of Nebraska, Ithaca College.
Disability Studies: University of Toledo
ASL Interpreting Programs: Columbia College–Chicago, University of Texas–Houston
Gallaudet also announced layoffs on the executive team and comms office, while others took pay cuts. Gallaudet Pres. Cordano continues to downplay growing concerns about the future of the university without its DoED liaison. - Texas v. Becerra lawsuit continues. Despite recent “clarifications” from HHS about the how mention of gender dysphoria in Final Rule’s preamble is not legally binding, involved parties have not revoked their original filing, which explicitly asks for 504 to be declared unconstitutional (p 37-42).
- 504 protects disabled people’s rights in all spaces that receive federal funding, and would have major implications in conjunction with rescinding of ADA guidance, the uncertain future of DoEd, and a separate suit going before SCOTUS next week.
- A stay has been issued, and parties are now required to update every other month, with the next due June 21st.
- The FBI arrests a sitting judge, Attorney General Bondi threatens more. The FBI arrested WI judge Hannah Dugan on charges of obstruction. They say Dugan allowed an immigrant to use a side door typically only for the jury, in order to avoid detainment by ICE.
US Attorney General Pam Bondi promised that Dugan’s arrest is just the beginning. “We are sending a very strong message today: If you are harboring a fugitive, we don’t care who you are, if you are helping hide one, if you are giving a TdA member guns, anyone who is illegally in this country, we will come after you and we will prosecute you. We will find you.”
The judge was not giving anyone a gun. The immigrant in question had been at the courthouse due to a misdemeanor.
The arrest is a marked turn in the disintegration of Constitutional rule, ushering in an era of ideological-based arrests. - Do not comply in advance (good news). Judges issued a series of blows to Trump’s anti-DEIA agenda within the K-12 sector, with two judges blocking, and one postponing the implementation of various anti-equity policies within public school settings, calling them too vague, and unconstitutional.
The number of school districts and states standing up to the administration on this issue continues to grow, and under forceful pushback, the administration typically folds (see: Harvard). The federal government has never had control over individual states’ or districts’ curriculum choices. - Action: Share this info. Disability is often lost in mainstream coverage.
Call your Representative and continue to make noise about the HHS’s eugenic rhetoric and practices.
Call your Senator and tell them to take meaningful action against illegal deportations and ideological-based arrests.
Contact your school board and state’s education officials, and tell them not to comply with baseless anti-DEI directives. Tell your universities you value deaf and disability studies programs!
If your state is involved, contact your Attorney General and ask them to withdraw from Texas v. Beccera. Tell them you stand in solidarity with disabled people, and trans folks.
Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able, donate or volunteer with your local food pantry or library.
- HHS announces plan to build a registry of autistic people. This week, the HHS announced plans to use private health data, from medical records down to wearable smart tech, to create a government registry of autistic people. The announcement sparked privacy concerns and comparisons to the 1939 registry for disabled children as part of T4, a program for the mass murder of 300K+ disabled people across occupied Europe.
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Week 13 Updates
- White House asks Congress to Eliminate Head Start Funding. The current budget draft eliminates funding for Head Start, which provides early education, meals, and health screenings for pre-k kids. The elimination of Head Start was a stated goal of Project 2025.
Head Start outcomes are extremely successful, showing benefits for children in early literacy, social-emotional skills, health and dental improvements, early intervention for disabilities, and a >90% decrease in the need for family separation and foster care.
Many preschools–which include both public and private programs–who receive the funding were already struggling due to earlier federal freezes and staffing cuts. - US Citizen arrested on ICE hold, while White House flouts SCOTUS rulings and wants expansion of camps for “homegrowns.” Trump met with the President of El Salvador, and the two congratulated themselves on the imprisonment of asylum seekers and legal US residents. Trump remarked that US citizen “homegrown” prisoners would be next.
Despite various judicial rulings, including a unanimous SCOTUS ruling that the administration should facilitate the return of Kilmar Abrego-Garcia, the White House has continued to organize more deportations and posted on X that Garcia will “never return.”
A US-born man was also imprisoned yesterday in Florida due to an ICE hold, even though he presented an authentic US birth certificate. He has since been released.
If the Executive branch does not accept the rulings of the judicial branch, rule of law ceases to exist in the US, paving the way for any and all “undesirables” to be sent to illegal detainment camps. - RFK spouts misinformation and hatred about autistic people. Autistic and disabled organizers, alongside parents and teachers of autistic children were alarmed at RFK Jr’s hateful comments on autism and his department’s plan to find the “environmental causes” of autism by September. His quote: “Autism destroys families, and more importantly, it destroys our greatest resource, which is our children. These are children who should not be suffering like this, These are kids who will never pay taxes, they’ll never hold a job, they’ll never play baseball, they’ll never write a poem, they’ll never go out on a date. Many of them will never use a toilet unassisted…. We have to recognize we are doing this to our children, and we need to put an end to it.”
- (RFK Cont’d) Current studies show that nearly 80% of autism can be attributed to genetic factors. Recent increases in diagnosis and visibility are due to the reclassification of autism as a spectrum disorder, better screening, diagnostic, and support tools, and in-community living over institutionalization.
RFK’s remarks rang false for many autistic people and their families who live full and meaningful lives (including autistic adults who pay taxes).
Even in the case of high support needs individuals, no human’s value should be calculated by their monetary input into society. This is a direct regurgitation of eugenic rhetoric used throughout history to forcibly sterilize and murder disabled people, notably the Germans’ labeling of “useless eaters” as “drain” on society in the lead-up to murdering 300,000+ disabled people. - HHS fallout reveals loss of Advisory Committee on Heritable Diseases in Newborns and Children (ACHDNC). The latest HHS cuts include ACHDNC, which helped identify which genetic screenings should be available for newborns and children, and standardize the process across all states.
Without federal guidance and funding, states may or may not provide screenings, meaning that there will be delays and missed opportunities for early intervention in children with those conditions. Many of the conditions are rare, so families might not even know what to look for or ask their doctors about.
The move is at odds with RFK’s professed desire to ameliorate “children’s suffering” in his remarks on autism. - More HHS fallout. In addition to departments and programs noted in previous weeks, others continue to be endangered by the vast staffing cuts enacted across the department.
The FDA announced yesterday their plan to remove their food safety inspection programs due staffing constraints. The risk of foodborne illness hurts everyone, but can be deadly for children, the elderly, the chronically ill, immunocompromised, and pregnant people. Certain foodborne illness, like listeria, also cause stillbirth.
Due to the $11 billion in CDC funding cuts, many long-COVID education and research projects at the state-level have been forced to make drastic cuts or close completely. Researchers believe approximately 6 in 100 people develop a post-covid medical condition. - HHS issues “clarification” regarding gender dysphoria in Section 504’s Final Rule. RFK Jr. issued a clarification this week, noting that the mention of gender dysphoria in the preamble of Final Rule is not actually an enforceable part of Section 504, as opponents of the suit have pointed out since the initial filing of Texas v. Becerra.
However, precedent has been established for gender dysphoria being a protected condition under the ADA via other recent court decisions like Williams v. Kincaid.
It’s unclear what this statement regarding Final Rule will mean for Texas v. Becerra, which remains ongoing. - Texas v. Becerra lawsuit continues. Attorneys General continue to use transphobic rhetoric to attack Final Rule and Section 504, despite recent statements from HHS.
Participants continue to say they do not want to dismantle disabled people’s rights, but have not revoked the original filing, which explicitly asks for 504 to be declared unconstitutional (p 37-42).
504 protects disabled people’s rights in all spaces that receive federal funding, but could have major implications in conjunction with rescinding of ADA guidance, and the uncertain future of DoEd. The next update is due in the coming days. - Local: Utah’s SB199 violates the ADA, due process. Late last month the Governor of Utah signed SB199, setting up a separate guardianship process for adults with “severe” disabilities.
Guardianship protocol already exists in UT, but the new set-up allows people to circumvent due process if a doctor declares a person’s disability “severe.”
Some disabled people benefit from guardianship arrangements, but all people have a right to due process, and the categorization of “severe” is vague.
The ACLU is currently attempting to block the bill as a violation of one’s right to due process and the ADA. - Do not comply in advance (good news). Due to pending legal action over McMahon’s DoEd issued directive to withhold funding from schools pending receipt of their anti-DEI loyalty pledge, a judge ordered that schools do not need to sign any certifications until at least April 24, after the legality of the pledge is assessed. Previously, the directive required school leadership to sign within 10 days.
So far VT, MA, CT, NY DE, PA, MI, WI, IL, MN, CO, UT, OR, WA, CA, officials have declined to sign, while other states have declared their intent to sign or are still in review. See the full map here.
- White House asks Congress to Eliminate Head Start Funding. The current budget draft eliminates funding for Head Start, which provides early education, meals, and health screenings for pre-k kids. The elimination of Head Start was a stated goal of Project 2025.
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Week 11 Update
- More HHS layoffs gut public health and research. HHS fired an additional 10,000 workers this week, shuttering entire departments, ending grants and cutting spending by an additional third across the board.
The closures will impact every American’s safety from infectious disease, foodborne illness, worker safety, HIV, STI and TB programs, maternal health, and vast amounts of research.
Disabled-specific closures include the Administration for Community Living, the CDC’s Office of Health Equity, cuts to HRSA, and several subdivisions of the National Center on Birth Defects and Developmental Disabilities.
For the full list of HHS departments cut, see this running list. - Economy in freefall as Trump and DOGE slash safety nets. On Wednesday, all Low Income Heat and Energy Assistance Program (LIHEAP) staff were fired. The program helps struggling families with utility bills. Many food banks also reported not receiving expected deliveries of food due to more cuts from the USDA, in addition to the $1 billion in cuts previously announced, though the funding had already been allocated.
This comes as the stock market freefalls in the wake of Trump’s latest tariff plan, prices continue to rise, the GOP targets Medicaid, dismantles public education and libraries, and as DOGE attacks social security as a “ponzi scheme” and threatens to crash the system by recoding the database. - Deaf students and researchers lose programs, funding, especially in STEM. Cuts at the NIH this week obliterated programming for deaf people in STEM at the undergrad, graduate, and post doc levels. The RISE and BRIDGE programs out of NTID were impacted, as well as individuals’ postdoc funding.
Gallaudet’s Center for Black Deaf Studies is imperiled by the termination of it’s founder Dr. Joseph Hill’s NEH grant.
The University of Minnesota also shut down their deaf studies program this week, midsemester with no warning– the reason is unclear.
Removing deaf (or culturally-competent) professionals will have a variety of educational and employment impacts, and will allow ableism to run unchecked through deaf-related research. - Kidnapped Rümeysa Öztürk suffers asthma attacks in ICE detention, ICE withholds medication. Öztürk, a Turkish PhD student and former Fulbright Scholar, was taken off the street by plainclothes officers in March, likely for having co-written an op-ed in her school newspaper that criticized the school’s response to Gaza-related protests.
Öztürk was being illegally detained in Louisiana, where she suffered several asthma attacks and was denied her medication, one of many dangerous conditions for the chronically ill, disabled, and everyone, inside these prisons. In a hearing Thursday, a judge blocked the DOJ’s attempt to deport Öztürk, and moved her petition to be heard in VT (instead of LA).Öztürk has not been charged with a crime. - DoEd threatens to revoke funding from schools who don’t sign an Anti-DEI loyalty pledge. DoEd issued a letter to state education leaders across the country, threatening to withhold funding unless schools eliminate anything that could be construed as “DEI” programming. The letter asked administrators to sign a document promising their adherence to anti-DEI guidance within 10 days.
The directive throws confusion on the administration’s attempts and promises to dismantle DoEd. It’s unclear who will enforce the directive or distribute the funding, which DoEd’s acting assistant Civil Rights secretary called a “privilege,” but is actually taxpayers’ money.
Disabled and multiply marginalized students, particularly those in rural and low income districts, will suffer most from a loss of Title 1 and other funding. - Texas v Becerra lawsuit continues. Attorneys General continue to use transphobic rhetoric to attack Final Rule and Section 504. Participants continue to say they do not want to dismantle disabled people’s rights, but have not revoked the original filing, which explicitly asks for 504 to be declared unconstitutional (p 37-42).
504 protects disabled people’s rights in all spaces that receive federal funding, but could have major implications in conjunction with rescinding of ADA guidance, and the uncertain future of DoEd. The next update is due in the coming days. - Early Hearing detection and intervention programs impacted by CDC cuts. Federal EHDI programming gave funding and resources to states to conduct universal newborn hearing screenings, and support deaf and hard-of-hearing babies and their families. Full impacts are still unclear, but these workers were housed at the CDC’s NCBDDD, which saw massive cuts this week. Maternal and Infant Health divisions elsewhere in HHS also saw cuts that may impact EHDI funding.
Without universal hearing screenings for early detection, d/hh children will be at higher risk for language deprivation syndrome–when incomplete access to a first language before approx. age 5, causes pervasive social, emotional, educational and cognitive damage. - Local: Several school districts are announcing the removal of special ed programs and students. Without an OSEP director and with the DoEd civil rights division slashed, it’s unclear if there is any recourse for families.
Two districts who made headlines are the South Range Local District, OH, who told 7th and 8th graders with IEPs not to return next year due to “staffing issues,” and Dysart Unified Schools, who notified families they were shuttering their high school students’ special ed program, making plans to send them to a different school without family consultation.
This trend is likely to continue without DoEd to enforce IDEA, the law that guarantees disabled children’s rights to K-12 education. - Do not comply in advance (good news). Immediately after McMahon’s DoEd issued the directive to withhold funding from schools pending receipt of their anti-DEI loyalty pledge, the New York state Dept. of Education replied forcefully declaring that they would not comply, citing a lack of legal standing for the move.
The Mayor of Chicago also threatened that the city would sue the if funding is withheld. Other cities and towns are likely to follow.
Take Action:
Share this info. Disability is often lost in mainstream coverage.
Call your Representative and tell them to intervene on behalf of the Dept of Education and HHS regarding illegal layoffs.
Contact your school board and state’s education officials, and tell them not to comply with McMahon’s baseless anti-DEI directive.
If your state is involved, contact your Attorney General and ask them to withdraw from Texas v. Beccera. Tell them you stand in solidarity with disabled people, and trans folks.
Attend one of the nationwide protests today, Saturday, 5 April if able. Wear a mask!
Consider how to move toward creative acts of mutual aid, local protest and growing awareness, including offline materials. Make flyers! Warn your neighbors in the presence of ICE. If able, donate or volunteer with your local food pantry or library.
- More HHS layoffs gut public health and research. HHS fired an additional 10,000 workers this week, shuttering entire departments, ending grants and cutting spending by an additional third across the board.
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Week 7 Updates
- Linda McMahon confirmed, prepares to gut DoED. The Senate confirmed Linda McMahon to her post as Secretary of the Department of Education. Almost immediately she sent out an email to all employees titled, “Our Department’s Final Mission” detailing her desire to emphasize patriotism and vocational skills in American education, while simultaneously dismantling federal oversight. Trump was due to sign an EO aimed at gutting the dept on Thursday, but delayed due to unpopularity. (Keep it up!)
- Musk calls people who receive government assistance the “parasite class.” Musk posted on X referring to people who receive Social Security or government assistance as the “parasite class.” The comment comes as DOGE seeks to gut the Social Security Administration and the GOP sets its sights on Medicaid funding.
Dehumanizing rhetoric, especially referring to people as animals, is Stage 4 in the Ten Stages of Genocide. In the lead up to the Rwandan genocide, the Tutsis were called “cockroaches”; in Germany, Nazis called Jews “vermin,” disabled people “useless eaters,” and more. - Executive Order “Designating English as the Official Language of the US”. The EO declares English the US’s official language and revokes the Clinton EO, “Improving Access to Services for Persons with Limited English Proficiency,” Individual agencies can now choose whether they want to provide materials in other languages.
The changes may have dangerous impacts for those needing medical and legal interpreters, as well as educational impacts for English language learners. Section 504 and the still ADA protect the right to ASL interpreters, but procuring funding may be more complicated, (and the 504 lawsuit even more consequential). - DOGE Takes Aim at Social Security Administration. Workers inside the Social Security Administration (SSA) said DOGE have been controlling their computer access for weeks, including internet access to outside news websites. A new plan aims to cut 12% of the workforce, or about 7,000 people, though more are expected to be driven out by stressors. The SSA workforce was already stretched thin, operating at a 50-year low.
Musk called social security a “Ponzi scheme” and alleged massive fraud. However, American workers pay into Social Security to receive their retirement benefits, and there is no evidence of widespread fraud. 70 million retired and disabled Americans depend on Social Security benefits. They layoffs may cause payment delays and make it harder to access SSA offices, helplines, and more. - More Attacks on Veterans Affairs, Employment. The Department of Veterans Affairs announced a major overhaul this week, with a goal to lay off approximately 80,000 workers. The plan is sure to disrupt veterans’ healthcare, hospitals, mental health services, and other benefits, as well as lay off many veterans in the process–the federal government is also the number one employer of disabled veterans across many agencies.
In discussing the potential layoffs, Alina Habbas, one of the President’s lawyers, said, that those veterans affected may not be “fit to have a job at this moment.” - RFK Jr. waffles on vaccines as US Sees 2nd measles death. RFK Jr. Released an Op-Ed on Fox News that appeared to encourage people to get vaccinated against the measles as the outbreak surged in Texas and cases appeared on the east coast. Others say RFK’s views are unchanged, and his mention of “therapeutic treatments” in addition to vaccines is a dog-whistle to antivax followers.
Under Kennedy, the CDC announced a new large-scale study into vaccines and autism on Friday. The topic has already been thoroughly studied, with no link found. Increased rates of autism in children are attributed to better screenings. - Eugenics and “Race Science” conference to convene in Texas. The 2nd annual “Natal Conference” will take place at University of Texas at Austin’s AT&T Conference Center on March 27-28th. “Natalism” is philosophy that believes in the importance of childbearing for social (or religious) reasons, and thus advocates for a high birthrate.
Eugenics and “race science” are strains of pseudoscience founded in the belief that humanity can be “improved” through selective breeding. Typically, these ideas are used to reinforce racist stereotypes and ableism. Various far-right and neofascist influencers are slated to speak. Musk has also been invited. - Texas v. Beccera lawsuit continues. Attorneys General continue to use transphobic rhetoric to attack Final Rule and Section 504. Participants continue to say they do not want to dismantle disabled people’s rights, but have not revoked the original filing, which explicitly asks for 504 to be declared unconstitutional (p 37-42).
504 protects disabled people’s rights in all spaces that receive federal funding, but could have major implications for those needing interpreters in hospitals in light of the new English EO. The next update is due in April.
Action Items
Share this info. Disability is often lost in mainstream coverage.- Call your Rep. and tell them NO cuts to Medicaid/SNAP and Veterans’ care, and YES to the Dept. of Education Protection Act.
- Call your Rep. and Senators and remind them that Social Security is *our* money, not Musk’s.
- Protest U of T’s hosting of the upcoming racist and eugenicist conference.
- Call the 10 Dems who voted with GOP to censure Black disabled Rep. Al Green on their cowardice.
- Make sure your vaccines are up to date, especially if you may have received an inactive virus version of the MMR vaccine from 1963-67, which was found to be ineffective.
- If your state is involved, contact your Attorney General and ask them to withdraw from Texas v. Beccera. Tell them you stand in solidarity with disabled people, and trans folks.
- Linda McMahon confirmed, prepares to gut DoED. The Senate confirmed Linda McMahon to her post as Secretary of the Department of Education. Almost immediately she sent out an email to all employees titled, “Our Department’s Final Mission” detailing her desire to emphasize patriotism and vocational skills in American education, while simultaneously dismantling federal oversight. Trump was due to sign an EO aimed at gutting the dept on Thursday, but delayed due to unpopularity. (Keep it up!)
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Week 5 Update
- Linda McMahon’s DoED Nomination Advances
- The HELP Committee voted along party lines, advancing Linda McMahon to the full Senate for her confirmation as Secretary of DoED.
- Trump has promised major cuts to the department via Executive Order once McMahon is in place.
- Three active bills to abolish the department are also currently in Congress.
- DoED funds and oversees a variety of disability-specific programs and grants, and protects disabled students rights to attend public schools. Read our full explainer on DoED here.
- Funding Cuts for DoED Now at $502 Million and Counting
- Cuts to staffing and research grants continue as GOP promises more layoffs
- “Evaluation of Transition Supports for Youth with Disabilities” was one such cut, a program that gave money to states to help support disabled students graduating from high school acquire jobs and transition to independent living
- Mass Layoffs Hit Disabled Veterans Hard
- Over 200,000 federal workers have been laid off since January, More than 15% of the federal workforce is made up of disabled veterans.
- 1000 workers at the Department of Veterans Affairs were also fired this week, making it harder for veterans to access their health and mental healthcare, and other services.
- Texas vs. Beccera Lawsuit on Hold; AGs Refuse to Come Clean about Scope of the Complaint
- On Wednesday, involved parties wrote to the judge asking for more time to evaluate their case, and claiming they did not seek to declare Section 504 unconstitutional.
- The letter still takes aim at Final Rule’s spending guidance for independent living, which could affect disabled people’s rights to live in-community. They also continue to use transphobic rhetoric to attack Final Rule.
- Despite reassurances, the original filing does explicitly ask for 504 to be declared unconstitutional (p 37-42). We also should not make concessions on basic rights for any humans. See all our Texas v. Beccera resources here.
- House Budget Takes Aim at Medicaid, SNAP
- The House presented a budget bill that would require $880 billion in cuts from the Energy and Commerce Committee, who oversees Medicaid. Medicaid provides healthcare for 70 million disabled and low-income Americans,
- On Wednesday, Trump endorsed the bill, after previously saying he wouldn’t touch the program.
- SNAP, the program that provides financial assistance specifically for buying food, is also under threat.
- Executive Order “Ensuring Accountability for All Agencies”
- Consolidates power under the President by taking it away from independent agencies. Says the President has the final say, including budgetary, over all parts of the Executive branch.
- From a disability perspective, the future of the Federal Communications Commission is of concern. The FCC currently oversees and disburses funds for things like closed captions, captioned phone calls and text and video relay.
- This move is a key tenet of Project 2025. Expanding the powers of the President and weakening checks and balances is dangerous for the health of any democracy.
- Threats to Special Education at the State Level
- Indiana HB 1136 appoints state governing boards over local community boards, and targets schools for charter conversion, which could harm disabled students’ services and weaken IEP oversight.
- Alabama State HB197 seeks to “investigate” and fine parents who file complaints under IDEA’s due process procedures, and makes it harder to recover legal fees if a family wins their case.
- See our friends at Fighting for My Voice for a state-level education policy tracker
- Some Good News
- After feedback from advocates, Indiana’s SB473 was revised to include ASL and all language options for deaf children’s early intervention programming. Previously the bill protected spoken language only.
- Connecticut’s State Legislature is expected to approve $40 million in additional funds for special education in a vote next week
Take Action
- Share this info. Disability is often lost in mainstream coverage.
- Call your Senator and ask them to vote NO on the McMahon nomination and protect DoED.
- If your state is involved, contact your Attorney General and ask them to drop out of Texas v. Beccera. Tell them you stand in solidarity with all disabled people, as well as trans folks. If your state isn’t involved, you can still call and ask them to protect Section 504.
- Write/call your Congresspeople and tell them to fight for Medicaid, Medicare, SNAP, and Social Security. Entitlements are taxpayer money!
- Keep an eye on your state legislatures and make sure they are not complying in advance!
#ProtectADA for community sharing, news, letter templates and more
- Linda McMahon’s DoED Nomination Advances


