- RFK Jr. and Trump deliver multiple anti-scientific rants about Tylenol and vaccines in connection to autism. After promising to find the “cause” for autism by September, HHS’s RFK Jr. delivered a series of unhinged press conferences about the dangers of Tylenol. He cited a small and since debunked study that found a slight correlation between Tylenol-use during pregnancy and autism rates of children.
The study was later thrown out— doctors noted an already known risk factor to fetal development is the activation of the maternal immune system. Given that pregnant women’s Tylenol use would overlap with illness, it would be difficult to parse these variables. Later, a much larger sibling study found no correlation between Tylenol use and autism rates.
The latest rants are dangerous and cruel, given that Tylenol is one of the only approved medications for pain and fever relief during pregnancy. Fever during pregnancy is another risk factor for birth defects and other fetal harm. They’re also a grift– one supposed “cure” for the reversal of autism RFK suggests is a B vitamin-derivative supplement, a popular version that comes from a competitor to Tylenol’s parent company, iHerb, of which Dr. Oz is an investor. Oz had previously said he would divest from the company when appointed to his Medicare position, but whether he did is unclear. The FDA reasserted on Twitter/X that only a prescription form of the product is recommended for certain patients following a blood test, but that hasn’t stopped the explosion of promotion and sales across MAHA platforms.
Trump and MAHA also took aim at the administration of Hepatitis B shots, as well as Vitamin K shots, to infants, suggesting the former should be held off until tweendom due to the sexually transmitted nature of the disease. However, victims of permanent liver damage from Hepatitis B are overwhelmingly infants, and Vitamin K prevents brain hemorrhage and death in newborns. Vitamin K does not cross the placenta or into breastmilk efficiently; death from Vitamin K deficiency bleeding is 81 times less likely in those infants who receive the shot. - Republicans leave DC to avoid negotiation on healthcare subsidies, triggering government shutdown. Congress was set to negotiate on a budget bill, but Speaker Johnson sent the Republicans home instead. Democrats had said they would not pass the bill as is, requesting that healthcare subsidies be extended to offset rising costs. Healthcare subsidies not only help people to purchase insurance in the marketplace, but this infusion of money into the system protects everyone from the closure of clinics and hospitals who rely on Medicaid/care and insurance dollars.
The shutdown furloughs many government workers, with others performing essential functions without pay. Experts worry that a prolonged shutdown could also harm the distribution of life-saving services like WIC supplemental nutrition. The last government shutdown was in 2018, also under Trump. - Despite ACIP’s recommendations, several states are still blocking access to covid vaccines without a prescription. Missouri, Georgia, and Louisiana are still preventing people from getting covid vaccines without a prescription, despite recommendations out of the CDC’s immunization committee.
Experts speculate this is because no CDC director has signed off on the recommendations, since Trump fired the CDC director. However, none of the state laws stipulate a CDC signature must be in place for the recommendations to be adopted. - Congress fails to pass extensions–Medicare’s coverage for telehealth speech therapy and audiology services has ended. These services were essential for families especially in rural areas where they may otherwise face multi-hour drives and long waitlists.
- The First Circuit Court of Appeals rules that the Department of Education is allowed to fire half its’ Civil Rights Department staff. The Office of Civil Rights (OCR) inside DoED exists specifically to protect students facing discrimination or those who have experienced sexual assault, and the process of filing a complaint can, in many places, already take years.
Halving the staff essentially removes consequences for perpetrators of racism, ableism, sexism, sexual abuse, and the intersections thereof, and will be devastating to the equitable education and safety of marginalized students. - Department of Education partners with Turning Point, Moms for Liberty to create new “patriotic” history and civics curriculum.
DoEd announced an initiative to create a new history and civics curriculum lead by far-right extremist organizations. The curriculum will likely continue propagate racist erasures of US history and anti-DEIA book bans, two pet projects of the involved groups.
Previously, DoEd was not involved in creating specific curriculum–this decision was left up to individual states and districts.
Public comment on the initiative is now open until October 17. - Good News: Some mental health grants for schools have been restored. McMahon’s Department of Education had previously cut a billion dollars worth of grants geared toward student mental health, but, due to backlash, recently restored $270 million. The restored grants focus on school psychologists, only, and leave out counselors and social workers, but they do serve as proof that backlash and public comment can still be effective.
What to Do:
Get your vaccinations up to date as soon as possible, and ask your state to join a state-level public health collaborative if they haven’t yet.
Hit the streets if you are able. March, attend a town hall, school board meeting, or other local action. Go, but don’t RSVP, to a protest! Consider purchasing a reusable respirator (gas mask) if attending a mass protest, due to recent escalations in use of tear gas and other “less lethal” force at actions.
Protect your neighbors. Warn and record in the presence of ICE. Push your local officials not to collaborate. Write to Apple to tell them their blocking of the ICE Block app is unacceptable capitulation.
Call your representatives and especially your local officials to ensure special education gaps are being filled in your district.
Leave a public comment saying no to forced Turning Point history curriculum in public schools.
Donate to your local food pantry, library, clinics, cash bail funds, or other mutual aid if you can. Or volunteer your time.
Make a plan to vote in upcoming local elections, in person when possible. Down ballot elections matter more than ever.
Move to (more) secure encrypted apps when possible. Think about ways to spread information offline. Make flyers and stickers. Make art.
Tag: HHS
-
Week 36 + 37 Updates
-
Week 25 Updates
1. FEMA ends door to door assistance, leaving elderly and disabled stranded. The Federal Emergency Management Agency (FEMA) has been a target of the Trump administration, with DOGE cutting 20% of its employees and attempting to freeze funds, and Trump repeatedly pushing for disaster response to be a state-level problem.
Experts say a diminished FEMA and National Weather Service made warning and rescue response times slower, leading to more deaths in disasters like the recent Texas floods, which killed over 120.
Due to cuts, FEMA has now stopped door-to-door work in disaster zones, focusing instead on shelters only. However, this potentially leaves the elderly, disabled, and those without transportation stranded.2. Disabled veteran and US Citizen George Reddis detained by ICE, now missing. The 25 year old disabled US Army veteran was working as a security guard on a farm in Camarillo, CA. (video contains auto-captions)Though he is a US citizen, he was taken by ICE.
His family saw news footage of the raid in which agents broke his truck window, pepper sprayed him, pulled him from the vehicle and threw him to the ground before arresting him.
Family haven’t heard from him since the kidnapping, and can’t find where he is being detained. In addition to contacting law enforcement, they are seeking any tips from the public who may have seen where he was taken.
He’s not the first US citizen kidnapped by ICE, and he won’t be the last.3. Concern for disabled immigrant detainees in the face of NQRP, oversight cuts. Funding for the National Qualified Representation program (NQRP), which provides legal aid for immigrants with cognitive disabilities or mental illness was cut in April. Now, as ICE ups indiscriminate arrests, more disabled people are caught in raids with no recourse.
This comes as Homeland Security has gutted other oversight mechanisms, including the Office of Civil Rights and Civil liberties and the ombudsman within the department.
Deaths and reports of injury, assault and neglect within ICE facilities have surged in recent weeks.
More than half of ICE detainees have committed no crimes. Less than 10% have ever been convicted of a violent offense.4. SCOTUS ruling paves the way for more governmental restructuring and layoffs. SCOTUS released a ruling related to the layoffs (RIFs) of multiple agencies, paving the way for more authoritarian governance.
While SCOTUS didn’t comment on the legality of the layoffs specifically, they allowed for restructuring and consolidation of certain powers by the executive branch, which previously required Congressional approval.
The ruling suggests RIF legality can be decided by lower courts, though it’s unclear how this will mesh with the previous ruling that lower courts can’t issue national injunctions, (except in class-actions).
This ruling doesn’t affect the Dept. of Ed. which is a separate case currently waiting on the emergency docket.5. State Dept lays off 1300+ people. The move comes days after SCOTUS’s previously stated ruling, about the consolidation of power within the executive branch.
Experts warn that removing diplomatic expertise at a tense time in international relations can have dangerous national security consequences.
In general, the shrinking of the Department of State’s civil and diplomatic service consolidates power under fewer people, and party loyalists.
The entire DOS accommodations team was among the layoffs.6. HHS blocks access to key services for undocumented immigrants. The Department of Health and Human Services recently reclassified a series of public programs in keeping with Trump’s February Executive Order, an effort to make sure that undocumented immigrants or their families cannot access social services.
These programs include Community Behavioral Health Clinics and Mental Health Services grants, Mental Health and Substance Abuse Disorder Treatment, the Educational and Training Voucher Program, Family Planning programs, Kinship Guardianship Programming, Transition from Homelessness program, and more.
It also includes Head Start –which provides early education, health screenings, and food–to young children.
7. Most people affected by Medicaid cuts don’t know it’s coming. Trump previously said his budget bill wouldn’t cut Medicaid, but deep cuts were passed last week. They don’t go into effect until 2026, and due to local naming conventions, many people don’t even know they will be at risk.
Here is what Medicaid is called in each state, listed alphabetically by state.8. Action items: Share this info! Disability is often lost in mainstream coverage.
Hit the streets if you are able. It’s past due.
Protect your neighbors. Warn and record in the presence of ICE. Push your local officials not to collaborate.
Boycott businesses supporting these policies. Donate to your local food pantry, library, clinics, cash bail funds, or other mutual aid if you can. Or volunteer your time.
Join Project Mail Storm by writing and sending paper letters to government. More info on our site.
Make sure you’re up to date on your vaccines. Ditch the wearable tech.
Consider running for local office or getting involved to support a local candidate through organizing or phone banking–especially progressive primary challengers.
Think about ways to spread information offline. Make flyers and stickers. Make art.
-
Week 14 Update
- HHS announces plan to build a registry of autistic people. This week, the HHS announced plans to use private health data, from medical records down to wearable smart tech, to create a government registry of autistic people. The announcement sparked privacy concerns and comparisons to the 1939 registry for disabled children as part of T4, a program for the mass murder of 300K+ disabled people across occupied Europe.
Several state-level autism databases already exist for research and resource purposes, as do other condition-specific registries; however, participation in those is voluntary.
Limited reporting Friday stated that due to public outcry, the NIH is walking back registry plans and investing in other unspecified research, but nothing official from RFK yet (as of late Friday, 4/25).
Update: as of 4/26, reports of an emailed statement from an unnamed HHS official are here. The email states that there will be no “registry” and instead researchers will draw from limited data sets. - Actual autism-related research defunded. In last week’s diatribe against autistic people, RFK Jr. had vowed to find the cause of autism by September. NIH later moved back the timeline. However, other grants for longstanding autism research have been cut, including:
National Science Foundation grants featuring the words “accessibility” and “inclusion,” like one for the Frist Center for Autism and Innovation, which included work by autistic scholars.
The federal government’s Autism Research Program (ARP) omitted from 2025 appropriations.
Other NIH grants and programs continue to be delayed and cut as remaining employees parse through unfinished projects after many workers have been laid off. - RFK Jr. expands eugenic hit list, says disabilities are, “bankrupting our nation.” RFK’s quote: “Neurological disorders–ADD, ADHD, speech delay, language delay, tics, Tourette’s syndrome, narcolepsy, ASD ….All these are injuries I never heard of when I was a kid… There was $0 spent in this country treating chronic disease when my uncle was President. Today it’s $1.8 T annually. It’s bankrupting our nation….juvenile diabetes, rheumatoid arthritis, lupus, Crohn’s disease, were just unknown when I was a kid.”
RFK also said the diagnosis uptick endangers the nation because fewer qualify for military service.
Most conditions listed were discovered at the turn of the 20th century or before. However, disabled people were often institutionalized or lobotomized, decreasing their visibility, (especially in rich people circles like RFK’s).
Disabled people “draining society” is a eugenic talking point, and The word “injury” to describe disability and autism is also an antivax dog whistle.
His press conference was supposed to be about banning synthetic food dyes, which he did not do. - DOGE already has access to sensitive HHS data. While autistic people and allies rightfully sounded the alarm on the invasion of privacy that a national autism registry could bring, DOGE already has access to at least 19 of HHS’s systems, some of which contain sensitive information, and typically require specific specialized training before use.
Some of the systems are: Centers for Medicaid and Medicare Services (CMS, CALM), CMS’s Integrated Data Repository Cloud (contains patient info), several grant processing and personnel management systems, the Unaccompanied Alien Children portal, and accounting and payment systems across HHS, NIH, and CDC. - Supreme Court to hear case that could gut ADA/504 protections. Next week, SCOTUS will hear arguments related to the case A.J.T. vs. Osseo Area Schools. The case examines whether a disabled person must prove a party acted, “in bad faith or gross misjudgment” to claim their rights were violated.
The case, about accommodations for a disabled student, was originally narrow in scope and focused in K-12 ed, but the most recent brief makes clear the intent will be to apply the interpretation to the ADA and Rehabilitation Act more broadly.
Having to prove malicious intent in order to access basic accommodations will further gut the ADA/504 in an already hostile DOJ oversight. Does this building not have a ramp? Well, as long as they aren’t doing it to be mean! *shrug*….. - Executive Order, “Reinstating Common Sense Discipline in Schools” From the order: “The Federal Government will no longer tolerate known risks to children’s safety and well-being in the classroom that result from the application of school discipline based on discriminatory and unlawful ‘equity’ ideology.”
The White House seeks to roll back trauma-informed and anti-racist educational practices currently in place to address disparities in the biased application of disciplinary policy (e.g. children of color getting punished more frequently and harshly for the same behavior as white children.)
The removal of equitable discipline practices will be dangerous for children of color, disabled children, and especially those at the intersection of those identities. - Deaf and Disability Studies programs shutter while Gallaudet begins layoffs.
Across the country, deaf education TOD programs, and deaf/ disability cultural programs are being shut down. The deaf ed programs have likely lost funding due to cuts at the Dept of Ed’s Office of Special Education, while cultural “area” studies have been targeted by a variety of Trump’s anti-DEIA orders.
Deaf Education programs cut: University of Minnesota–Duluth, Utah State University. Deaf ed at Columbia University Teacher’s College has also been defunded through the Trump takeover there.
Deaf Studies: University of Maryland–College Park, University of Montevallo, University of Nebraska, Ithaca College.
Disability Studies: University of Toledo
ASL Interpreting Programs: Columbia College–Chicago, University of Texas–Houston
Gallaudet also announced layoffs on the executive team and comms office, while others took pay cuts. Gallaudet Pres. Cordano continues to downplay growing concerns about the future of the university without its DoED liaison. - Texas v. Becerra lawsuit continues. Despite recent “clarifications” from HHS about the how mention of gender dysphoria in Final Rule’s preamble is not legally binding, involved parties have not revoked their original filing, which explicitly asks for 504 to be declared unconstitutional (p 37-42).
- 504 protects disabled people’s rights in all spaces that receive federal funding, and would have major implications in conjunction with rescinding of ADA guidance, the uncertain future of DoEd, and a separate suit going before SCOTUS next week.
- A stay has been issued, and parties are now required to update every other month, with the next due June 21st.
- The FBI arrests a sitting judge, Attorney General Bondi threatens more. The FBI arrested WI judge Hannah Dugan on charges of obstruction. They say Dugan allowed an immigrant to use a side door typically only for the jury, in order to avoid detainment by ICE.
US Attorney General Pam Bondi promised that Dugan’s arrest is just the beginning. “We are sending a very strong message today: If you are harboring a fugitive, we don’t care who you are, if you are helping hide one, if you are giving a TdA member guns, anyone who is illegally in this country, we will come after you and we will prosecute you. We will find you.”
The judge was not giving anyone a gun. The immigrant in question had been at the courthouse due to a misdemeanor.
The arrest is a marked turn in the disintegration of Constitutional rule, ushering in an era of ideological-based arrests. - Do not comply in advance (good news). Judges issued a series of blows to Trump’s anti-DEIA agenda within the K-12 sector, with two judges blocking, and one postponing the implementation of various anti-equity policies within public school settings, calling them too vague, and unconstitutional.
The number of school districts and states standing up to the administration on this issue continues to grow, and under forceful pushback, the administration typically folds (see: Harvard). The federal government has never had control over individual states’ or districts’ curriculum choices. - Action: Share this info. Disability is often lost in mainstream coverage.
Call your Representative and continue to make noise about the HHS’s eugenic rhetoric and practices.
Call your Senator and tell them to take meaningful action against illegal deportations and ideological-based arrests.
Contact your school board and state’s education officials, and tell them not to comply with baseless anti-DEI directives. Tell your universities you value deaf and disability studies programs!
If your state is involved, contact your Attorney General and ask them to withdraw from Texas v. Beccera. Tell them you stand in solidarity with disabled people, and trans folks.
Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able, donate or volunteer with your local food pantry or library.
- HHS announces plan to build a registry of autistic people. This week, the HHS announced plans to use private health data, from medical records down to wearable smart tech, to create a government registry of autistic people. The announcement sparked privacy concerns and comparisons to the 1939 registry for disabled children as part of T4, a program for the mass murder of 300K+ disabled people across occupied Europe.
-
Week 13 Updates
- White House asks Congress to Eliminate Head Start Funding. The current budget draft eliminates funding for Head Start, which provides early education, meals, and health screenings for pre-k kids. The elimination of Head Start was a stated goal of Project 2025.
Head Start outcomes are extremely successful, showing benefits for children in early literacy, social-emotional skills, health and dental improvements, early intervention for disabilities, and a >90% decrease in the need for family separation and foster care.
Many preschools–which include both public and private programs–who receive the funding were already struggling due to earlier federal freezes and staffing cuts. - US Citizen arrested on ICE hold, while White House flouts SCOTUS rulings and wants expansion of camps for “homegrowns.” Trump met with the President of El Salvador, and the two congratulated themselves on the imprisonment of asylum seekers and legal US residents. Trump remarked that US citizen “homegrown” prisoners would be next.
Despite various judicial rulings, including a unanimous SCOTUS ruling that the administration should facilitate the return of Kilmar Abrego-Garcia, the White House has continued to organize more deportations and posted on X that Garcia will “never return.”
A US-born man was also imprisoned yesterday in Florida due to an ICE hold, even though he presented an authentic US birth certificate. He has since been released.
If the Executive branch does not accept the rulings of the judicial branch, rule of law ceases to exist in the US, paving the way for any and all “undesirables” to be sent to illegal detainment camps. - RFK spouts misinformation and hatred about autistic people. Autistic and disabled organizers, alongside parents and teachers of autistic children were alarmed at RFK Jr’s hateful comments on autism and his department’s plan to find the “environmental causes” of autism by September. His quote: “Autism destroys families, and more importantly, it destroys our greatest resource, which is our children. These are children who should not be suffering like this, These are kids who will never pay taxes, they’ll never hold a job, they’ll never play baseball, they’ll never write a poem, they’ll never go out on a date. Many of them will never use a toilet unassisted…. We have to recognize we are doing this to our children, and we need to put an end to it.”
- (RFK Cont’d) Current studies show that nearly 80% of autism can be attributed to genetic factors. Recent increases in diagnosis and visibility are due to the reclassification of autism as a spectrum disorder, better screening, diagnostic, and support tools, and in-community living over institutionalization.
RFK’s remarks rang false for many autistic people and their families who live full and meaningful lives (including autistic adults who pay taxes).
Even in the case of high support needs individuals, no human’s value should be calculated by their monetary input into society. This is a direct regurgitation of eugenic rhetoric used throughout history to forcibly sterilize and murder disabled people, notably the Germans’ labeling of “useless eaters” as “drain” on society in the lead-up to murdering 300,000+ disabled people. - HHS fallout reveals loss of Advisory Committee on Heritable Diseases in Newborns and Children (ACHDNC). The latest HHS cuts include ACHDNC, which helped identify which genetic screenings should be available for newborns and children, and standardize the process across all states.
Without federal guidance and funding, states may or may not provide screenings, meaning that there will be delays and missed opportunities for early intervention in children with those conditions. Many of the conditions are rare, so families might not even know what to look for or ask their doctors about.
The move is at odds with RFK’s professed desire to ameliorate “children’s suffering” in his remarks on autism. - More HHS fallout. In addition to departments and programs noted in previous weeks, others continue to be endangered by the vast staffing cuts enacted across the department.
The FDA announced yesterday their plan to remove their food safety inspection programs due staffing constraints. The risk of foodborne illness hurts everyone, but can be deadly for children, the elderly, the chronically ill, immunocompromised, and pregnant people. Certain foodborne illness, like listeria, also cause stillbirth.
Due to the $11 billion in CDC funding cuts, many long-COVID education and research projects at the state-level have been forced to make drastic cuts or close completely. Researchers believe approximately 6 in 100 people develop a post-covid medical condition. - HHS issues “clarification” regarding gender dysphoria in Section 504’s Final Rule. RFK Jr. issued a clarification this week, noting that the mention of gender dysphoria in the preamble of Final Rule is not actually an enforceable part of Section 504, as opponents of the suit have pointed out since the initial filing of Texas v. Becerra.
However, precedent has been established for gender dysphoria being a protected condition under the ADA via other recent court decisions like Williams v. Kincaid.
It’s unclear what this statement regarding Final Rule will mean for Texas v. Becerra, which remains ongoing. - Texas v. Becerra lawsuit continues. Attorneys General continue to use transphobic rhetoric to attack Final Rule and Section 504, despite recent statements from HHS.
Participants continue to say they do not want to dismantle disabled people’s rights, but have not revoked the original filing, which explicitly asks for 504 to be declared unconstitutional (p 37-42).
504 protects disabled people’s rights in all spaces that receive federal funding, but could have major implications in conjunction with rescinding of ADA guidance, and the uncertain future of DoEd. The next update is due in the coming days. - Local: Utah’s SB199 violates the ADA, due process. Late last month the Governor of Utah signed SB199, setting up a separate guardianship process for adults with “severe” disabilities.
Guardianship protocol already exists in UT, but the new set-up allows people to circumvent due process if a doctor declares a person’s disability “severe.”
Some disabled people benefit from guardianship arrangements, but all people have a right to due process, and the categorization of “severe” is vague.
The ACLU is currently attempting to block the bill as a violation of one’s right to due process and the ADA. - Do not comply in advance (good news). Due to pending legal action over McMahon’s DoEd issued directive to withhold funding from schools pending receipt of their anti-DEI loyalty pledge, a judge ordered that schools do not need to sign any certifications until at least April 24, after the legality of the pledge is assessed. Previously, the directive required school leadership to sign within 10 days.
So far VT, MA, CT, NY DE, PA, MI, WI, IL, MN, CO, UT, OR, WA, CA, officials have declined to sign, while other states have declared their intent to sign or are still in review. See the full map here.
- White House asks Congress to Eliminate Head Start Funding. The current budget draft eliminates funding for Head Start, which provides early education, meals, and health screenings for pre-k kids. The elimination of Head Start was a stated goal of Project 2025.