- The Dept of Education’s proposed 2026 budget released. The proposed DoEd budget was released this week, confirming a shift from IDEA formula grants (calculated by state need, with specific requirements to be used for special ed.) to block grant format. States would no longer be required to use the money for special ed.
Proposed program cuts for 2026: Preschool grants, State Personnel Development, Technical Assistance teams, SpEd. Personnel Preparation Program, Parent Information Centers, Educational Technology Media and Materials program, Client Assistant State Grants, several training and Supported Employment state grant programs, the Protection and Advocacy of Individual Rights, Adult Education State grants. These are only the special ed programs cut. Many more have also been defunded.
Bright spots: Funding for the Special Olympics, as well as the American Printing House for the Blind, NTID, Gallaudet University, Helen Keller National Center for DeafBlind, and Independent Living Services for Older Blind Individuals has been slated at the same rate for 2026. This is good news, and a departure from stated plans in Project 2025, which proposed defunding these programs.
The budget also proposes slight increases in funding to both the overall special education and Vocational Rehabilitation budgets. However, these increases will not be enough to offset the programs in and outside of special ed. departments that have been defunded.
The full DoED 2026 budget proposal is available here. - HHS Budget Proposal Released: The proposed HHS budget continues ahead with plans for deep cuts across the department, especially in the NIH, CDC and Administration for Children Families and Communities. HHS department cuts sought total over $32 billion.
Specific to the disability community, the ACL’s University Centers for Excellence in Developmental Disabilities, Chronic Disease Self-Management Education, Limb Loss and Paralysis Resource Centers, Voting Access for People with Disabilities, and the White House Conference on Aging are all proposed cuts.
Bright spots: The new proposal walks back some of the proposed Administration for Community Living (ACL) eliminations. These programs remain funded in the current proposal: Councils on Developmental Disabilities, Protection and Advocacy systems, the Long-term care ombudsman program, National Institute on Disability Independent Living and Rehabilitative Research (NIDILRR), Lifespan Respite Care Program, and State Health Insurance Program (SHIP), among others.
Instead of splitting the ACL’s programs across three different agencies as originally be proposed, the programs will move to the Administration for Children, Families and Communities. (This is good news, but remember deep budget cuts to the ACFC are also proposed)
The Dept of Health and Human Services proposed 2026 budget is available in full here. - MAHA Commission Report Cites Sources that Don’t exist: Last week, the commission released a report declaring a childhood “chronic disease crisis” in the US, identifying poor diet, chemicals, chronic stress, lack of physical activity, and “overmedicalization” as driving causes. The report also questioned vaccine safety.
In the days since, it’s become clear that many of the sources cited do not exist.
In addition to making the Commission’s work untrustworthy due to lack of peer-reviewed evidence, fake sources are hallmark of AI chatbots like ChatGPT, who “hallucinate” sources by putting words and names together that sound true, but aren’t real. - CDC Defies RFK, Keeping covid vaccinations on childhood schedule: Last week, The FDA announced a plan to limit access to COVID boosters, restricting them to people over 65 or with underlying health conditions only. RFK also asked specifically that covid vaccines be left off the childhood vaccine schedule. Considering RFK Jr’s profitable ties to antivax organizations, many see this as the first step in limiting overall access to vaccines.
This week, the CDC went against RFK’s statement, releasing its vaccine schedule including recommendations for covid vaccination for all children. - Deaf schools under threat as state budgets compensate for DoEd cuts: Bracing for a federal budget that eliminates nearly $300 billion in education funding, some states are taking advantage of their expected freedom under the block grant system and cutting deaf school budgets.
The New Jersey School for the Deaf (MKSD) saw their residential program completely removed from the governor’s proposed 2026 budget.
Indiana School for the Deaf and California School for the Deaf–Fremont are also experiencing budgetary issues. Indiana seeks to reallocate money previously for ISD toward general public education, while CSD Fremont struggles to maintain appropriate funding for cost-of-living in a gentrified Silicon Valley area. - NAD Sues White House to return ASL interpreters to press briefings: In keeping with eugenic rhetoric, various GOP influencers have shown particular hostility toward ASL interpreters in recent months, ever since Charlie Kirk and Chris Rufo attacked their existence at emergency briefings for the LA Fires, with Rufo calling them “wild human gesticulators”.
Upon taking office, the Trump administration quickly removed the WH accessibility page and all ASL content, and fired the WH ASL interpreter, as part of other “anti-DEIA” initiatives.
The NAD is now suing for the return of an interpreter to WH press briefings. The organization filed and won a similar suit during Trump 1.0, in order to access the emergency covid-related briefings. - Musk out, Project 2025 Writer up: Elon Musk made an exit from the White House this week after a tanking Tesla stock, reports of heavy illegal drug use, and economic models showing that tens of thousands of people, most of them children, have been killed by his pet project–the illegal closure of USAID. Most of the deaths have resulted from malnutrition and lack of oral-rehydration medication for patients with diarrhea, two program areas hit quickest by the loss of funds.
Russel Vought, a self-proclaimed “Christian Nationalist” and head writer for Project 2025, is poised to take over Musk’s work. It’s likely that he’ll be less flashy, and more effective, than Elon in the position. - Hickson v. St. David’s Healthcare Partnership poses new threat to ADA/504: Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.
The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.
Action items:
Share this info! Disability is often lost in mainstream coverage.
Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.
Call your state representative and tell them to include deaf schools in their budgets. You can text NJ Governor Phil Murphy at 732-605-5455
If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting various legal challenges.
Contact medical providers requesting they do not share yours or your child’s autism diagnosis or records with the government registry. Letter template available here.
Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.
Tag: SNAP
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Week 19 Updates
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Week 18 Updates
- House passes budget bill containing deep cuts to Medicaid, SNAP, Dept. of Ed. 215 Republican Representatives voted for Trump’s “Big Beautiful Bill,” advancing plans to cut Medicaid/care, SNAP, HUD and education funding in order to up DHS spending and extend tax breaks to the ultra-wealthy.
Medicaid: adds work requirements, increases “eligibility checks,” and cuts funds.
SNAP: Raises age so recipients up to 64 must meet work requirements, cuts funds.
DoED: cuts funds and shifts them to block grant format. Exact appropriations numbers for DoEd and others are not expected to be available until July (per internal sources).
The bill heads to the Senate, where it needs 51 votes to pass. Some GOP Senators have said they won’t vote for Medicaid cuts, while others seek even deeper cuts. A failed vote will send the bill back to the House. - Budget bans gender-affirming healthcare for people on Medicaid. As part of the budget bill, the House added a provision banning gender-affirming care for those using Medicaid programs. Originally the ban had only been for minors, but has now been extended to all ages.
The ban also extends to plans sold on the marketplace under the Affordable Care Act (ACA). This is likely to face legal challenges as many states have already prohibited plans from refusing care to trans people.
Studies estimate that about 1 in 4 trans people rely on Medicaid coverage. Nearly half of trans people also have a disability(1 , 2). - Dept. of Ed updates: On Thursday, a MA judge blocked Trump’s attempt to close DoED, including the executive order to McMahon to facilitate the department’s closure, and the mass firings conducted in March.
The judge ordered that those employees be reinstated, and underscored that closing DoEd would require an act of Congress. The administration has already filed an appeal.
This is good news, but the budget bill still contains massive funding cuts, shifting remaining dollars to voucher programs and block grants that have no enforcement mechanisms. States can use funds previously for specific programs like IDEA for whatever they want, leaving students with IEP/504s at the whim of districts. If IEPS are not followed, its unknown who, if anyone, families can turn to for support. - MAHA commission report skews focus, targets vaccines. RFK Jr’s MAHA commission released a report on what it called the childhood “chronic disease crisis” in the US, identifying poor diet, environmental chemicals, chronic stress, lack of physical activity, and “overmedicalization” as driving causes. The report also questions vaccine safety.
The report does not address socio-economic factors that may contribute to children’s health, like poverty, or firearm or motor vehicle related deaths. Injury-related deaths account for 60% of deaths for children under 18.
The commission is supposed to present a strategy for addressing childhood disease in August. However critics say budget and personnel cuts at HHS undermine the commission’s ability to meaningfully implement a plan, or even track data. - FDA Seeks to restrict access to covid vaccines: The FDA announced a plan to limit access to COVID boosters, reversing previous policy. If implemented, COVID vaccines would be restricted to people over 65 or with underlying health conditions only.
The FDA said manufacturers of COVID boosters seeking broader distribution to younger people would need to fund and conduct placebo-controlled trials, a lengthy process that would render each version of the vaccine useless given the rate of mutation.
Considering RFK Jr’s profitable ties to antivax organizations, many see this as the first step in limiting overall access to vaccines. - Texas vs Kennedy updates: Thanks in large part to disabled organizers, Count 3 of the original filing, (formerly Texas v. Becerra) “Section 504 is Unconstitutional” has been withdrawn. This is great news!
BUT, the lawsuit continues to attack Final Rule, important updates to 504 guidance re: 21st century technology (telehealth, websites), pandemic-era healthcare (ventilator rationing), and protecting disabled people’s rights to live in community instead of being forced into institutions.
Kennedy issued a “clarification” weeks ago noting mention of gender dysphoria in the preamble is not an enforceable part of the law, so the transphobic framing against Final Rule is now moot. - Hicks vs St David’s Healthcare Partnership poses threat to ADA/504. Michael Hickson, a 46-year-old disabled Black man died in Texas in June 2020 after contracting Covid and being denied ventilator care and other ICU services. At the time, Texas and 24 other states had policies about rationing care that explicitly discriminated against disabled people. This is one of the things Final Rule updates seek to rectify.
The case is currently before the Fifth Circuit Court of Appeals, a conservative court. If they rule in favor of the hospital, it would set a precedent that guts disabled people’s ability to file medical facility-related discrimination claims under the ADA or Section 504.
Action:
Share this info! Disability is often lost in mainstream coverage.
Call your Senator and tell them to vote NO on this dangerous budget. Choose 1 or 2 programs important to you–Medicaid, gender-affirming care, SNAP, IDEA, etc.–and mention them by name.
Leave a public comment with DoED saying no to funding cuts and block grants. They are required to read and log them!
If your state is involved, ask your Attorney General to withdraw from Texas v. Kennedy. If able, donate to organizations like DREDF, ACLU, and NAD who are fighting various legal battles.
Contact medical providers requesting they do not share yours or your child’s autism diagnosis or records with the government registry. Letter template available here.
Consider how to move toward creative acts of mutual aid, and protest, including offline materials. Make flyers! Call out misinformation. Warn your neighbors in the presence of ICE. If able march, boycott, donate and/or volunteer with your local food pantry or library.
- House passes budget bill containing deep cuts to Medicaid, SNAP, Dept. of Ed. 215 Republican Representatives voted for Trump’s “Big Beautiful Bill,” advancing plans to cut Medicaid/care, SNAP, HUD and education funding in order to up DHS spending and extend tax breaks to the ultra-wealthy.
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Call Scripts for 13 March Regarding Budget Resolution and Illegal DoED Layoffs
Script for Calling Your Senator (*Time Sensitive*–they must vote by Friday, 314)
Find your Senator’s phone number hereHello Senator [last name],
My Name is [full name] and I’m a constituent calling from zip code [your zip code] to ask you to vote NO on the budget bill until there are firm guardrails in place that take financial control from DOGE and return it to Congress, as stipulated by the Constitution.
The executive overreach of freezing Congressionally-approved spending and firing federal workers is illegal and dangerous.
I understand concerns about the impacts of a temporary government shutdown, but the government is not currently functioning by the rule of law. Giving Republicans free reign to gut Medicaid and SNAP will harm even more Americans. Please use this moment of leverage to stand with the American people and the Constitution, and vote NO unless enforceable protections are implemented. Thank you.
Script for Calling Your House Representative
Click to find your Representative
Hello Representative [last name],
My Name is [full name] and I’m a constituent calling from zip code [your zip code] to ask you to stop the Trump administration from harming students and families by dismantling the Department of Education. By closing key offices and conducting illegal layoffs, Trump and DOGE are trying to bypass Congress to gut the department.[Personal statement here] Ex: In particular, I’m a [parent / student / teacher / community member], concerned about about the impact that these cuts will have on students with disabilities, including funding and oversight for programs like [IDEA, 504, Gallaudet, American Printing House for the Blind, Helen Keller National Center, Special Olympics. If applicable, restate importance of program to you or your family.]
This is an overreach by the executive branch. Please act to protect the students and the federal workers who serve them. Thank you.
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Week 5 Update
- Linda McMahon’s DoED Nomination Advances
- The HELP Committee voted along party lines, advancing Linda McMahon to the full Senate for her confirmation as Secretary of DoED.
- Trump has promised major cuts to the department via Executive Order once McMahon is in place.
- Three active bills to abolish the department are also currently in Congress.
- DoED funds and oversees a variety of disability-specific programs and grants, and protects disabled students rights to attend public schools. Read our full explainer on DoED here.
- Funding Cuts for DoED Now at $502 Million and Counting
- Cuts to staffing and research grants continue as GOP promises more layoffs
- “Evaluation of Transition Supports for Youth with Disabilities” was one such cut, a program that gave money to states to help support disabled students graduating from high school acquire jobs and transition to independent living
- Mass Layoffs Hit Disabled Veterans Hard
- Over 200,000 federal workers have been laid off since January, More than 15% of the federal workforce is made up of disabled veterans.
- 1000 workers at the Department of Veterans Affairs were also fired this week, making it harder for veterans to access their health and mental healthcare, and other services.
- Texas vs. Beccera Lawsuit on Hold; AGs Refuse to Come Clean about Scope of the Complaint
- On Wednesday, involved parties wrote to the judge asking for more time to evaluate their case, and claiming they did not seek to declare Section 504 unconstitutional.
- The letter still takes aim at Final Rule’s spending guidance for independent living, which could affect disabled people’s rights to live in-community. They also continue to use transphobic rhetoric to attack Final Rule.
- Despite reassurances, the original filing does explicitly ask for 504 to be declared unconstitutional (p 37-42). We also should not make concessions on basic rights for any humans. See all our Texas v. Beccera resources here.
- House Budget Takes Aim at Medicaid, SNAP
- The House presented a budget bill that would require $880 billion in cuts from the Energy and Commerce Committee, who oversees Medicaid. Medicaid provides healthcare for 70 million disabled and low-income Americans,
- On Wednesday, Trump endorsed the bill, after previously saying he wouldn’t touch the program.
- SNAP, the program that provides financial assistance specifically for buying food, is also under threat.
- Executive Order “Ensuring Accountability for All Agencies”
- Consolidates power under the President by taking it away from independent agencies. Says the President has the final say, including budgetary, over all parts of the Executive branch.
- From a disability perspective, the future of the Federal Communications Commission is of concern. The FCC currently oversees and disburses funds for things like closed captions, captioned phone calls and text and video relay.
- This move is a key tenet of Project 2025. Expanding the powers of the President and weakening checks and balances is dangerous for the health of any democracy.
- Threats to Special Education at the State Level
- Indiana HB 1136 appoints state governing boards over local community boards, and targets schools for charter conversion, which could harm disabled students’ services and weaken IEP oversight.
- Alabama State HB197 seeks to “investigate” and fine parents who file complaints under IDEA’s due process procedures, and makes it harder to recover legal fees if a family wins their case.
- See our friends at Fighting for My Voice for a state-level education policy tracker
- Some Good News
- After feedback from advocates, Indiana’s SB473 was revised to include ASL and all language options for deaf children’s early intervention programming. Previously the bill protected spoken language only.
- Connecticut’s State Legislature is expected to approve $40 million in additional funds for special education in a vote next week
Take Action
- Share this info. Disability is often lost in mainstream coverage.
- Call your Senator and ask them to vote NO on the McMahon nomination and protect DoED.
- If your state is involved, contact your Attorney General and ask them to drop out of Texas v. Beccera. Tell them you stand in solidarity with all disabled people, as well as trans folks. If your state isn’t involved, you can still call and ask them to protect Section 504.
- Write/call your Congresspeople and tell them to fight for Medicaid, Medicare, SNAP, and Social Security. Entitlements are taxpayer money!
- Keep an eye on your state legislatures and make sure they are not complying in advance!
#ProtectADA for community sharing, news, letter templates and more
- Linda McMahon’s DoED Nomination Advances